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Wow today I feel so terribly sad and sorry for myself shame on me.
Today I feel so sad and alone . My daughter tells me lately I've been to hard to live with and this morning my husband said he needed a few days away so both of them left . Before he left he told me if I was dying I would be nicer sometimes which cut my heart out. I don't think I'm dying but they obviously do.... so…
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Stomach
Happy New Year lovelies...my stomach has started acting up again, like when I was doing chemo...I finished chemo in mid September and my stomach started in the last couple of weeks. Is this normal? It’s hard to describe it, it’s not painful, feels like the lining of my stomach is burning. Taking Zantac doesn’t…
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Guess what I did?
Hey girls, i have just returned from a great trip. We did 5 daysin Singapore then boarded the beautiful Ovation oif the Seas and sailed back to Sydney.. A great time was had by all
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Can we skip a treatment when side effects to much.?
From experience can anyone please tell me if we can front up to our onc treatment day and request a reprieve from the drugs? Seriously I'm now on a break and it's lovely however would be if I wasn't itching and burning all day and night as a drug skin reaction. Nothing helps and I'm definitely sure my low feelings of late…
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Disappointing news.
I just read on face book that CDK inhibitor Ribociclib has been rejected for listing on the PBS. This is very very disappointing news when we have metastatic breast cancer and are always hoping that some new treatment will come along and when it does it is un affordable . It makes you think what is the point of hoping. I…
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Zometa
hi everyone, I'm interested to hear your experiences with Zometa. I am more scared of that than anything else for some reason. Thanks
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How do you know?
good evening lovelies...just reading the different stories as I can’t sleep. I guess we all worry about this, but how do you know if your cancer has spread...to your bones or liver? Thank you Nellie xx
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Painful split fingernails help please
Hi ladies Can anyone help with some advice please. I have with my treatment the unfortunate split horrible fingernails that refuse to grow at all however what the problem causing me pain atm is split skin cuts on the tips of each finger that hurts to touch anything and hurts all night just aching I have tried creams…
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Bone mets and relationship fail
I was diagnosed with stage 4 from the outset about 6 months ago.(june 17) Im 46 and had been dating a guy for just 6 months at the time. After id done a lot of processing, crying and really thinking about what i needed i ended the relationship a few weeks ago. He has been very angry and nasty and has stalked me.Its been…
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need to hear from people with bone mets
Hi I was diagnosed with breast cancer in 2014, 1 year later I had ovaries removed as it had gone there. In october this year I found that i had bone mets. I have been on chemo tablets and I am up to my 4th cycle. I had radiation on my tailbone and I get an injection once a month. I am 53 and would just like to discuss bone…
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Her2 stage 4 anyone help scared?
Hi ladies I am into 12 months of 3 weekly herceptin and perjeta infusions and have had great results and part from itching skin driving me mad and lack of sleep due to this and a sore nose I'm coping quite well . However about a week ago I started feeling bouts of nausea on and off during the day. Feeling scared..... I've…
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Denial
Hi all, Feeling a bit perplexed today. I decided it was time for my husband & I to see a financial planner to discuss our superannuation and other financial needs. Well hubby was ok with this until the planner asked for permission to look into the life insurance policy I have within my super as I have metastatic breast…
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Herceptin on PBS for Metastatic BC
For patients with metastatic breast cancer who have had hormone therapy like Femara and many chemos like Xeloda, Navelbine,Abraxane etc and still progression, is Herceptin available on the PBS or is it restricted to newly diagnosed?
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Is anyone taking Ibrance/Palbociclib?
Hi everyone, I had an appointment with my OC this week and he has suggested taking Palbociclib + Letrozole if I can afford it until it gets on the PBS. He says it's most effective as a first line treatment ( I'm only recently diagnosed de novo metastatic) and trials show double the progression time as Letrozole alone. Is…
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Letrozole
Hi Ladies I have started my third month on Letrozole and I have started to ache really badly, ever so tired and the weight is piling on around my middle, even though the diet is good and I am exercising when I can but not as much as I usually do due to having an op on my foot and it is taking a long time to heal as it is…