Waiting for my oncologist appointment is doing my head in
My GP sent me for an ultrasound after I had an appointment to get lumps in my armpit checked out. The ultrasound was on 14/6 and 4 smaller lumps were found and a total of 2 larger near my armpit. I was asked to come back for a biopsy and mammogram. Interestingly the mammogram was completely fine - no evidence of anything. A core biopsy was done on the larger armpit lumps and 2 FNA on the smaller lumps (I’m fairly certain that’s what happened) on 18/6/19.
I got the news of my diagnosis after work on Thursday 20th June and since then —
Blood tests & CT scans 21/6 Scans clear
Breast surgeon appointment 21/6
Brain scan and full body bone scan 24/6 All clear
Second appointment with breast surgeon 25/6.
Went back to GP to to get medical certificate and copies of pathology 27/6
Second biopsy on smaller primary tumours & 4 clips inserted 28/6.
At my second appointment my breast surgeon said it appears there is cancer in my LNs and she will discuss my case with the MDT at their afterwork meeting on 27/6, she also said I should get a phone call by Friday 28/6 to set up oncologist appointment as my treatment will start with chemo.
It’s the waiting and waiting and waiting for my oncologist appointment that is doing my head in.
I called Friday and today and the people who answer the phone are lovely but say they will call me after my doctor goes through my case. The second biopsy results probably are completed. I don’t know all the details yet and I feel that after second biopsy I need to be open minded and prepared that my BC details may change.
But what I do know from the updated (24/6) first biopsy report. Right breast. stage II grade 3, invasive carcinoma, ER weakly+, PR-, HER2-
I’m trying to stay positive but I feel frustrated. Family and friends have been supportive & caring.
I’ve had a couple of meltdowns in the last 10 days & I’m home alone tonight and dwelling on my thoughts.
How long is reasonable to wait for an appointment or what have others experienced?