Trying to Stay Positive my journey
"You look so well, lost weight" comments from people l may have not seen for a little while. Thank you l say with a beaming smile, they don't know, should I tell them or not, I don't.
l have stage 4 metastatic breast cancer incurable and aggressive l've been told, the little devils have been having a great road trip partying around my body setting up camp in several spots in my spine, hips skull, lungs, ribs, nodes.
This diagnosis came about totally unexpected after an unrelated ct scan for my nigglying cough. Thank you to my great GP for insisting as I wasn't going to have it only had a slight annoying cough nothing to be concerned about. Radiologist saw suspicious lung rang spots rang gp, gp rang me and within a week after bone scans biopsies etc l was sitting in the oncologist office "best we can do is try to control this" silly me asked the question as I was still thinking this is nothing to be concerned about, how long if I don't have treatment? "12months" so here I am on the treatment.
My life turned upside down and inside out in May 2018. I am now on letrozole and Kisquali (Ribociclib) and l am nervously awaiting my scans end of next week to see if this treatment is working. I am usually a happy positive person but seem to have fallen into a bit of a hole at the moment. I find it very hard at times with people telling me you look well, you're an inspiration, bla bla etc etc, when all l want to do is sit in the corner and cry. It's especially frustrating as l've already had bc in 2004, "it's only dcis" treat with radiation but the returned so left side mastectomy/reconstruction 2006, then recurrence right side 2012 "it's only dcis" again radiation and lumpectomy and l can get on with my life and nothing had shown up in my regular breast mammograms
BUT some little party going cancer cells escaped and have been waiting and now have had a great road trip around my body.
I find it really hard to talk to family and friends about how I am really feeling as I worry about how they are coping, so sharing my story here has already made be feel positive again, reading threads of what all the other wonderful ladies are going through is truly inspiring.
I'm trying hard to stay positive for my next appointment with my wonderful Oncologist on 1 Nov and that she will tell me there is no progression.
enough of my rambling thankyou for reading my story