Why not join the Living with metastatic private group? Access group via the link here.
how to accept the diagnosis?
beatit
Member Posts: 4 ✭
I was diagnosed with metastatic breast cancer in May. I had radiation treatment on my spine and wasstarted on Kisquali and Letrozole (was previously on Arimidex). My original diagnosis was in 2017, when I had a mastectomy, chemo and radiation and went on Arimidex.
The Kisquali is now not working and I am being assessed for a drug trial. Thought I was coping but have hit a real flat spot and realise I am not managing at all. How do you ladies manage?
The Kisquali is now not working and I am being assessed for a drug trial. Thought I was coping but have hit a real flat spot and realise I am not managing at all. How do you ladies manage?
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I don't have any wise words for you, just wanted to come on and send you a big hug. You've been dealt the shittest of hands. My sister had good days and bad days, and focussed a lot on making memories. Fingers crossed for the drug trial. K xox0
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thanks. It helps knowing i'm not the only one in this position0
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I can empathise with you @beatit. I've just been diagnosed with lung mets in the past week, and waiting to confirm whether it's in the bone as well. All of this less than 12 months after my initial diagnosis. At the moment, I think my family are providing the only incentive for me to continue the fight. Managing for me is moment by moment, and holding on to any small positives as they arise. I sincerely hope that you can find a 'lift', but in the meantime, give yourself permission to be 'flat'
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I am so sorry to hear of your diagnosis @beatit - I hope that you get onto the drug trial & that it works for you.
Not having mets myself - I reckon I'd just be doing what I love doing, to keep my mind off it. I hope you have a supportive family & friends xx
Big hugs coming your way xxx
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No suggestions but a virtual hug.0
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Hi @beatit, have you thought about joining the private group Living with Metastatic Breast Cancer on this network? https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer
I am sure the people in this group can provide some advice. I am a member and have been living with MBC since 2016 (it was my first diagnosis of BC).4 -
thanks everyone for your encouragement, love and hugs.
thanks @RachelleRachelle, I have requested to join the MBC group.2