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The good, the bad and the ugly of my cold cap journey
Dear everyone, I am two and a half months past my last cycle of chemotherapy so I though I will share my experience with the cold calp. I had 4 cycles of TC (20/11/18 to 23/01/19). I chose to do a neoadjuvant treatment and start with chemotherapy to allow genetic testing to happen and give me some time to think about the…
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Feeling Stressed
Hi everyone, I haven’t posted for awhile have been going through treatment, not sure if I have posted this in the right category. Diagnosed with TNBC in October 2018. Have finished my 4 treatments of A/C every fortnight, body hasn’t cooed with it very well, been in hospital twice with neutropenia and rhino virus. Had a…
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Reflux and shampoo for Cold Cap Chemo
I was diagnosed with early stage breast cancer with lumpectomy in October but I'm having four treatments of cold cap chemo AC and was wondering whether the Nioxin shampoo was a good one to use while going through this? Also what's the best for Reflux? This is my first post, so thanks for reading. Cheers.
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Invasive Metaplastic Carcinoma
I was diagnosed with an Invasive Metaplastic TNBC in Dec 2018, and had wide local excision & SNB performed January, with nodes clear and clear margins (though only just, on one side). Currently just had my 2nd chemo round (3-weekly TC x4), with 5 weeks radiotherapy to follow. Chemo has been relatively kind to me thus far,…
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Invasive Metaplastic carcinoma dx 1st April SapphireGem
SapphireGem Member Posts: 1 New Member9:49AMHi. Just popped in to introduce myself. I was diagnosed with Metaplastic carcinoma on April 1st..no joke! My 65th Birthday was April 2nd. Great! NOT!!! Im not familiar with medical term abbreviations I see used in posts, so I’ll just use old fashion ‘plain speak’. The tumour 3cm…
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Treatment after Mastectomy
Hello all, I am new to this forum as I was only diagnosed with invasive lobular cancer grade 2 (multifocal with 4 tumours) on my right breast in late March and undergone total skin sparing mastectomy last week with reconstruction done straight away. I went back to see my breast surgeon 2 days ago and was told my 3 sentinel…
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Hoping the surgeon is right
Hi all, it's been 6 weeks since my formal diagnosis of invasive lobular stage 2. I had a sectional Mastectomy 3 weeks ago and am recovering well, back at work full time, must keep busy. I am off to the oncologist Monday, my surgeon, whom is excellent, has suggested that I will most likely need radiation therapy followed by…
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IVF hormone positive
Hi guys. 2 days post mastectomy and axillary clearance and I’m doing very well! Discharged this morning. If you had oestrogen/progesterone +ve cancer and you underwent IVF to freeze eggs/embryos before chemo id like to know: did you take a receptor blocker ie tamoxifen/letrozole/zoladex with the stimulants to prevent a…
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Expander pain!
Evening lovely people x So Tuesday week ago I had a right mastectomy with auxiliary clearance and expanders put in.... My question is... who else has experienced expanders? And were you in pain? I am struggling to even stand up straight most of the time... wondering if this is relatively normal? Thanks guys xx
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Stage 0 (DCIS) with widespread microcalcifications
Hi, am very new and slowly (or quickly?) getting my head around my diagnosis and the terminology. It's like learning a new language which is probably the most pleasant thing I can say about this experience so far. I have widespread clusters of microcalfications across one breast. Three different biopsies have established…
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Impact on kids
Hi everyone, I'm currently in week 5 of radiotherapy. My 8 year old daughter is struggling with my diagnosis and is showing signs of anxiety, lashing out a lot. She admitted she is worried about me and I asked her to tell me what she understands about what I'm going through and I think us talking about that helped. Me and…
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TNBC & question re chemo
Hi, I was recently diagnosed with tnbc on 7th march. I’ve since had a lumpectomy & a few lymph nodes removed for biopsy. My tnbc was 12 mm, the lymph nodes clear but I think the margin behind the tumour was only .6 of a mm. At my post surgery appointment, it was suggested that I may not need chemo & the doctor thought that…
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Feeling very stressed and worried
Hello everyone, I have just been diagnosed with DCIS in three areas of one breast. I feel sick to the stomach and extremely worried. Have an appointment with surgeon on 8/4 to discuss mastectomy and breast reconstruction. Don't really know much at all other than what I have been reading. Trying extremely hard not to think…
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Surgery
I was diagnosed with IDC in March and I am scheduled for a wide excision next week. I’m absolutely terrified about the surgery and anaesthetic. Not sure how to deal with this overwhelming anxiety.
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Mastectomy
Hi all, just a quick question... I was due to have a bilateral mastectomy with diep recon this Tuesday but cancer was found in nodes so they have decided to just remove right breast and put in expanders until treatment is complete. Was wondering what others peoples experience was with this surgery? Eg recovery time? How…