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Summary from BCNA metastatic breast cancer information forum Saturday 13 October 2018
Hello eveyone, Find attached the summary of the metastatic breast cancer information forum held on Saturday 13 October 2018. Regards Giovanna
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who is admin on the Mets group please
http://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer @Angelo is trying to join but can't see a join button?
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Best Christmas Present.
Today I saw my oncologist after having CT scans of organs and a bone scan. I had changed chemo to Caelyx last October and this was the first scan on this treatment. For the first time in over a year my tumour markers are coming down. A couple of bone mets in my skull bones have disappeared and others have got smaller. The…
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Metastatic breast cancer forum 13th October
Hi @Giovanna_BCNA. Is there any indication of when we might get the summary of this forum? Thanks.
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Rash
My last post I was asking if anyone experienced a rash over the breast & lymph node area which has been operated on. I was told by my GP yesterday that it is the cancer which has spread to the skin. I had heard that this can happen but was very upset. It’s three years from my first bout of TNBC I’m about to start chemo…
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Information access on the Metastatic breast cancer information forum for those that can't attend.
Please can we get a video done and put up on the website on the sessions at the Metastatic breast cancer information forum that is happening in Melbourne on Saturday. I can't get there but I really want the info on the emerging strategies for metastatic TNBC. Surely in this day and age the technology is available and it's…
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Metastatic Group
Diagnosed today with Mets have tried to join group numerous times with no luck.
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Confused with my diagnose.
I was Diagnosed with metastatic cancer on 17th September. Iv'e has scans ex rays etc and having a mastectomy on 13 November. It seems that it is only in my nodes. Does this mean it not Metastatic cancer as I thought that meant it was somewhere else. I'm confused.
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Radiation on hip bone.
Hi, have metastatic breast cancer , left breast, left lymph and two lesions in hip bone, just finished six months chemo, 4 AC/T and 12 Taxol. no change , so semi good news. Have a lot of pain in my hip even if keeping very active , onc. suggested radiation for pain , now he is saying it can kill or slow down tumors in hip…
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Cancer spread to liver.
Waiting on scans to confirm the cancer has spread to my liver. Now wondering the about the question no one can answer. How long have I got?
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Advice re filtered water and avoiding sugar...
This discussion was created from comments split from: Cancer spread to liver..
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Two steps forward, one step back – news on access to CDKs in second line treatment
Hello everyone, BCNA has an update on access to CDKs as second line treatment. Pfizer have this week advised BCNA about a new capped access program for the CDK inhibitor palbociclib (lbrance) which will be available from October 1, 2018. This means you still have to pay for around 8 months of treatment (at a cost of around…
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SIRT
Anyone on here had SIRT and how did you go?
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Metastatic breast cancer awareness day 13th October
Could we be more aware?
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Feels like a brand new diagnosis 😫
Hello, Although I have been aware of these groups I have been too afraid to post. Posting meant I truly had cancer. Everything happened so quickly it still feels like a dream. After finding a small, red, angry lump on my left breast, I plucked up the courage to visit my GP. He straight away organised a mammogram. On…