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Newly Diagnosed
Hi, I was diagnosed in April with mets in bones. After three different cancer journeys with breast cancer over many years had a bilateral mastectomy 10 years ago. Now what? I am just at the beginning of a new learning curve. Feeling overwhelmed and unsure but will plod on and deal with whatever comes. Life is good and…
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Sisters in solace
Dear fellow travellers I’m currently in Ullapool, Scotland and had a very poignant and touching exchange with another woman at a local market. I bought a knitted headband from her. As I took off my hat and put on the headband we both realised that our hair was similarly sparse and immediately knew why. She came out from…
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I can't connect with my diagnosis..
Hi there, This is my first post for 5 years. A month ago, I was diagnosed with metastatic bc in my spine and rib, 5 years almost to the day of my initial diagnosis. I am perfectly well, and it was picked up after a routine oncology check showed elevated markers in my blood. The week that my oncologist phoned me, I was…
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Tumour markers and abraxane
My sister hasn't completed her second cycle of abraxane and her tumour markers have jumped into the low 100. Her markers have never been this high before. Has anyone else had this happen on abraxane and have your tumour markers come down.
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Caelyx & nausea
Hi all, I started a new chemo called Caelyx last week for my numerous mets. I had the chemo last Wednesday. I felt good up until today (Monday). My stomach is very upset & I am off my food. Any tips to combat the nausea would be appreciated? What other side effects should I expect on this chemo? Thanks
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Lymph nodes
hi gals. Ive had my mastectomy 14mnths ago, triple neg, did 16 rounds chemo n 25 radiation. Got through it ok, now 6 mnths later, accute lyphodema. My arm is huge and painful and swelling across chest, dark burgundy/black patches on skin. Had scans galore and mri has detected cancer in some of remaining nodes. Going for…
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Making Good Decisions - an information session for Melbourne women with MBC.
Apologies for the late notice! Counterpart (formerly Breacan) is holding an information session on Monday June 18, from 1 to 2.30. The session will focus on decision making and will be run by psychologist Belinda Asti, who has worked with Counterpart for 15 years and is very much aware of the problems faced by women with…
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Aaarrrrhhhhhh
For the very first time since my diagnosis, I am actually sick!!! WTH??? Germs are within my body, partying, inviting friends ..all without permission... Be gone germs, I vanquish thee demons!!! I actually feel like crap & I do not like it.... Ok, rant over...:)
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Advice please ? Fellow her 2 bc on herceptin and perjeta..
Hi ladies. Just hoping any one else with her 2 positive breast cancer on herceptin and perjeta treatment can tell me if this treatment after over 15 months or down the track on these drugs causes symptoms that come on now rather than in the beginning. Has anyone suffered dizzy spells and nausea from these drugs further on…
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Indian head massage seriously beautiful..
Today I had an Indian head massage ....wow. I thoroughly recommend it to all my sisters on here. It was so beautiful I nearly fell asleep . An Indian head massage is not only extremely relaxing but really good for lots of reasons including helping to stimulate hair growth after chemo .It's good for circulation and to…
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Hi
Hi all, I'm not meaning to exclude anyone as having metastatic disease is not great, but I'm just wanting to know if there are other young women out there with metastatic breast cancer? I was diagnosed with EBC at 25 and then ABC at 28. I'm looking to see if there are any other young women out there that are in the same…
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Ribociclib/ letrozole/ denosumab side effects
Hi all, I ws wondering if anyone else has QT prolongation and low neutrophils and now I have a bad infection in my jaw so my onc has stopped everything except letrozole, I am pretty upset because my tumours had shrunk and my markers were really low, now I have to wait til the dentist fixes my mouth and I'm worried that all…
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So Confused!!!
My tumor markers has risen after only 3 months on new treatment. Started @ 219 went down to 151 the 6 weeks later back @ 235. Recent bone scans show some bone lesions undetectable, some unchanged, some more obvious, not bigger as i understand it just more obvious, no new lesions. CT scan was fine. Onc said its not disease…
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Ibrance and PBS
Hi everyone from a lovely winter day of 30 degrees in Alice Springs. Don't worry, it will get down to one degree by the end of the week, I am trying to find out what the very latest is on Ibrance (and related drugs), gaining PBS in Australia. I read recently it was approved for subsidy for some people which is great news,…
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Confused
My primary breast cancer 7 years ago was oestrogen + progesterone + and her2 - My metastases when found a year ago was TN My confusion is this: when I look for information on treatment and life expectancy on MTNBC all of the info I find is for BC that was TN to begin with whereas mine has changed. Most of what I have read…