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When is your birthday?
Hello everyone, Following on from the amazing birthday list that was started by @socoda, thank you very much! Im calling out to all our members to let us know your birthday. We love an online celebration and on the day you will receive a virtual birthday cake that we can all share! No need to include the year you were born…
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Welcome New Members - 14th January 2025
Hello and welcome to our newest Online Network members: @kimmyk54 @Kinjeng @BENWOODS @HammahM @SanthiG @anhart @jmr @MrsPP @Anne123 @Carolyn52 @ajtunn @ZeraphicZebra @caitblack @BrigitteB @Jayde @SairC @Angelamonti @Hendo54 @paquita @Kemeti @lilys @BBs @Rae36 @Kim_W @AEB @Easilydistracted @Jo_Jo @Trixie @Amanda1 @jenweb…
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Share your views: Artistic tattooing of breast-cancer mastectomy scars
Hi everyone! Following up on my previous post, I’d like to invite you to participate in a PhD research study being conducted by Tina-Maree Newlan of Charles Sturt University on artistic tattooing of breast-cancer mastectomy scars. The study aims to investigate the experiences of women who have had breast cancer mastectomy…
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Friday Update (20/12/24) - BCNA Christmas Closure Details
Hello members! As we find ourselves in the last month of the year, we reflect on the activities BCNA have undertaken in 2024 (Highlights shared in the update), while acknowledging the work still ahead. This December, we are filled with gratitude for the strength, resilience, and hope that defines the breast cancer…
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Watch this space!
We’ve been listening to your feedback and we’re excited to
announce that the Online Network will be moving to a new platform in early
2025! This has been designed to better serve your needs. This will mean you
will only need one login, one password for the Online Network and all our
resources. We are committed to improving…
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Season 2: Podcast Series "What You Don’t Know Until You Do, with Dr Charlotte Tottman"
Charlotte is back with an 'unlimited' season! Season 2 of our popular Upfront About Breast Cancer podcast What You Don’t Know
Until You Do with Clinical Psychologist Dr Charlotte Tottman is available now (You have direct access via the bottom of the Online Network homepage) With over 58,000 listens, Season 1 proved to be a…
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Lower dose tamoxifen
I have taken tamoxifen 20mg for 6 years,I have now had a year off tamoxifen as I stopped taking due to side effects, my oncologist would like me to persist and start taking it again as I’m in my 40s and he considers this young. my surgeon said I could just take less,he said there has been research that says it may be as…
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Does anyone have shoulder issues? Torn Rotator Cuff/Frozen Shoulder etc
Hi guys It is well known, that, for some reason, women get more shoulder problems than men - specially around/after the age of 50 ... probably from lifting kids all the time & the laundry, shopping & other stuff ... (tho I never had kids, so can't blame that!) Over the last 25 years, I've had a procedure done on both my…
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Wise words ....
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Have you had withdrawal side effects after stopping Arimidex!
Hi everyone It’s been a while since I’ve been here! I saw my oncologist on Tuesday re stopping Arimidex. I was thinking of stopping anyway but Arimidex being discontinued gave me a little push. When I had my mastectomy in August 2016 I was told I’d be taking Arimidex for 5-10 years although my oncologist told me on Tuesday…
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Newly diagnosed metastatic cancer
Hi, I only just got my breast cancer diagnosis 1.5weeks ago and initially it was tentatively said to be Stage 3 due to being grapefruit sized and lymph node involvement. Then a couple of days ago after unrelated investigations it was discovered that there were mets in my vertebrae so I have been upgraded to stage 4. My…
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Insulting and Judgmental Comments
Something I was not prepared for post breast reconstruction, are the judgmental comments the scar on my belly is attracting. I have been undergoing abdominal ultrasounds to try and figure out the problems I am having with my period. The ultrasound people keep referring to the scar on my belly as a "tummy tuck". I've even…
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Post chemo
Hello all I am a triple negative stage 1 breast cancer serviver I have been cancer free since April. But I'm struggling with some post chemo issues It's been 6 months since my last one and my skin is supper sensitive and it never use to be I have started to go through menopause and my hair is crazy curly. Is there any one…
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Mastectomy with immediate reconstruction with implant
Hi everyone. I'm a 38 year old, newly diagnosed breast cancer patient with surgery coming up in less than a week. I am having a single mastectomy with immediate reconstruction with implants. Unsure of any treatment plans as yet. Just wondering, if there's anyone here who has had implants post mastectomy and how they are…
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Looking for Support Groups in Brisbane/West Brisbane 😊
Hey everyone!I hope this message finds you surrounded by love and support.I’m on the lookout for any support groups in West Brisbane/Brisbane that meet up in person. I think it would be great to connect with others who are in similar situations and share experiences.If you know of any local groups or have any info on when…
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Public patient Private radiation (Toowoomba)
Hi everyone, Just wanted to share a useful bit of info for anyone going through something similar. My nearest radiation facility is 4hrs drive away in Toowoomba, but it’s private & I am a public patient. I went for my planning appointment this week & at the end I was taken aside into a small office & given my ‘Estimated…
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Information Overload!
Hello lovelies, I was diagnosed just over a week ago with invasive breast cancer in my left breast, after finding a lump. I went for a mammogram 2.5 weeks ago where they took core biopsies. Since then it has been an absolute whirlwind of appointments, questions, information dumps and just trying to find a minute to breathe…
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Recovery times and support required following mastectomy and chemo
Sorry for long post... I'm new to this group. I was confirmed 2 days before Christmas with DCIS and suspected Paget’s Disease. I am facing a mastectomy and possible chemo, etc. I'm now looking at what my options are with respect to reconstruction. I’m seeing my breast surgeon tomorrow with my growing list of questions. So…
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Negative impact of radiation on Flap (autologous) reconstruction??
Hi all, will have mastectomy in a couple of months time, am considering to have an immediate breast reconstruction (IBC) using my own tissues/ flap (autologous). Unfortunately, I will have a series of radiation after the IBC. I am worried the radiotherapy will kill/destroy/ causing complications on the flaps. I did some…
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16 Weeks Pregnant and diagnosed with aggressive hormonal breast cancer
As the title says, I am currently 16 weeks pregnant with my first child, I turn 32 in Feb and have no family history of breast cancer. My surgeon has said I will need a mastectomy in the next week or 2. To say overwhelmed and unsure about my future is a complete understatement. I have found limited people in the same…
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7 year diagnosis anniversary is today ..... how time flies!
7 years ago today, I learned that I had Invasive Lobular Cancer after a clear NSW Breast Screen just 6+ months before. My GP had found the 'lumps' back in Oct & it took until 'now' to get the results! ... (I'd had a 2nd 'failed' Mammogram and ultrasound in the mean time that didn't find the tumours ... and on the…