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First contact
Hi Ladies, Yesterday I went to see my lympheodema therapist (a must for me after flying), and told her about our activities this week. She knew about BCNA, but not much about what we do. So, I did my first CL information session while lying on the table. There are now information packs about "My Journey" and "Helping a…
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Do they use PET to detect cancer?
My German friend who is nurse told me PET was the most effective way to detect cancer, better than MRI. She said it was expensive and not covered by health insurance. I wonder if they do PET in Australia. Doctors says my breasts are dense and difficult to see. They even seem to think bilateral mastectomy is the way to go…
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Who's your unsung hero?
Hi everyone The Spring issue of the The Beacon and The Inside Story is now available and focuses on 'unsung heroes' – the people who have helped to make a difference to our members lives. Who's your unsung hero? What difference have they made since you were diagnosed? Can’t wait to hear about them :-) Cheers Jeanie
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A laugh for all you ladIes
Hi girls hope you are all well, I know we all need humor in this time of our lives and wanted to tell you about my incident (actually the devil in me) last week. Spent last week with that damn flu at home resting in bed and THEN our favourite electricity door knocker came giving away the power board thingy, the young…
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hello and question
Dear anyone, My name is Nicky, 49 yrs, double mastectomy 18months ago, have been into Medicare twice to ask about breast reconstruction rebates and burst into tears the minute I open my mouth and have to leave - they will start selling tickets soon. Is this normal? Also, is there anywhere in this network where I can ask…
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Meeting with plastic surgeon
I met a plastic surgeon last Thursday and first of all I learned that my medibank private does not cover reconstruction. He mainly talked about silicon implant. He said it was unfortune I had already 2 lumpectomy and big scars. I feel I should get mastectomy and expander inserted but since my private insurance does not…
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insert pad for bra
after the 2nd lumpectomy my left breast is much smaller. I have big scar but I'm not too worry about it.It's still painful but it gets better each day. I haven't really looked at my left breast carefully yet. I'm still scared to see the reality. I am wearing the bra provided by breast cancer organization (I am very…
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your profiles
Hi again Ladies, just want to let some of you know, when you join our network here, the default option on your profile is private, I have noticed that some people have left it this way, which is okay as well. But if you want to allow others to see your blog, your stories you have to go into edit your profile and choose the…
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BUGGERED
HALLO GIRLS , its Adean IM home after my op so tired, had afew hiccups and had to spend xtra days too much fluid in the drainage bag, urine infection and the fact that endone made me HYPERACTIVE was funny bouncing of the walls and no sleep for 48 hours we realized the women is NOT crazy. Slept like a lamb in bed last night…
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mindy
Hi ladies. hope you're all travelling well. My change of name is now through and it should be on my licence too soon. Woo Hoo onward and upward Just have to get divorced 8 I forgot to get the onfo on that farm retreat place. I think it was called Can do ..... Can anyone give me the details? What time is the next meeting? x…
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ADMIN: Site update
Hi all, Just wanted to share some very exciting news on a new update to the online network that we made earlier today (you may have noticed that the website was temporarily unavailable). Many of you told us that the old way of posting images was confusing and you’d like something easier. So, here it is - a new and easier…
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External breast prosthesis rebate helped me
At 48, I had just completed a post graduate university degree I’d long dreamed of doing. After teaching adults for many years I was very keen to get my primary school teaching qualification. I’d been teaching primary for six months when I found a small dimple on my right breast, similar to a cellulite dimple in appearance.…
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Dmed
I had surgery in April for an invasive duct carcinoma 13.5 x 7.5mm grade 2. Had sentinel nodes x2 clear. It was TNBC . I had 4 cycles of TC which I finished 6 weeks ago. I found the chemo pretty awful and had Neulasta injections to bring up my white cells . I waiting now to start radiation and was wondering when you start…
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IMPORTANT: Planned site outage
Hi all, Just to let you know that we have a planned upgrade to the website this afternoon, which will affect availability of the website and the online network. We're trying to keep the down-time as short as possible, and at the moment moment, it looks like the website and online network will be unavailable from 2.00pm…
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Cost of Neulasta Injection
Hi Everybody, I was wondering if anybody could tell me what they paid for the take home Neulasta Injection that we get from the Hospital. Many thanks, Ann