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Feeling lost and overwhelmed
I have been living on this rollercoaster since being diagnosed with hormone receptive positive breast cancer in March 2017.I required a right mastectomy which I had only weeks after diagnosis as it was very invasive. Had 25 lymph nodes removed during surgery also. Results came back, to hear it had spread into my liver and…
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Joining
Hi ive just been diagnosed wiith breast cancer, unfortunately stage 4. The metastatic group says i have to join but there is no link
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Treatment??
Hi I have only been online for a few days so thankful to have a place to chat about life's challenges with metastatic breast cancer. Is there anyone that is on tamoxifen as their only treatment .I have been taking it for just over 7 months. My oncologist says that we can only manage the cancer as there is no cure. I don't…
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Forgetting things
Hi all, I am very upset today. I forgot to register my family to go to my husband's work Christmas family day. We look forward to this day every year especially the kids. But I forgot to RSVP. I used to be very diligent. I never forgot anything but since diagnosed with metastatic breast cancer my brain doesn't function the…
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Portacath Thru The Groin
Has anyone had a port inserted thru the groin. I had one in the standard chest position in 2012 which during Radiation in 2013 was found to have given me clots in the lungs and inner chamber of the heart, which eventually led to a PE and having burr holes drilled in my head, followed by a slight stroke. Unfortunately now…
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What is wrong with me?
Just finished my 3rd cycle of Eribulin. Bloods so far are good and I am due for scans on the 13th. I feel so flat and emotional though and I am scared things are getting worse. I have had a few more aches than normal and every time I look at my kids I just want to cry. I dont know why I feel this way. I am usually a…
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Mastectomy in Stage 4?
Hi, I've been metastatic for 2 years, have only had initial chemo and have been on herceptin and Perjeta for almost 2 years. My recent mammogram showed that my primary tumour has recurred and there are 2 new tumours near it. There are no visible mets as of 2 months ago. My oncologist wants me to have a mastectomy and to…
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Bone Pain
I have widespread scalp to knee bone mets as well as liver mets. The problem im having is that when I am on my chemo free days I have no pain at all but when I have chemo I end up with aches and twinges all over. Does anyone else experience this and do you know why?
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Swelling in legs after finishing 6mths of nab-Paclitaxel
I’m wondering if anyone else has experienced swelling in their ankles & legs after nab-Paclitaxel. My legs are rather wobbly as a result, not aided by neuropathy in my feet. I’m keeping active and walking every day and cycling most days. I also have an exercise / strengthening program developed for me by an exercise…
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Medical Letter
Hi All, just wondering when I need a letter with my breast cancer prognosis and treatment plan which Doctor do I ask the oncologist and GP not sure.Shazx
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Liver mets & struggling
Two weeks ago I found out that my BC has metastasised to my liver, with multiple mets, the largest being 111mm in diameter. I was initially diagnosed with Stage 3 BC cancer in February 2015 and had a bilateral mastectomy, followed by chemo, radiotherapy and hormone treatment. I was fortunate in that I came through all…
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Cancer found in other breast - 2 1/2 years after 1st diagnosis
This week I have found out I have another 1cm cancer in the right breast. Feb 2015, in the left breast I had a lumpectomy, 6 months chemo and radiotherapy. The first was grade 2. Really struggling and terrified at what I might be facing. Any advice would be appreciated. x
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Happy Dance
The all inevitable Oncologist appointment today... Tumor Markers down to 53, Oncologist VERY happy with my hands & feet, the Xeloda is doing its job but not creating too much in the way of side effects. All other bloods looking good as well. Take that MBC!!! I win this round.... Oncologist wished me well on my upcoming…
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Adelaide ladies-cheap scans
hi ladies has anyone used Adelaide MRI? I have always used dr jones and partners because I thought Branson's was the only alternative. I have just come across some info that say Adelaide MRI bulk bills that's right no gap. Anyone know of they are ok ?
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Accessing super for treatment
Does anyone have experience with the process of accessing superannuation early with the purpose of spending it on medical treatment (specifically, palbociclib)? Or do you know of anywhere we can find out details about the application process? Thank you ladies!