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Welcome New Members - 14th February 2025
Hello and welcome to our newest Online Network members: @LouiseR @jessieG @Priti98 @kerynf @Bindabee1980 @whattodo @kittymc @Roller2025 @Mumslife @3356433 @matchewdon @sambeywick @chanellenumba5 @Linda88 @CathrynH @BeccyBoo @Uselessname @Marjerys @maccas @newmama88 @RietteV @TanLovering @wonkypenny @amburgerwithcheese…
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When is your birthday?
Hello everyone, Following on from the amazing birthday list that was started by @socoda, thank you very much! Im calling out to all our members to let us know your birthday. We love an online celebration and on the day you will receive a virtual birthday cake that we can all share! No need to include the year you were born…
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Stop telling women they are too young to have breast cancer
Early-onset breast cancer now accounts for over one-fifth of all breast cancer cases in Victoria, with 1,067 diagnoses out of 5,197 breast cancer cases. The increase is indicative of a national trend. Breast Cancer Network Australia (BCNA) is calling for greater awareness, more research, and tailored prevention efforts to…
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Australian women denied knowledge of their increased breast cancer risk
Approximately 10% of women have high breast density. At this point in time, thousands of Australian women are being denied important information about their breast health which could empower them to better understand and manage their risk of breast cancer. BCNA’s Director of Policy, Advocacy and Support Services, Vicki…
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BCNA calling out the government - failing to protect Australians from genetic discrimination
Breast Cancer Network Australia (BCNA) is calling out the government for failing to protect Australians from genetic discrimination while showcasing its new genomics framework. Cancer Australia launched the National Framework for Genomics in Cancer Control this morning, which aims to integrate genomics into routine cancer…
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Welcome New Members - 14th January 2025
Hello and welcome to our newest Online Network members: @kimmyk54 @Kinjeng @BENWOODS @HammahM @SanthiG @anhart @jmr @MrsPP @Anne123 @Carolyn52 @ajtunn @ZeraphicZebra @caitblack @BrigitteB @Jayde @SairC @Angelamonti @Hendo54 @paquita @Kemeti @lilys @BBs @Rae36 @Kim_W @AEB @Easilydistracted @Jo_Jo @Trixie @Amanda1 @jenweb…
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Watch this space!
We’ve been listening to your feedback and we’re excited to
announce that the Online Network will be moving to a new platform in early
2025! This has been designed to better serve your needs. This will mean you
will only need one login, one password for the Online Network and all our
resources. We are committed to improving…
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Season 2: Podcast Series "What You Don’t Know Until You Do, with Dr Charlotte Tottman"
Charlotte is back with an 'unlimited' season! Season 2 of our popular Upfront About Breast Cancer podcast What You Don’t Know
Until You Do with Clinical Psychologist Dr Charlotte Tottman is available now (You have direct access via the bottom of the Online Network homepage) With over 58,000 listens, Season 1 proved to be a…
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My right breast doesn't feel the same anymore ... Is this the new norm post lumpectomy, chemo & rad?
I had my lumpectomy in June 2017 and lymph nodes in right arm removed in July. Chemo stopped at Xmas and rad in March. Now I am just on Herceptin until Oct. I have been noticing changes over the past few months that are more apparent now. I see my breast physio regularly for massage and exercises for the scar tissue in my…
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I just found out today
I had my first appointment with my oncologist this afternoon. I had had a PET scan and MRI earlier in the week. I received the results today that the cancer has metastasised. They found a spot on my sternum, back and pelvis. I need to go have a biopsy on my sternum. I was diagnosed with breast cancer on 8 February. 4 days…
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Palbociclib Side effects back
That didn’t take long to have all the side effects back. i sure enjoyed the break maybe too much did heaps and had lots happening Just finished my 21 days and it's been like i didn’t get a break at all, mind you day 5 in and caught the flu and haven’t been able to shake it. The worst congestion and cough ever which doesn’t…
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Struggling through Chemo
Hi all, My nurse has just introduced me to this group. I’m hoping to connect and share my story and hopefully somehow feel better. After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it! Ive got another 2 months of chemo…
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Feeling scared and just a bit angry
Hi, I'm Karen, 61yo, from Victoria. I was diagnosed in September, my birthday actually, I was numb. I had been dealing with a very coercive relationship, narcissism, gaslighting the lot, to be told this news was just too much, I had all sorts going through my head, How do I tell my children? How do I do this? Why me?…
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LOW DOSE TAMOXIFEN
Hi All, I have had treatment for DCIS, (surgery + Radiotherapy) and my specialist has said if I would like to a can take tamoxifen – low dose 5mg, and its an optional extra. I have health anxiety and I know that taking medication will increase my stress and anxiety, so trying to weigh up what to do. Keen to hear of anyone…
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Nerve pain with expander
Hi there, I had a mastectomy 3 weeks ago now and had my first saline fill last week, since then I have had terrible pain where my nipple should be like someone is squeezing it tightly. Has anyone else had this? if so what helped?
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DCI with focal lobular features.
Would DCI with focal lobular features mean I have ILC as well?
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Creative Corner!
CREATIVE CORNER: Because art is good for youInspire and be inspired Creative Corner group is gone but that doesn't mean we should mute that creativity! Time to get inspired by each other. This thread is just for fun and expression, be it craft or drawing or photography, from a snap of your colouring-in to your take on a…
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UTIs ... Do you get them often? What do you use to 'fix it'?
I've not had a UTI for a while now, but I know that when I DO - it is always unpleasant and painful. In the old days, I used to use Ural sachets to help reduce the pain & symptoms .... ooooh they do cranberry Ural sachets now! It only used to be a weird lemony flavour! Are there any other 'newer' preparations that you've…
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Allergic reaction to chemo
Hi All, I'm interested to hear if anyone has had an allergic reaction to their an intravenous chemo infusion and how this affected their treatment plan? What symptoms did you experience? and did you continue to try another chemo treatment? Thanks in advance 🙂
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Federal petition for paramedical tattooist registration and increased Medicare rebate < 19th Feb2025
Please sign our petition before 19th February 2025.Link to petition https://tinyurl.com/zsy38u25 • The aim of this petition is to gather support for previvors (people who have had or are considering having preventative mastectomies) and breast cancer survivors who have undergone breast reconstruction after mastectomy and…
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Diagnosed at 40 with ILC on right breast er+pr+ Her2- in December.
I was diagnosed at 40 with ILC on right breast er+pr+ Her2- in early December and going through Maroondah Hospital. I have a 7 year old child and was devestated, routine mammogram only showed 2 lesions, Mri picked up 5 with largest being 3cm, lymph node was clear in pet scan and mri and ultrasound. Waiting for sentinal…
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Essaic Tea
Hi lovely people, I was diagnosed with early stage, Grade 3, Triple Negative Breast Cancer at the end of August 2024. I had a lumpectomy, four rounds of chemo and will have 15 x radiation treatments starting in two weeks. I have had the best of care and support from the health professionals at Tweed Valley Hospital and as…
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Private or Public?
Hi everyone, I'm a newly diagnosed in my late 30's. my cancer is invasive grade 1 in one breast. I have private health insurance but the out of pocket costs of the plastic surgeon and aneastetic would be around 14k which is a big figure for me. I'm told if I go private, I can have the surgery as soon as 2 weeks but the…