Podcast ideas for people diagnosed with metastatic breast cancer
Hi everyone, BCNA is developing some podcasts for people
with metastatic breast cancer and would welcome your input.
The first podcast
is titled ‘Metastatic breast cancer-what now?’
What questions would you have liked to have asked about your
treatment and its implications on hindsight? What information would have
helped you prepare for what lies ahead? Would more information about how
treatment decisions are made have been helpful, managing changes in treatment?
The second podcast is titled“Living with metastatic breast cancer”
What
information would have been helpful for you to cope with the ongoing demands of
treatment and the impact on your day-to-day life? What needs did you feel could
have been addressed better? E.g. advice re work, managing finances due to
ongoing costs of treatment, relationships, wellbeing etc
Look forward to your thoughts. Many thanks for your help with this. Riki
Comments
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I would have like liked information about any supports available incuding BCNA .
1 -
Hello Riki, there is a great podcast that comes out of the BBC UK called 'You, Me and the Big C' - they cover a whole range of topics that could be included. It's worth checking out.1
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I would love to hear about how to negotiate the patient to specialist talks. Especially when things are not going to plan and there is alot of uncertainty on your life.
3 -
Hello
I would like to hear more about the after" active treatment " steps.
How to get back to work , finances current and ongoing , dealing with superannuation insurances would be good.
Expectations from specialist team, family , yourself.
1 -
Knowing that once the chemo and radiation is over is only the beginning. Dealing with ongoing treatment with the everlasting effects of chemo/radiation while juggling life and work is a real challenge.1
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Thank you everyone for your contributions. Much appreciated.0
