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Dealing with metastatic breast cancer diagnosis

Mez_BCNAMez_BCNA VictoriaAdministrator, Staff, Member, Moderator Posts: 139
Original post created by member @Opoho moved to own thread in ‘Metastatic breast cancer’ category:


Comments

  • Mez_BCNAMez_BCNA VictoriaAdministrator, Staff, Member, Moderator Posts: 139

    Hi @Opoho

    Please reach out to our Member Support Team 1800 500 258 if you would like to resources/support.

    You may have already viewed our website which provides information about metastatic breast cancer.

    https://www.bcna.org.au/metastatic-breast-cancer/what-is-metastatic-breast-cancer/ 

    Our latest issue of The Beacon magazine has a section relating to metastatic breast cancer which may be of interest to you.

    http://beacon.bcna.org.au/issue/issue-88/        

  • arpiearpie Mid North Coast, NSWMember Posts: 5,592
    edited November 24
    Just moving my reply across too ..... I am So sorry to hear that @Opoho - I have a few personal local friends going down the same path. xx

    The Herceptin can be a real game changer & I hope it is for you xx. Hopefully you won't have any issues with the Radium treatments ... make sure you keep the area well moisturised after each session - and if it looks red/inflamed or the skin 'breaking down' - let your Breast Care Nurse (or the Rads Nurses) know immediately you notice it. xx

    I hope you have strong family/friend support around you, to help you get thru these initial stages xx. If there is anything that we can do to help, just ask xxx

    Take care & all the best for the Rads xx

    Feel free to join the private Metastatic Group ... where you can discuss all issues in private, with those going thru it xx @Mez_BCNA ... could you arrange @Opoho to join the group please?
  • Cath62Cath62 Brisbane Member Posts: 520
    Hello @Opoho, just wanted to send my best wishes to you. 💐💐💐
  • OpohoOpoho Bli Bli, Sunshine CoastMember Posts: 8
    Thank you 🙏 I start treatment on 8 December 
  • Lisa1407Lisa1407 Elwood, VictoriaMember Posts: 215
    Good luck with your treatment @Opoho. Rotten time to be dealing with all this with Christmas just about on us. But, I guess there is never a good time! xx
  • OpohoOpoho Bli Bli, Sunshine CoastMember Posts: 8
    Thanks Lisa. I guess the sooner, the better! Our Christmas is a quiet event anyway with one daughter and two grownup granddaughters. Still waiting for a visit from NZ son and family. Wish Jacinda and Anastasia would get their acts together!!
     Thanks also to Arpie. We live in a lovely over 50s village and our neighbours and friends are wonderful support. I worry about my 82 year old husband who is doing everything at present. Hoping to get our home assistance reviewed shortly!
    best wishes to everyone 
  • OpohoOpoho Bli Bli, Sunshine CoastMember Posts: 8

    Forgot to say I met my new oncologist yesterday, what a lovely young man! Makes it much easier to be able to communicate, and my breast nurse is also very caring and attentive, so I’m lucky ☺️ 
  • jennyssjennyss Western NSWMember Posts: 1,294
    Dear @Opoho,
    I'm glad you've got some good support. They will all look after you.

    from jennyss in Western NSW
  • arpiearpie Mid North Coast, NSWMember Posts: 5,592
    Terrific that you are happy with your 'team', @Opoho - pop your town/city in your 'profile' - we may have members nearby who can advise you on services nearby that are available to you .... there are many good people out there that are only too happy help out (community groups) ..... 

    Great that you have a supportive village/neighbours/friends .... yes, we have kiwi family who want to come over & visit us too .... it looks like it will be early next year now - Feb or March, now that NZ has dropped the Hotel Isolation requirement up their return to NZ. 

    I hope you can get your Home Assistance sorted asap as it can take a while to come thru.  We have a Home Care Package now for my hubby who is 85 & very frail - also with mets. :( 

    Take care, all the best xx
  • OpohoOpoho Bli Bli, Sunshine CoastMember Posts: 8
    Stuck in bed with severe back pain, nothing is shifting it today. Have had 8 of 10 radium treatments for compression fracture, not working so far! Booked for portacath insertion next Wednesday, start treatment the following week. I live at Bli Bli on the Sunshine Coast 😊
  • OpohoOpoho Bli Bli, Sunshine CoastMember Posts: 8
    Oh my town/city has popped up! I’m not technically challenged after all 😀
  • arpiearpie Mid North Coast, NSWMember Posts: 5,592
    Are you on pain killers for the pain?  I hope so @Opoho. You should be able to contact your Breast Care nurse .... if the pain is extreme - call 000 - you don't have to put up with it xxx

    Bli Bli - BIG memories of my childhood!  We lived at Nambour & used to go thru Bli Bli on the way to Maroochydore!

    Al the best with your portacath - my hubby gets his in Mid Dec (has a picc line put in on Mon in the mean time.)

    take care xx
  • Cath62Cath62 Brisbane Member Posts: 520
    How are you @Opoho? Do you have any relief for that pain in your back? Can you call you dr?

    I love your part of the world. So beautiful there. I am i  Brisbane but visit there frequently. 

    Take care. Big hug xxx
  • OpohoOpoho Bli Bli, Sunshine CoastMember Posts: 8
    Thanks girls 🤗 I have sr targin for night and endone daytime.  000 would only take me to queue up in AnE and I had a scan there recently. My husband is being a great nurse today and my comfy bed looks out onto the back garden, pretty 😍 Just needed some moral support so much appreciated 🙏🤗
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