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Holidays
So happy to be able to get back on line. Have been trying for the last few weeks but couldn't get on. A computer glitch I guess. Well its chemo day today and again next Tuesday but after that my oncologist has given me a couple of weeks off, so my husband and I have planned a holiday in Tasmania. My daughter and her little…
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Overseas travel
Hi ladies, Just wondering if anyone has had any luck with getting travel insurance? I don't think we are eligible (what a burden we must be!!). I'm considering and hoping to plan a trip to Europe early next year for maybe a month, with my husband and little one year old girl. It's a bit tricky to plan and organise, as I…
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Advice needed again Herceptin and Perjeta skin reaction ...going nuts...
Hi ladies, I apoligise in advance this problem is such a terrible pain in my life.... and .... never gets any better only worse. Im hardly sleeping past an hour and then waking with the burning itching arms shoulders and neck and then by the time I apply cream and ice it . I can tell you I am soooo tired every day. I have…
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Removing ovaries can it help
Hi I was diagnosed with hormone receptive positive invasive breast cancer in March 2017 which was a big shock as no history in family but to find out in April it had already spread to liver and right lung was like double whammy. I had a right mastectomy in April then given tamoxifen as treatment which I am still taking. My…
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Not being able to lie flat mets to back and still walking with crutches
Hi I just joined have mets to back a tumour pressing on spine lots of spots im told. Was in remission from bc for 17 years back ache suddenly got bad May 2017 thought just ageing did not think I would get cancer again. Got radiation which reduced pain, then letrozole which stopped working now on chemo capecitabine 4 th…
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Hair loss after 4 weeks
Hello everyone, I've been doing chemo (Abraxane) now for 4 weeks. The oncologist told me I will probably lose my hair. Last Sunday my scalp felt sore so I made an appointment with my hairdresser to get a hair cut on Monday. Felt so much better after the haircut. But I have noticed in the last few days that my hair is…
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Triathlon Pink 2018
Hey girls, on Sunday January 21st I participated in Triathlon Pink 2018 & let me tell you I had sooo much fun & cant wait. to do it next year.... Swim 100m Cycle 3km Run 1km.... was only the short Tri but I did it & I finished it...28:25 mins..
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Treatment seems bad as the disease
hi everyone! I was diagnosed with metastatic breast cancer in February 2017. My first diagnosis with breast cancer came in mid 2013. I have hormone positive breast cancer. Treatment for the first diagnosis was a lumpectomy with right axillary clearance, further surgery 2 weeks later as they did not achieve clear margins. I…
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Goodbye to my friend, Ricki Hayes
My friend, Ricki Hayes, had lost her long and painful battle with triple negative breast cancer. I will miss her. Death was expected. I received a message from her beloved and endlessly supportive husband of 37 years, Terry, on the 28th of December. She was in pain which the doctors were managing "as best they can" and it…
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Long term herceptin only anyone ? Need some advice from experience please
Hi ladies I am 12 months into herceptin and perjeta 3 weekly infusions and suffering terribly with insane burning and itching of my arms neck and shoulders. So much my life and most of the night is in ice and ice packs cause absolutely the one hundred solutions haven't worked .... it appears with me to be a skin toxicity…
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Tumour Markers/Liver
I am on my 8th or 9th cycle of Eribulin and my tumour markers went up 30 points the other day. I know it doesnt meant too much but its still upsetting. I am also finding 24 hours post chemo my liver feels like its going to explode it doesnt last much more than a couple of hours though. Has anyone else experienced this?…
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Liver mets - treatment options
Hi everyone, I was dx Stage IV in Sep 2016 with Mets to the Omentum and bones (spine, pelvis). This was 7 years after my initial diagnosis during which time I had been on tamoxifen. So I was put on affinitor and Exemestane and monthly Xgeva shots. The affinitor made me very sick so I stopped that drug but continued with…
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Alaparib
Hi, I was wondering if anyone has taken or is taking Alaparib? I have lung mets which have grown (again) & have been on Letrozol for about 12mths. Yesterday my oncologist started me on Alaparib & I was wondering how others were coping with it. Reading the info sheet & listening to oncologist, it sounds pretty much like…
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I'm a Pheonix
Recently had brain surgery to remove a cyst filled with liquid attached to a lesion that had been treated twice with Radio Stereo Surgery. So happy to have a diagnosis that all has been removed successfully and the "lesion" turned out to be benign also. Medical practitioners thoughts are it occurred due to having two radio…
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My Body keeps Giving
Well I have had a great year of wellbeing which brought me false sense of security. When all was going swimmingly, I have my usual end of year scans and low and behold, a 5cm cyst in my brain. Thankfully not cancer but suspect its has been caused through radio stereo surgery which I have had twice in that area. Mind you, I…