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Just diagnosed
Hi, I thought I would introduce myself here. I am 49 years old and have just been diagnosed (two days ago) with an Invasive Ductal Carcinoma in my left breast. HR+ HER 2 negative, provisional grade 1, 4 small lumps. Will be meeting my surgeon at RBWH next week on Wednesday. The last 11 days, since the Breast screen recall feel like a blur. So much has happened and of course I didn’t anticipate any of that (lumps aren’t palpable). I have been directed here by the wonderful nurse from the Breast Screen and am very grateful to find so much support and information. I haven’t told my kids or friends yet so it feels good to be able to open up here.
Waiting, waiting, waiting….
Hi all, diagnosed 1st September, multifocal invasive lobular carcinoma. Surgeons appt scheduled for 17 September. Surgeon has referred me for an mri with contrast. The surgeon completed my biopsies (3) in breast screen clinic, so I’ve met her. My biggest question now is how long do you wait for the mri apointment? They acknowledge receipt of ‘urgent referral’ on 2nd of September and now it’s the 10th, they’re telling me they are waiting on ‘protocols’, my breast care nurse is wonderful and is following it up along with me, how long did you all wait? I thought I was coping not too bad, but today it all just seems really cruel……?
Discussion about surgery with Surgeon
Hi all, I have been diagnosed with invasive breast cancer and I have my first meeting with the surgeon on Thursday. I know to expect surgery soon but dont know if this will be lumpectomy or mastectomy. I know that this will be one of the things to discuss on Thursday but I am curious if there is a 'choice' - in a sense part of me just wants to be told which option but I wondered if anyone here made a decision one way or the other and how they felt about that? Am also putting this query in the treatment thread as I have not posted before and not sure which is better for this. Thanks for any thoughts.
Triple Positive HER2+
Hi everyone BCNA Online Network established a Group with Triple Positive breast cancer which is useful also for people who might be HER2+ but not positive for oestrogen or progesterone. This post is also to alert previously accepted Triple Positive Group members: you might not have been automatically transferred across to the Triple Positive Group with the recent upgrade to the new BCNA Network site. Please do request to rejoin the Group (I did)! Ned01CheriSukiCheriAnna15FeRnurserachMareealsoTriplebreast240Number2CaitySXC1947
Very difficult to listen the Podcast
Hi all, so I started listening to Charlotte's podcast. I just started the Episode 2. While this podcast is fantastic, I find it extremely hard to listen and my emotions just overcome me. I would love to know how is everyone going and what do you do to stay calm and not be a slobbering and emotional mess like me. 😔 Thank you everyone 💓
Newly diagnosed
Hi all, I have received a diagnosis of DCIS, I was told on Friday, and now I need another biopsy before we work out the best way forward, obviously the two options are mastectomy or lumpectomy, my concern is I can’t have this other biopsy for 3weeks, I feel overwhelmed, I was also diagnosed with Multiple Sclerosis this time last year, and I am a hairdresser, so I’m finding work a struggle and I’m wondering what I should expect with the recovery if I have a mastectomy and reconstruction vs lumpectomy and radiation? I would love to hear if anyone has experience any restrictions as a hairdresser getting back to work after a mastectomy? After my MS diagnosis I had to cut my business in half because of fatigue, now I’m concerned that I won’t have a business left after this if I can’t work for a while 😢Feeling lost
I am newly diagnosed and just feel lost. My appointments and tests have been so close to each other. I have had mammogram, ultrasound, biopsy of the breast, FNA of my lymph node, a pet scan and having a mri tomorrow. My diagnosis is invasive carcinoma NST (invasive ductal carcinoma), grade 3, triple-positive (ER+/PR+/HER2+), with associated high-grade DCIS. The ki-67 is 60%. I have been told the I will have 4 months of Chemo, then surgery, radiation and long term medication after. I met with the breastcare nurse and found her extremely unhelpful. I just don’t know what to expect and how to feel at the moment. Has anyone been on a similar journey who can tell me what to expect?Second Opinion
Hello 🌸 I’m just wondering if anyone had a second opinion before proceeding with surgery? each time I email the Drs clinic, I feel like I’m fobbed off & just told I have to have surgery (I’m ok with that if all my questions are answered and they haven’t been) not sure how to go about seeking another opinion. Any suggestions?
Inoperable
Hi all, I am newley diagnosed with stage 2 invasive HER2 negative ERPR positive and inoperable at the moment(that word really freaked me out) I am currently on hormone suppressant tablets to try and reduce the tumours and see the Oncologist next week. I feel very anxious all the time as I thought when I first heard I had it, a masectomy would be first up but it feels like my treatment is all in reverse and I don’t feel positive about it at all. Has anyone had experience with this before.Newly Diagnosed with further tests required
Hi. I was diagnosed a little over a week ago and I had a surgeon appointment today. She wants an MRI as my breast tissue is so dense some of the images are too vague for her to determine a clear surgery plan. But I have a potential surgery date for a few weeks time. I am thinking this is good that she is being thorough. But it does concern me as there may be more than meets the eye and she has given me that warning. Current knowledge is that I have 2 areas of concern, close to each other on same side, hormone positive, HER2 negative, provisional stage 1. One area is about 7mm, the other is ill defined and this is what she wants more images of. I feel better after meeting the surgeon, and hearing her explanation, her delivery of the plan from here and her general 'bedside manner' was the perfect amount of real. She took the time to understand what was concerning me. I am running the Sydney Marathon at the end of the month and after doing all the training and prep I would have been devastated if I couldn't run it. However we have a plan to get me there. So even though I need more scans to be certain of exactly what is going on, I am feeling as good as can be as there is some progress. In the back of my mind, is what if it is more than the fairly common and small areas I have? I can't dwell as it is what it is. I will focus on the run and deal with these things as they arise!
