-
Bone biopsie
Hi everyone beautiful day here in Melbourne hope your all having a fantastic weekend 😃 so my bone biopsie is tomorrow, anyone else had a bone biopsie? What should I expect?
-
De Novo Metastatic with new progression - first post
Hi there, I am completely new to the discussion boards (first post) and trying to stay positive. I was wanting to reach out to others who might understand what I am going through. I was diagnosed de novo metastatic on 04/07/2018. Originally it was a single spot to my spine (L2) then a few weeks ago I found out there were…
-
Mets to liver
Hi, first diagnosed with BC in 2012 (stage 3). Was on tamoxifen for just over 5 years until last Jan and then I started to feel unwell, weight loss and I knew something wasn’t right... after tests it was confirmed that it returned and this time it had spread to my liver. It’s been 12 months and still working full time -…
-
Anyone on the AZTEC trial??
I have metastatic TNBC and have recently commenced treatment on the AZTEC trial. Is there anyone else here on that trial???
-
Avastin
Is anyone out there with metastatic TNBC with skin Mets on chest wall using Avastin? could you tell me about your experience as this is about my last resort but onc doesn’t really give it a big wrap but I do understand it can only give me some extra time if it was to do something but that’s something I’m looking for whilst…
-
Not Driving due to epilepsy from brain surgery
Its been a while since I have written as I have not been in a good place as I have lost my independence. I rely on a local community transport to take me to gym and other appointments when my husband can't take me. I had brain surgery before Christmas 2018 and have not driven since then. I have added another specialist to…
-
Podcast ideas for people diagnosed with metastatic breast cancer
Hi everyone, BCNA is developing some podcasts for people with metastatic breast cancer and would welcome your input. The first podcast is titled ‘Metastatic breast cancer-what now?’ What questions would you have liked to have asked about your treatment and its implications on hindsight? What information would have helped…
-
Pet scan results
hi everyone, well pet scan was yesterday waiting on the results today, I’m on tender hooks today.
-
Bone mets vs arthritis
Hi everyone, well, today I had my first bone scan. My GP ordered it for mid upper arm pain that I've been having since the start of the year with no relief from cortisone injections etc. after the second stage of scanning they said they had found some hot spots in my spine and so I had to have a further 60 min 3D scan of…
-
Can you feel if you have mets?
So I went to see my GP as I've had pain around my chest and arm and can't stretch it that started out of nowhere (I finished radiation in November) and while I was there I told her that I have had bone aches that come and go in my left shin and my back. As my cancer was an easy one, cut out, then radiation (although it was…
-
Medication not available
Has anyone else been told that their medication hasn't been ordered and subsequently isn't available? That is what has happened to me this week. I was supposed to pick up my medication on Wednesday, but I still don't have it. I am thinking that perhaps I am cured and don't need any more medication. 🙄
-
PEt Scan
hi everyone, I have a PET Scan on Thursday with results late Thursday afternoon, anyone else had a PET scan? They tell me I have to fast from midnight
-
Chest wall recurrence #2
Hi everyone, Love and best wishes to all on this forum. Cheers MvB
-
First question - Zometa/Zolodronic acid
Hi all Thank you sooo much for the warm welcomes and encouragement. It feels kinda weird finding others in similar situations. I knew you were all out there somewhere but wasn’t quite ready to admit it all to myself. The beast is here to stay but I’m glad to find others who are ready to slay it with me. So this week I have…
-
Time to own up to mets
Hi pink sisters I feel like it’s time to own up to my stage 4 liver Mets that I was diagnosed with 12 months ago I can’t say I’ve been paddling in that Egyptian river.... de-Nile.... denial (get it? :smile: ) but I have been avoiding owning up to it. I guess I’ve been wishing it’s all just a bad dream... alas! Here it is:…