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CT scan results
Pearl
Member Posts: 16 ✭
Hi. I'm into my 6th year after having surgery, chemo and radiation treatment for estrogen positive breast cancer. My recent scan says that I have sclerotic changes in my ribs consistent with Paget's disease. I don't get to see my oncologist for about 6 weeks and I was wondering if anyone really understands what that means and can explain it to me. I can google it but I get lots of weird stuff to make me more confused!! I fear my cancer has come back , this time in my bones.
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Comments
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Hi @Pearl
I can’t advise about Paget’s disease but is there no way you can talk to your oncologist sooner? Even a teleconference would assist you to know more about your specific issues. Six weeks is a long time to be worrying, it would be good if you can get some earlier advice. Best wishes.2 -
Please return to your gp for follow up treatment advice
Perhaps even another specialist could start treatment sooner
Blood test also importantGood luck0 -
I checked the Mayo clinic for info and bone strengthens are usually recommended
check with GP0 -
Thankyou..I hope to see the GP in 2 weeks. The oncologist isn't available and I'm hoping if there was any urgency that he would've contacted me. I've had blood tests that seem normal and what I think will happen is that it will be a " wait and see" till next CT to see if anything changes.1
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All the best with your results, @Pearl. The waiting really IS the pits! xx. The old adage No News is Good News .... doesn't always carry much weight with us tho!
Your Onc will review the CT Scan Report & it should also be made available to your GP (if he was on the referral - I make sure my GO is on EVERYTHING.). Normally the Onc would see you in a timely manner & then do a report on both the CT and you ... to the GP.
Shame you can't get in earlier to both .... The GP should also be able to review the report & if there was anything of concern, they should contact you re an earlier appt. If there was nothing of concern, the GP should review it & they should then make it available for you to have a copy. (Mine does.) Give it a day or so - ring the GPs office & ask if he's reviewed the report. If he HAS reviewed it & there is nothing of concern - ask for a copy. Then you could ring the helpline (in the blue banner at the top of the page) to discuss it.
Take care xx2 -
Hi. Yes I am now seeing the GP next week. Thanks for your reply. I'll let you know what happens.3