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Olaparib / PARP inhibitor
Does anyone have experience with Olaparib (or other PARP inhibitors, suited for women with BRCA mutations)? I may be taking it later in the year (after 8 months Abraxane) and just wanted to check the side effects. Thanks ladies.
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Feeling down
Well the last couple days i have been feeling down, teary, realisation of what is happening rears it’s ugly head again someone unlocked that oh so carefully locked door I had it behind. Had a kidney stent removed and replaced on Tuesday, it’s my 3rd week on Kisqali, so I’m on my normal week now as I like to think of it,…
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Webinar coming up at Counterpart.
I hope the link works, but Michelle White will be presenting on new treatments, trials, etc. This will be broadcast on September 3. See Counterpart website for details.
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Hi Ladies
Hi, Well its been 6 months at least since my last post, and what a 6 months it has been, I really felt that I needed to take a step back and just breathe, the new regime of oral chemo drugs was a hard gig and in the end and after a frank discussion with my oncologist, it was time for another approach, and I knew what this…
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Hip fracture
Tomorrow would have been a month back at work after 12months absence due to treatment .a simple grocery shopping has turned into a hip fracture didn't fall ,or hit anything just took a step wrong. Now going to need hospital stay for a week and a walking aid for at least 6weeks. Upside , no surgery , got to keep positive.
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Cough- Metastatic Breast Cancer
Hi, I’m Deanna and last week I was diagnosed with metastatic breast cancer in my bones. Aged 48. Not bone cancer thankfully. Slow-growing and got it early. hormone receptive. I was originally diagnosed with breast cancer in 2012 at age 41. Was an invasive ductal carcinoma and consequently had surgery chemo radiation and…
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Daughter
hi everyone, just need to vent, oh f..... oh s... oh f..... I was diagnosed earlier this year with Mets, son had testicular cancer in 2017, he all clear which is awesome. Youngest daughter who is 29 rings me today, mum I found a lump, have been to the doctors got an ultra sound tomorrow, doctor has put on the referral it’s…
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Metastatic breast cancer podcast?
@Riki_BCNA. Quite a while ago, you were gathering ideas for podcasts relevant to those of us with metastatic breast cancer. Has anything come of this?
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6 months on Ribociclib
Well it’s been 6 months and the Ribociclib combo seems to be working. I started this Mets journey in Dec 2018 with tumour markers at 114. My latest blood tests were in early June with tumour markers at 42. It’s a nervous week this week with scans, blood tests and Onc visit, so fingers crossed that my results stay positive…
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Newbie
I have just been diagnosed with metastatic breast cancer in my spine, it seems to be just in one spot L1 however I'm still waiting on PET scan results. It all feels a bit weird not sure how too feel about it all. I'm on regular pain relief but the pain at the moment is a bit dodgy so any ideas on managing without using too…
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Is anyone else on Talazoparib?
Hi Ladies, I am a 46 year old wife and mother of 2. My initial diagnosis of Breast Caner was in 2013 -Er+ Pr+ HER2-. After Chemo, Radiation, Oopherectomy, Double Mastectomy, I thought I had the all clear but alas I was wrong. In 2016 my Cancer returned in the bones and is now residing in my Liver and causing a lot of…
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Liver and Brain mets
In Sept 2018 I was diagonse with liver mets from breast cancer I had in Sep 2015. Six months of chemo saw good results until Wednesday when a routine CT scan revealed liver cancer returning and also mets in the brain. I was devastated as I had no other symptoms. I start full brain radiation Tuesday week, for 5 days and…
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Podcasts
Today, there is an article in my local paper about the Cancer Council podcasts called "The Thing About Advanced Cancer". Apparently they were launched this week. There are 10 episodes which look at what it means to have advanced cancer. Topics include treatments, hope, life and loss. They are hosted by broadcaster Julie…
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new bone lesions....help whats next for me
Hi all, I thought I was off this merry go round that is cancer. I've just been diagnosed with METS on 2 ribs(one each side), humeral head, scapula and a also in pelvic bone. I originally thought it was only in the 2 ribs which were discovered via a bone scan and then a follow up MRI. I elected to pay the exhorbitant fee…
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Recurrence in lymph nodes
Hi everyone, I was diagnosed with TN Inflammatory BC in late Oct 2017. Treatment was 5 mths of Chemo ( 8wks fortnightly A/C, followed by 12 weeks weekly Taxol) then modified radical mastectomy (rt breast and 3 lymph nodes) which showed only a tiny amount (1.3mm) of residual disease with excellent margins. There had been…