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Prioritising access to risk reducing surgery
We know that the knowledge of your risk of breast cancer can be empowering but it becomes a feeling of being powerless when forced to spend years on public wait lists for risk reducing surgery. It’s a constant state of fear compounded by lack of transparency regarding timelines and the reality is some will receive a breast…
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When is your birthday?
Hello everyone, Following on from the amazing birthday list that was started by @socoda, thank you very much! Im calling out to all our members to let us know your birthday. We love an online celebration and on the day you will receive a virtual birthday cake that we can all share! No need to include the year you were born…
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Welcome New Members - 8th November 2024
Thankyou to everyone who has joined the Online Network recently: @ChefArn @Gemma86M @Tropickle @DavKel8285 @KatieBee @Petiti @NatAnd @Rhee @cancersucks123 @youngt @Tokilovesme @sawsan @brymac @Rhubarb21 @michellemad @Millie_Vanilli @jessr84 @Neetha @joyalick6 @AmandaB @BarbaraP @MissL @GrannyBerd @stine @pwood @anne983…
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Together for breast cancer - BCNA
With October being breast cancer awareness month, we wanted to share updates with you throughout! So simply scroll down this post to see updates within the comments! Breast Cancer Awareness Month starts today, and it’s the
perfect time to get together with your community to support Australians
affected by breast cancer. We…
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Prioritisation of prophylactic (preventive) mastectomy for people at high risk of breast cancer
BCNA Callout for your Help Under current national and state/territory guidelines for elective surgeries delivered through the public health system, a prophylactic mastectomy is treated as a Category 3 surgery holding a 365-day waiting period. BCNA is advocating for change because people at high risk of breast cancer…
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Incurable breast cancer numbers almost triple previous estimates. World first data
After 25 years of advocacy by BCNA, people with metastatic breast cancer (MBC) have finally been counted — at least in New South Wales. In a data breakthrough that far surpasses previous estimates, the Cancer Institute NSW has identified there are 7900 (7850 women and 50 men) living with MBC in NSW alone. This world-first…
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What can you call BCNA's Helpline for?
You can request a call back at Helpline
self-referral or email helpline@bcna.org.au
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Season 2: Podcast Series "What You Don’t Know Until You Do, with Dr Charlotte Tottman"
Charlotte is back with an 'unlimited' season! Season 2 of our popular Upfront About Breast Cancer podcast What You Don’t Know
Until You Do with Clinical Psychologist Dr Charlotte Tottman is available now (You have direct access via the bottom of the Online Network homepage) With over 58,000 listens, Season 1 proved to be a…
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Post surgery & deodorant
Hi everyone, I’m 6 days post mastectomy and I’m wondering how soon after surgery is it ok to use deodorant on the operated side?
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DCIS - normal feelings?
Hi everyone, I was diagnosed in April this year with non invasive DCIS. I had surgery to remove growth, the radiation which finished in August. I worked mostly through the surgery and radiation treatment. But now I am feeling like I am having a breakdown. I am so angry and emotional and this is not me. I am post menopause…
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Dressing change post mastectomy
Hi everyone, just wondering when you had your wound dressing change after your mastectomy? My understanding is it should be 1-2 weeks post surgery, but I still don’t have an appointment for it despite contacting BC nurse & surgical team today. I was told they’re going to follow it up, which hopefully won’t be too far away…
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Surreal
Conversation with my GP and Diagnosed with breast cancer yesterday at 46 years old. When they called and suggested I have a support person attend it was a bit of a give away. However i was still hopeful it was all benign. This is the very beginning of my journey in which many incredible women have been. I am seeing a…
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Today was D Day
Hey all, So today I have gotten from my GP a preliminary result of stage 2 IDC involving the lymph nodes. HER negative and hormone receptor positive. Still need to do more tests to see if it’s spread. I felt something was wrong about a month ago and had developed a lump under my arm. I had a breast exam by the GP who…
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Lost
So far pathology etc result of grade 3 invasive carcinoma NST .ER- PR- HER2 pending. Got results via zoom at my request because I was on the road.Off to GP today for referrals then into BSQ tomorrow for info session. Trying to navigate my way through the lingo 😩. Not sure whats ahead…..feeling lost.
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Surgical options when you need radiation post surgery ???
Hi All I am seeking advice/information about what options you were given for surgery when you needed to have radiation post surgery. A bit about me, I am 52 single mum to adult sons (one still at home). I was diagnosed with IDC Grade 3 Triple Negative BC in early May. I have been undergoing neoadjuvant chemo and have just…
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Done!
Yay! It's been 9+ years since diagnosis, surgery, treatments and my Oncologist has set me free! No more Aromatose Inhibitors, Tamoxifen. I have been on Tamoxifen, Letrozole, Aromasin and back to Tamoxifen. I endured the time with no breaks. Occasional side effects but the last couple of years side effects dominated. Legs…
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Struggling through Chemo
Hi all, My nurse has just introduced me to this group. I’m hoping to connect and share my story and hopefully somehow feel better. After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it! Ive got another 2 months of chemo…
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Information Overload!
Hello lovelies, I was diagnosed just over a week ago with invasive breast cancer in my left breast, after finding a lump. I went for a mammogram 2.5 weeks ago where they took core biopsies. Since then it has been an absolute whirlwind of appointments, questions, information dumps and just trying to find a minute to breathe…
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Is My Journey still working or has it been cancelled
Has the My Journey website and app been cancelled? I just tried logging in via https://onlinenetwork.bcna.org.au/ with no success. I can no longer find it on the Google Playstore.
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6 month update TNBC Stage 4
Hi everyone, bit of a flat day, thought I would post an update, writing my journey out helps me. It's also so hard to find anyone with a similar diagnosis to talk to...on this site. TNBC Stage 4 Mets to lung, lymph Started Carbo & Gem chemo 4 months ago. 1st scans showed lung spots gone, chest spots gone, tumour shrunk…
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Insulting and Judgmental Comments
Something I was not prepared for post breast reconstruction, are the judgmental comments the scar on my belly is attracting. I have been undergoing abdominal ultrasounds to try and figure out the problems I am having with my period. The ultrasound people keep referring to the scar on my belly as a "tummy tuck". I've even…
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Considering removing my ovaries
Good evening all I am considering removing my ovaries, consulted with Dr today and I want to go ahead but I want some time to think about it. I thought about posting here too as you all have been super helpful in the past, thank you. I am on letrazole and zoladex. 1 year of herceptin post chemo. Zoladex is a painful…
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Inherited gene mutations - are you at higher risk of breast cancer?
Approximately 5-10% of breast cancers are hereditary- caused by a
gene abnormality that is passed from a parent to their child. If one or more of your close family members have been diagnosed
with breast cancer, you may be concerned about your inherited risk of
developing breast cancer. If you’re at higher risk, have you…