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Diagnosed this week and struggling
Hello everyone I'm glad to have found this community. I found a lump a few weeks ago, had a mammogram, ultrasound and biopsies and have two tumors in one breast, both invasive, one lobular and one non-specific. Both stage 1-2. So many thoughts and so much stress at the moment! I don't know how to cope at times. We don't…
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Any tips to prepare for surgery and returning home
Hi there, I will be having surgery in a week - lumpectomy and breast reduction in the other breast. I am trying to prepare what I can for not only the surgery but my return home. I have 2 primary age kids who are full of beans and 2 big dogs who love to be lap dogs. I am thinking maybe I need to create a quiet space in my…
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Post surgery
Wanted to check in to you guys, post surgery unilateral mastectomy, post surgery day 5. I am recovering quite well, except one bad night at home. I discovered better to sleep in a semi sitting up position in bed, like in hospital as lying flat seemed to add pressure and pain. I wasn't prescribed any stronger pain killers…
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Going flat tips & hints for bras & clothing - what to expect
Looking forward to Summer and flat on one side… wondering if there is swimwear available, if so, where’s the best place to go to?
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Post surgery & deodorant
Hi everyone, I’m 6 days post mastectomy and I’m wondering how soon after surgery is it ok to use deodorant on the operated side?
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Any suggestions /tips for preparing for surgery and heading home
Hi there, I will be having surgery in a week - lumpectomy and breast reduction in the other breast. I am trying to prepare what I can for not only the surgery but my return home. I have 2 primary age kids who are full of beans and 2 big dogs who love to be lap dogs. I am thinking maybe I need to create a quiet space in my…
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Dressing change post mastectomy
Hi everyone, just wondering when you had your wound dressing change after your mastectomy? My understanding is it should be 1-2 weeks post surgery, but I still don’t have an appointment for it despite contacting BC nurse & surgical team today. I was told they’re going to follow it up, which hopefully won’t be too far away…
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Surgical options when you need radiation post surgery ???
Hi All I am seeking advice/information about what options you were given for surgery when you needed to have radiation post surgery. A bit about me, I am 52 single mum to adult sons (one still at home). I was diagnosed with IDC Grade 3 Triple Negative BC in early May. I have been undergoing neoadjuvant chemo and have just…
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Is My Journey still working or has it been cancelled
Has the My Journey website and app been cancelled? I just tried logging in via https://onlinenetwork.bcna.org.au/ with no success. I can no longer find it on the Google Playstore.
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Inherited gene mutations - are you at higher risk of breast cancer?
Approximately 5-10% of breast cancers are hereditary- caused by a
gene abnormality that is passed from a parent to their child. If one or more of your close family members have been diagnosed
with breast cancer, you may be concerned about your inherited risk of
developing breast cancer. If you’re at higher risk, have you…
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StratXRT - first use, not sure I’m doing this right?!
Hi all Invasive lobular carcinoma (Grade 2, ER+ PR+). Breast conserving surgery completed 4/9 (after a wide excision open biopsy on 6/8). Started the first of 15 radiation treatments today and have opted to use StrataXRT. Have only used it once and it doesn’t feel like I expected. Everything talks about a ‘gel’ ‘drying’…
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Chris O'Brien Lifehouse
Happy days has landed with Grade 2 invasive. I don't want much after double mastectomy - too many other co mobilities. Can anyone tell me in 2024 do RPA pts go into RPA ward or the Lighthouse as a public pt? I've had a few chats - and because I don't want anything apart from surgery it is pretty simple and not much there…
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What book are you reading?
I know there was a discussion a few months ago about what people are reading at the moment but I can't find it so I'm starting a new one! I read lots of good books (and some not so good ones) but I just finished one that was fast-paced, an easy read, a bit quirky AND the main protagonist was a not quite young woman! "It's…
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Rare Breast Cancer
Hi everyone I have recently been diagnosed with Encapsulated Papillary Carcinoma, apparently a rare cancer of the breast, mainly seen in post menopausal women in mid 60’s. I have had a lumpectomy with clear margins and am having sentinel lymph node biopsy next week, followed by possible radiation and hormone blocking…
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Mastectomy /post surgery pillow
Hi all, I have a brand new mastectomy pillow that I found really helpful that is basically as new. I would be really happy to post it to anyone that is about to have surgery at no cost. I just can’t bear to throw it away and would be happy for it to help someone else! Just dm me with your address if you would like it. I’ve…