Top Content
Category Content
Recent Content
How Do you decide what treatment when there are so many options?
I am so confused and mind blown by the options available after being Diagnosed with Breast cancer on my birthday in December. I am suppose to know by next week what I want to do and finding it extremely difficult. Does anyone have some good advice, websites, podcasts, etc for me Please and Thank you.
Not sure
I was diagnosed with invasive ductal BC stage 2 ER+PR a couple of weeks ago lymph nodes do not seem affected for now ( biopsy was negative). My breast are small and MRI showed ~4cm cancer. I was wondering if mastectomy + reconstruction and possibly no radiation therapy was better than lumpectomy + radiation. Not sure what to do🤔
New diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first mammogram 18 mths previous which was clear. I felt unwell at work & went to hospital and they found it looking for something else. It has been such an overwhelming process. My family & friends have been amazing but am feeling so very alone.
Breast cancer diagnosis- did you have a Mirena in place, like me?
I was diagnosed with breast cancer 3.5 months ago and had a double mastectomy 3months ago. I am 44 years old. I started doing some research as a number of people I know with breast cancer who were young also had a Mirena. There is new research coming out of: -Europe that indicates that there is a 40% higher risk of breast cancer if you had a Mirena, and -Germany that shows that the Mirena can change hormone levels in the breast based on scans I had breast ultrasound scans that show I did not have breast cancer just before my Mirena was inserted 5 years ago, and that it developed post Mirena insertion. I had no genetic factors (based on testing), and no risk factors for breast cancer. It seems highly co-incidental. I also looked up the FDA documentation for Mirena approval and it states that "Spontaneous reports of breast cancer have been received during postmarketing experience with Mirena. Because spontaneous reports and voluntary and from a population of uncertain size, it is not possible to use postmarketing data to estimate the frequency or establish causal relationship to drug exposure..." I am keen to connect with other women who had a Mirena in place and then were diagnosed with breast cancer. If this is you, please respond to this post- I would love to hear your story!
Totally confused after seeking second opinion
Hi my dear virtual friends, I have Hormones positives and Her2 negative. Grade 3 and Stage 3(Tumor size 35 mm). Surgeon A: Treatment plan Option 1: 6 months chemo ( neoadjjuvant), if tumor size shrinks > lumpectomy. If it doesn’t shrink > mastectomy > radiotherapy (will have to take Tamoxifen/AI) option 2: mastectomy > chemo> radiotherapy (will have to take Tamoxifen/AI) Surgeon B: treatment plan: lumpectomy immediately, tablets for hormones +ve (Tamoxifen/AI) > radiotherapy > chemo (depends on outcome of lumpectomy surgery). surgeon B doesn’t see the need to do 6 months chemo to shrink the tumor. He says he will have a better idea after surgery if chemo is necessary. hubby and I are still processing all these information and have some further questions written down. Keen to hear what other questions we should be asking both surgeons, please. Sincerely value everyone’s input. Xx GinStage 4 breast cancer
I have been diagnosed with stage 4 breast cancer recently, lungs and bone involvement. Hormone receptive high. After reading up about it I was feeling very upbeat. Then I met my oncologist, she was very positive and I was feeling at peace and ready for anything. But after a lot of thought, and knowing I am on borrowed time, knowing all the blood tests, scans, and injections for my bone cancer (and lung) for the rest of my life, meetings with oncologists, GP and allied health workers and with only a 50% chance of living for up to 5 years I'm seriously wondering if it's all worth it for me. When will I get the chance to live my life fully when I will constantly be reminded that my time is limited? Knowing the side affects and how the doctors change the meds to try and find the right ones when I feel I don't have time or the energy to put my heart and soul into something that will kill me anyway. I don't feel depressed, over whelmed definitely, sad for sure but I can feel the real me leaving already and becoming just another statistic. My breast care nurse is wonderful, the oncologists have been lovely and supportive and everyone involved has been amazing. But, the thought of going through all the treatments I have to go through and the end result will not be a cure and no certainty that I will be one of people who die within the first year is too much. I'm not afraid of dying but I am afraid of becoming a struggling cancer patient who will die. That's how I see my reality. I am 65 and have had a wonderful life. I have no regrets, just a simple and happy life. I have no grandchildren but I live an active busy life in retirement and I know with all the treatments, appointments, the ups and downs I don't think I will have the time or will or energy to be the person I am now. I sincerely hope someone out there can understand and perhaps give me some hope that after awhile my new "norm" will be ok and that I don't forget who I am. Gerry xxMetaplastic TNBC , Effectiveness of Chemo
Hi all, I was diagnosed with metaplastic TNBC in August 2025, luckily it was caught at an early stage (1B) . I have had 5 months of neoadjuvant AC & Paclitaxol and Carboplatin. I had an ultrasound this morning and there is minimal shrinkage (2mm). Has anyone else had minimal change but received a residual cancer burden of 0 post op? I am trying to stay upbeat and positive. Seeing the surgeon on Thursday for surgical planning. Regards OplivelongFirst appointment since diagnosis
Hi Lovely Ladies, I have my first appt on wednesday at Peter Mac and was wondering if anyone else went to Peter mac and what their experience was with the first appointment. Im hoping to come away with some dates of appointments to start my journey or am I being unrealistic and is it just really an information session? Thanks in advance
