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Herceptin side effects or brain mets ? Freaking out.
Any one have these side effects . Lately I've had sinus pain just dull. Occasional stabs in temples sore scalp and only once a neck click and pain stab behind eye and a funny feeling like an itchy crawl on crown of scalp . Apart from that I feel fabulous . Feel super charged... but doctor Google has for me to tell it…
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Vale - kimfree
Just wanted to let everyone know in the metastatic world, another beautiful lady received her angel wings on April 8th - Kim was diagnosed in 2010 with mets and I got to know her through the NSW Telephone Support Group for Women with MBC, she also wrote a lovely piece for the Inside Story , Winter of 2017 - Filling Up My…
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McGrath Foundation nurses
Has anyone had any luck contacting and talking to a McGrath Foundation nurse specializing in metastatic breast cancer? Apparently there are only 6 dedicated mets nurses in Australia and 119 for breast cancer. I did contact one, after being given her phone number by the telephone contact at the McGrath Foundation. She…
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Denied early access to my Super fund
Hi all Found out today I have been denied accessing my Super early as my onc refuses to sign the form. My life expectancy is 3-5 years. What is the point in having to wait until I'm on my deathbed to be granted MY money that I have been MADE to save all these years by the government? I am not coping well with this news,…
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Erubilin side effects
How does side effects of Erubilin compare to other chemotherapy treatments?? Soecifically Can anyone compare Erubilin side effects to Gemcitabine/ Nab-paclitaxol side effects???
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Finding some inner calm with yoga.
Melbourne women: Counterpart (formerly Breacan) is holding a gentle yoga session tailored for women with advanced disease on Wednesday April 18, from 10.30 till 12. Further details and registration on the Counterpart web site.
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Y90
Anyone know if Y90 is offered in Australia for MBC?
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Wanted someone who cares!
Today it really hit me .....I have no one that cares not one person. Coming up to my cancer 2 year diagnosis life goes on and I'm in it but so alone . I cook clean straighten hair do nails but still no one cares enough to say how are you mum . I am so very lonely . When my husband gets home late he eats and watches tv if I…
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Tumor in the eye.
Hi all. I was diagnosed with breast cancer March 2016. Finished treatment Nov 2016. Hormone positive so take tamoxifen. Was not in lymph nodes. So had positive feedback. Now blurred vision in my eye has been diagnosed as a tumor. Has anyone else has this? Pet scan will be next to see if any others. The terrible pain of…
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Test results back phew....
Hi ladies After a nervous wait. Results back... very surprising. I had completely talked myself into the fact to brace myself the cancer had spread . My onc turned to me and said spinal mets all 5 translucent.... liver mets all 12 still scar tissue no further cancer seen Suddenly I felt an instant feeling of amazing…
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IT'S SCAN TIME AGAIN....
It has been about 8 months since my last CT scan (and over 2 years since my last full strength chemo) to see what "marvin the met" has been doing in my vertebrae. Going for regular treatment, blood tests, heart scans etc everyone around me is now pretty used to it and thinks nothing much about it anymore. I know you guys…
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good news!!
Got back from the oncologist late yesterday, so after two trips and 600ks later, the ct scan showed that everything is fine, well as fine as can be, the enlarged lymph nodes were due to a sinus infection, my markers are just a little higher but nothing to worry about as this stage, my bloods are excellent, SO will continue…
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Massage with spinal mets is this a good thing?
Hi everyone Im so dreaming of a massage ! Does anyone know if this is ok as my back has a few aches and im post weights sore and sooo need a massage but am a little apprehensive. :)
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Liver mets.
My sister was put on arimidex after being on gemza for liver mets. She had good response to the gemza with only 1 liver met left. Today she got scan results and the outcome was not what she wanted to hear. That single met has almost doubled in size and now has extensive small mets through out the liver. Has anyone been…
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Clinical trials - information session.
Counterpart (formerly Breacan) is holding an information session for women with metastatic breast cancer on Thursday March 15, from 10am to 11.30 at its Melbourne city resource centre.Dr. Catherine Oakman, medical oncologist from Western Health, will present the session - covering current clinical trials, emerging findings…