Dysphagia

Pebbz1981Pebbz1981 Member Posts: 32
edited February 5 in Metastatic breast cancer
Hello all.

So over christmas and new years i was in hospital again. I have been having some swallowing issues for about 6 months now and its seem to have got worse as the weeks go bye, when i mentioned it to my oncologist she said it could be a mixture of chemo, body being so weak, radiation to breasts and just the cancer itself. So she didnt do anything about it. Just before christmas we called ambulance to the house cause i was javing trouble breathing, long story short, ended up in hospital for unrelated issue, but refused to leave till i got answers about the throat issue. Did tests turns out i have Dysphagia......... does anyone else have this? I have been on puree diet since christmas and it is HARD.  My husband and i are doing our best to make recipes up then hope once its pureed they taste good. I have ent specialist next week and i hipe hes able to give me some good news.
Any help or recipes maybe you ate when you had trouble swallowing would be greatly appreciated. I can give my email address if it makes it easier or msg me privately.
Thanks so much in advance.

Comments

  • arpiearpie Mid North Coast, NSWMember Posts: 2,646
    SO Sorry to hear of this development, @Pebbz1981 and  Good on you for refusing to leave until you got the throat diagnosis!!    

    I used to work at a major Sydney hospital, feeding people on full fluid diets  ....... I will send you a message with some eating tips.

    All the best with your ent appointment  xxx
  • Pebbz1981Pebbz1981 Member Posts: 32
    Hey all.  Just a quick update. I had the botox injection about 6 weeks ago. So much better. Not on solids but i am eating much more softer foods like pasta, toast, potatoes,pasta and so on so on. I have put on 2 kgs so far. Its a vey slow process.
    If anyone needs or is considering botox for throat muscle for dysphagia or similar i recommend. I will see ENT again in 4 mnths to see whats happening and if its worse, same or better. If it gets worse till then we do botox again if it stays same then we leave it till it starts to play up. The other problem i have now is my sinuses. Post nasal drip is an issue but i will write about that another time. Hope everyone is well.
  • arpiearpie Mid North Coast, NSWMember Posts: 2,646
    Well done, @Pebbz1981 .... make haste slowly.  It will take a while to regain your weight .... do some gentle exercise too to keep the muscles working as well.  

    Botox is used for a few conditions (other than cosmetic), which is terrific.  Glad it is working for you xx

    i have post nasal drip too. Grrrr
  • SoldierCrabSoldierCrab Bathurst NSW Member Posts: 3,175
    @Nadi
    Is this what you had ? 

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