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Hair Loss Advice
Hi beautiful people. I have just commenced chemo a few weeks ago and I am just starting to lose my hair. I have bought some hats and scarves but I would appreciate some advice on wigs. Looking at the possibility of a real hair wig? Would really appreciate your opinions. I live in the the Wollongong area. Thanks ☺️
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Struggling with Negative Emotions
Good morning, I am new to the forum so apologies if this subject has been discussed previously. I had a double mastectomy in March 2024. Breast Cancer is so prevalent in my family, but all other family members have only needed a lumpectomy, not a double mastectomy. I'm not belittling their experience, but I feel I don't…
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Questions to ask 'Post Surgery' of yourself - to your Specialists - Tick Sheets - Self assessment
I know that after my own surgery, I didn't always quite know what questions to ask of my surgeon and 'the team' that we all see regularly for the first 5 years following our treatment - so I set about looking for 'tick sheets' that would help me, as these appointments approached! I came across some really interesting…
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Wishing @Cindi a VERY happy 70th Birthday for TODAY
Wishing @Cindi a wonderful 70th birthday today, with family & friends xx I've beaten you to the 70s club by one year!! ;) xx You've had a pretty tough 12 months .... so hope this is the turning of the corner for you and wishing you many more Happy Birthdays xxx I hope you can celebrate with a wee glass of wind - and enjoy…
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Online Network Survey - Results
Thank you for taking part in our digital research As some of you may know, we need to move the Online Network to a new platform, as part of a wider project to improve our online resources. We ran a survey and conducted interviews with members of the network to gather information such as: * What works well and what needs to…
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Helping make decisions
Hi, my Mum is 78 and was diagnosed with hormone positive breast cancer in 2023, she has had her surgery and radiotherpay and is now on her hormone blockers. She now needs to make a decision about taking zometa, weighing up side effects with quality of life in your later years. She wants me to help her make a decision she…
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Support groups for metastatic breast cancer
Hi, I'm looking for a support group for people with metastatic breast cancer in the eastern suburbs of Sydney preferably face-to-face but Zoom is OK also. Appreciate any info members may be aware of - thank you
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Hot spa's and stage 4 breast cancer?
Hi ladies, I am about to head down to warrnambool with my breast cancer support group for long weekend retreat. We are visiting hot spa's on Sunday and my question is can I go into hot spa? I don't have lymphoedema, did have auxiliary clearance on right arm. Have tried to call breast Care nurse and left message, just…
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A new Cancer Clinic in Sydney to include Regional NSW Hospital partnerships as well
$20 million to establish world-leading clinical trial centre for all NSW residents 17 August 2024A world-leading clinical trial centre in Sydney will soon provide increased access to international cancer clinical trials, thanks to a $20 million donation to the NORTH Foundation from philanthropists Greg Poche AO and the…
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Supporting you through the current media coverage
Good morning all, As we’ve seen unfold in discussions over the past week in the online network, many of you have been impacted by the media surrounding a celebrity’s choices during their own cancer treatment. This is not the first time, nor the last, that a high-profile person will make statements that can affect those of…
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Hello
I’m Simone diagnosed 2019 HER2 positive & TNC stage 3 Grade 3 BC I have never joined an online group like this before so I’m not really sure how to navigate around. I feel it’s taken me this long to be able to retrospectively think about the last 5 years. I feel I have just been in survival mode. So now I’m trying to piece…
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New here
I was diagnosed a week ago with triple positive Grade 2-3 Lobular breast cancer. Finally told my family and kids which was one of the hardest things. The information and scans, biopsies, tests, clip implants, chemo port op… it’s such a lot to take on so quickly. Hoping this will settle down once scan results are in and…
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Have your say on the Online Network
Later this year, we need to move the Online Network to a new platform as part of a wider project to improve our online resources. To help us make the best decisions around functionality, processes, look and feel, and more, we invite you to complete a short, anonymous survey. All questions are optional and you can use any…
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Chemo side affects
Hi my friends, Cindi here, I'm reaching out to you because my chemo nurse told me although my cancer isn't breast cancer now ( I had that last year) my new cancer is actually called bladder cancer even though it was in the ureter which connects the kidney to bladder. Kidney & ureter and part of bladder now removed and my…
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Port insertion delay
I’ve started my chemo through the veins as the first port insertion appointment my oncologist can get me with her team is 6 weeks into my 12 weeks of chemo. My veins are quite small and I’d like to find an alternative provider for this procedure. My breast surgeon will do it but only with a full anaesthetic. With a family…