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Still Recovering
Well, its been a month since my radiation treatment finished, Ive had the port removed ( no stitches) and Im so so. I have days, god and bad. For the 2 weeks after treatment, I burned up from the inside out pretty bad! I became so red, and dark, my skin blistered and i was lathering on the cream they gave me, and the…
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BCNA Conference
Hi ladies Thought I'd let you all know that unfortunately I am unable to come up for the Conference. I'm very disappointed as I really wanted to go, particularly since there are going to be some awesome speakers, but I just can't afford it (we're trying to get on our feet financially after this cancer thing - had huge…
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New Diagnosis and waiting
Hi all, this is my first post. diagnosed 6th Sept awaiting Second opinion ... only public patient so feel a bit powerless within the system. Would like help to compile list of questions for this Wednesday coming for my appt. Feel overwhelmed by it all. Live regional NSW and I am carer to 2 boys with Autism/epilpsy etc.
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Breast cancer cluster
I have several relatives with breast cancer. Sister 1 (40yo), sister 2 (53yo), sister 3 (56yo), Paternal cousin (60yo), partneral aunts x 2 - all diagnosed with BC and of which three have died. The family has been tested for BRAC1 and BRAC2, with a negative result. So, plenty of BC in the family and no idea why. Now at the…
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IMPORTANT: Planned site outage
Hi all, Just to let you know that there is an upgrade planned for the site early next week, which will affect availability of the website and the online network. We're trying to keep the down-time as short as possible, but at the moment, it looks like the website and online network will be unavailable on WEDNESDAY MORNING…
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first day of the big zap
Hi all you ladies, adean here had my first official day of radiation today YEH finally on the road, the wait has been a while and I felt a little in limbo. I must confess I had a sore gut this morning and my boss kept reminding me all morning to not get to involved in my work today as she new I would forget the…
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Who's been cancer free for years?
Hi ladies, I am looking for some positive inspiration. I'd like to hear from anyone who's been in remission after a good few years who once had an aggressive tumour. I gotta know this happens! Sick of hearing negative stuff. Who's got some positive stories for us all? ? ? xxx
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A holiday to WA
Hello everyone. I am one day away from my final chemo. Looking forward to this part of my treatment finishing. Particularly looking forward to the PICC being removed. Anyway, I am planning a holiday to the Perth region in the weeks prior to Christmas. I will be 5 weeks post radiation. Does anyone have tips on travelling,…
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what is wrong with me....
Hi all It has been a while since I have posted anything as I have been in a bit of a funk.... Finished rads early this month and my skin has healed well although on some parts of the breast it it feels a bit reptilian though I'm sure that will improve in time. My fatigue levels have improved and I decided to go back to…
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First contact
Hi Ladies, Yesterday I went to see my lympheodema therapist (a must for me after flying), and told her about our activities this week. She knew about BCNA, but not much about what we do. So, I did my first CL information session while lying on the table. There are now information packs about "My Journey" and "Helping a…
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Do they use PET to detect cancer?
My German friend who is nurse told me PET was the most effective way to detect cancer, better than MRI. She said it was expensive and not covered by health insurance. I wonder if they do PET in Australia. Doctors says my breasts are dense and difficult to see. They even seem to think bilateral mastectomy is the way to go…
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Who's your unsung hero?
Hi everyone The Spring issue of the The Beacon and The Inside Story is now available and focuses on 'unsung heroes' – the people who have helped to make a difference to our members lives. Who's your unsung hero? What difference have they made since you were diagnosed? Can’t wait to hear about them :-) Cheers Jeanie
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A laugh for all you ladIes
Hi girls hope you are all well, I know we all need humor in this time of our lives and wanted to tell you about my incident (actually the devil in me) last week. Spent last week with that damn flu at home resting in bed and THEN our favourite electricity door knocker came giving away the power board thingy, the young…
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hello and question
Dear anyone, My name is Nicky, 49 yrs, double mastectomy 18months ago, have been into Medicare twice to ask about breast reconstruction rebates and burst into tears the minute I open my mouth and have to leave - they will start selling tickets soon. Is this normal? Also, is there anywhere in this network where I can ask…
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Meeting with plastic surgeon
I met a plastic surgeon last Thursday and first of all I learned that my medibank private does not cover reconstruction. He mainly talked about silicon implant. He said it was unfortune I had already 2 lumpectomy and big scars. I feel I should get mastectomy and expander inserted but since my private insurance does not…