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Out of Pocket Expenses
Hello everyone, below is the email that I have sent to the Hon Tanya Plibersek, Minister for Health as my request for an appointment. Hello Tanya I would like to come and meet with you to discuss the 'out of pocket expenses' that people like myself who have been diagnosed with a life threatening illness who as a result of…
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Happy New Year
Hi girls I hope you all have a wonderful Christmas and New Year! I had a quiet one but a lovely one with family - nice NOT to spend it ill or in hospital. I hope you all had a great time. Now that all my treatment is finished and I've settled into my job I find myself more and more involved in my parents care and my…
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Travel Insurance - Covermore no longer offering cover
Hi, Myself and my family are reasonably regular o/s travelers and Covermore have offered cover including BC cover to me on 4 occassions now (in the last 18 months). Since July 2012 they have changed their guidelines and they no longer offer cover for early BC survivors stage 2b and higher. I had 1 x micro met in 1 node and…
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Tasmanian State Breast Cancer Conference March 2013
"The Ongoing Journey" will be held 16 and 17 March 2013 at the Hotel Grand Chancellor. Watch the Beacon- it will be listed in the forthcoming events and a flyer will be included in the December Beacon as well giving full details. A small but passionate team have put together a comprehensive program as well as a Silent Walk…
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Renees Story
Hi everyone my name is Renee, 3 years ago l found out l had Triple Negative Breast Cancer, Stage 4, 5 cm lump. l had 30 nodes removed, All were clear. l had my right breast fully removed. The doctors wanted me to do chemo, But l decided not too. its been 3 years now. And everything is looking good.
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Hair today, gone tomorrow
Well, I took the final step today (despite the title) and had all my hair cut all off with clippers - less than a number 1. It was all starting to fall out exactly on schedule at day 14 and I didn't want to be patchy. My beautiful hair dresser removed it all for me and then trimmed my wig (see my provile pic). A lovely…
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Biopsy results are back
On the 02.01.2013 my GP finally rang me to tell me, that there was no cancer found in my sentinel node biopsy. I could have laughed, danced and cried! I actually cried. I realised then what a weight was taken from my shoulders. Although I was quite positive there was always a doubt lingering in the back of my mind. I will…
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happy new year!
Hi, Ive recently moved to Warburton and wonder if anyone else is near the Upper Yarra? Happy new year and best wishes for health and happiness this year, Wendy
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Comfirmation
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My first blog ever
Hello all, Last Thursday I had a lumpectomy RB, low risk breast cancer. Hoping to receive results of the sentinel node biopsy tomorrow. I am pretty optimistic, but of course, you'll never know. It is all a pretty turbulent time. So much to digest. But what a wonderful help the BCNA is. When I was diagnosed a few weeks ago…
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Remission versus Survivorship
Just wanted to get a feel from you all about the above words. I was stopped in the street the other day by a lady I hadn't seen for a few years. She remarked that I had achieved a lot during this time of my remission. REMISSION?? I thought " there is that 20th century negative word"- we don't hear it., we only seem to hear…
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Webinar: when cancer changes your financial plans
Hi everyone, just wanted to let you know that the online webinar for women with advanced cancers was a great success, and the video is now available. Here's the details for anyone who missed it: Online webinar: When cancer changes your financial plans The two videos, below are two parts of an online webinar that was…
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Ms Leonie Havnen
Recently attended BCNA forum in Sydney which was an extraordinary learning curve ball for me. Guest speakers were excellent, however some presentations were far too clinical that many women in the audience just switched off. Presenters need to remind themselves to adjust their presentation for the audience! One discussion…
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Preparation and Fear
So the waiting game and the reading of information of what those before you have experienced. I have my hair today, and I am still eating and drinking, and havent started the Chemo yet. Today I see the Oncologist for the 2nd time, and then next week one more appointment with my Endocrine Surgeon. How do you manage to not…
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Lobbying Politicians - Safety Net
I have sent emails to Hon Tanya Plibersek, Hon John Murphey, Hon Jillian Skinner (NSW), Hon Tony Abbott, Hon Peter Dutton and Senator Lee Rhiannon - Greens. Senator Lee Rhiannon has responded and has agreed to meet with me to discuss the 'out of pocket expenses' that Cancer patients young and old have to pay for their life…