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Verzenio now available on PBS for Metastatic Breast cancer

arpiearpie Mid North Coast, NSWMember Posts: 6,359


  • PalmbeachprincessPalmbeachprincess Member Posts: 39
    Wow fantastic news.
    i currently pay $7000 per month for this drug. 
  • arpiearpie Mid North Coast, NSWMember Posts: 6,359
    Fantastic, @Palmbeachprincess - make sure you mention it to your Onc ...... and double check with your chemist next time you get your meds ....

    With my husband 10 years ago, his own chemo treatment went from $25000 a year to $10 a set, due to it coming onto 
    PBS.   He still had to 'sort it' thru the chemist before it was administered to him.

    All the best with your treatment xxx
  • wendy_h67wendy_h67 Member, Dragonfly Posts: 466
    Hi arpie, I saw that in the paper today and I was wondering if it will only be available for those as a first line of treatment for metastatic breast cancer.  I am on Fulvestrant Injections monthly and this treatment may also be beneficial.  I will have to ask my oncologist.,especially if it is on the pbs.
  • arpiearpie Mid North Coast, NSWMember Posts: 6,359
    Fingers crossed @wendy_h67  - I didn't see where there were 'conditions attached' - so hope you are covered  xx
  • brightspacebrightspace Member Posts: 416
    I just checked
    Same conditions as other new drugs

    under restriction it states
    only for those who have not been on a AI
    So only for those who are designated first time diagnosis as Metastatic

    Very disappointing!!!!
  • SouthgirlSouthgirl Member Posts: 80
    Yes @brightspace I noticed those restrictions too. Very disappointing, yet again.

  • wendy_h67wendy_h67 Member, Dragonfly Posts: 466
    @brightspace, It makes you feel alienated, just because we have been on other treatments and still trying to fight this horrible disease, they dont want to know us. I have been fighting metastatic breast cancer for 8 years and guess I'm passed my use by date. I was asked by a specialist,  "" how much longer do you expect to live. " He wasn't a very nice person and it made me more determined than ever to keep on fighting. Lately I think the cancer is winning and I'm not too worried.  I just live one day at a time.
  • brightspacebrightspace Member Posts: 416
    Hi wendy you are a fighter I have followed your journey since being diagnosed in 2016

    I have been on the US site yes they can access these new drugs some women get a good run seems that its one to two years if they are lucky 
    Then they try another new
    Here in Australia it seems that new diagnosed mets patients will only get one chance ..then when that fails you will probably have to pay the big bucks

    Thanks for your comments
    Bright in hope
  • Lisa1407Lisa1407 Elwood, VictoriaMember Posts: 258
    Sorry to hear that the same restrictions have been applied to Amebaciclib as to Ribociclib. They will eventually be put on the PBS for women like us. Not fair I know, but hang in there! My oncologist is an active clinical researcher, so I can usually access the newer drugs through a clinical trial, so have been lucky not to have to pay the big bucks as yet. If for some reason I can't get access through a trial, I can always fall back on Xeloda or Afinitor which worked, but which I stopped due to side effects. Not as easy for others I know. 

    Eight years Wendy - great effort! I hope there is many more years for you!
  • June1952June1952 Regional VictoriaMember Posts: 1,523
    It saddens me that the drugs are not available to all needing them, whether or not they have had other treatments.  Surely life is important at whatever stage ?
    Whoever makes these decisions has not been part of our world.
    Maybe part of our criteria for an onco is that they are also involved in trials so we can be part of them.
    All the best.
  • arpiearpie Mid North Coast, NSWMember Posts: 6,359
    We really need a 'disappointment' emoji re things like this  :(   I was not aware that there were restrictions when I put it up.

    Yes, @Summerhill38 - everyone's life should be considered equally important ....

    @Lisa1407 - I hope they DO make it more available to those who need it, because it just isn't fair if it isn't.  :( 
  • PalmbeachprincessPalmbeachprincess Member Posts: 39
    saw my oncologist today.
    im on abemaciclib as my second line of treatment. The cost has been reduced from $7000 to $4000. Which is definitely an improvement but not the $40 I was hoping for..... oh well, my house is now sold so can afford to pay and keep myself alive l! Xxx
  • youngdogmumyoungdogmum Member Posts: 250
    Can someone clarify for me;
    are the CDK4/6 inhibitors available on PBS for those who develop stage 4 disease who were treated with an AI in early stage?
    Im confused regarding the wording. 
  • Boobless2Boobless2 Member Posts: 25
    I think it depends on how your oncologist interprets it. I saw my usual one who suggested I would have to pay. Then I went for a second opinion, and it was thought you could interpret it as no AI after the met diagnosis. So worth a try. We all should have an opportunity to try it. 
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