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Post surgery
Wanted to check in to you guys, post surgery unilateral mastectomy, post surgery day 5. I am recovering quite well, except one bad night at home. I discovered better to sleep in a semi sitting up position in bed, like in hospital as lying flat seemed to add pressure and pain. I wasn't prescribed any stronger pain killers…
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Going flat tips & hints for bras & clothing - what to expect
Looking forward to Summer and flat on one side… wondering if there is swimwear available, if so, where’s the best place to go to?
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Post surgery & deodorant
Hi everyone, I’m 6 days post mastectomy and I’m wondering how soon after surgery is it ok to use deodorant on the operated side?
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6 month update TNBC Stage 4
Hi everyone, bit of a flat day, thought I would post an update, writing my journey out helps me. It's also so hard to find anyone with a similar diagnosis to talk to...on this site. TNBC Stage 4 Mets to lung, lymph Started Carbo & Gem chemo 4 months ago. 1st scans showed lung spots gone, chest spots gone, tumour shrunk…
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Alcohol - yes or no to occasional drink?
Hi I had a lumpectomy 3 weeks ago and going through the paranoid phase re bc - this caused it, that caused it etc. As my confidence comes back and knowing that nothing I did or didn't do caused my bc - I'm now blaming stress, lowered immune system, environment, drinking tap water - possibly covid vaccine - who knows?? I…
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Any suggestions /tips for preparing for surgery and heading home
Hi there, I will be having surgery in a week - lumpectomy and breast reduction in the other breast. I am trying to prepare what I can for not only the surgery but my return home. I have 2 primary age kids who are full of beans and 2 big dogs who love to be lap dogs. I am thinking maybe I need to create a quiet space in my…
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Dressing change post mastectomy
Hi everyone, just wondering when you had your wound dressing change after your mastectomy? My understanding is it should be 1-2 weeks post surgery, but I still don’t have an appointment for it despite contacting BC nurse & surgical team today. I was told they’re going to follow it up, which hopefully won’t be too far away…
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Surgical options when you need radiation post surgery ???
Hi All I am seeking advice/information about what options you were given for surgery when you needed to have radiation post surgery. A bit about me, I am 52 single mum to adult sons (one still at home). I was diagnosed with IDC Grade 3 Triple Negative BC in early May. I have been undergoing neoadjuvant chemo and have just…
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Information Overload!
Hello lovelies, I was diagnosed just over a week ago with invasive breast cancer in my left breast, after finding a lump. I went for a mammogram 2.5 weeks ago where they took core biopsies. Since then it has been an absolute whirlwind of appointments, questions, information dumps and just trying to find a minute to breathe…
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Is My Journey still working or has it been cancelled
Has the My Journey website and app been cancelled? I just tried logging in via https://onlinenetwork.bcna.org.au/ with no success. I can no longer find it on the Google Playstore.
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Insulting and Judgmental Comments
Something I was not prepared for post breast reconstruction, are the judgmental comments the scar on my belly is attracting. I have been undergoing abdominal ultrasounds to try and figure out the problems I am having with my period. The ultrasound people keep referring to the scar on my belly as a "tummy tuck". I've even…
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Inherited gene mutations - are you at higher risk of breast cancer?
Approximately 5-10% of breast cancers are hereditary- caused by a
gene abnormality that is passed from a parent to their child. If one or more of your close family members have been diagnosed
with breast cancer, you may be concerned about your inherited risk of
developing breast cancer. If you’re at higher risk, have you…
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StratXRT - first use, not sure I’m doing this right?!
Hi all Invasive lobular carcinoma (Grade 2, ER+ PR+). Breast conserving surgery completed 4/9 (after a wide excision open biopsy on 6/8). Started the first of 15 radiation treatments today and have opted to use StrataXRT. Have only used it once and it doesn’t feel like I expected. Everything talks about a ‘gel’ ‘drying’…
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Chris O'Brien Lifehouse
Happy days has landed with Grade 2 invasive. I don't want much after double mastectomy - too many other co mobilities. Can anyone tell me in 2024 do RPA pts go into RPA ward or the Lighthouse as a public pt? I've had a few chats - and because I don't want anything apart from surgery it is pretty simple and not much there…
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What book are you reading?
I know there was a discussion a few months ago about what people are reading at the moment but I can't find it so I'm starting a new one! I read lots of good books (and some not so good ones) but I just finished one that was fast-paced, an easy read, a bit quirky AND the main protagonist was a not quite young woman! "It's…