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Feeling overwhelmed
Hi thereAll I am 59, happily married, have two adult children. One grandson and baby no 2 due anyday now... Had surgery last week for lumpectomy and Sentinel node biopsy. Everything went well Saw surgeron yesterday . Lymph nodes are clear. Margins good. My issues is I am SO overwhelmed. Smiling for family. Smiling for friends. Little background. I had **bleep** cancer 10 years ago, back in 2016. Chemo and radiation. It was brutal. The burns were horrible. The exhaustion was the worst. Everyone is saying.... your so lucky you caught it early. You've done this before... you'll be right. Support is encouraging and I am lucky to be surrounded by lots of love. I am to be a grandmother again in two weeks and have a lively gorgeous 2 year old grandson. Timing suck.... I am overwhelmed with sadness I am overwhelmed With discourage, feeling of resentment. Feeling very isolated. **bleep** THIS CANCER... so sorry for language but it express how I feel. I want to shout. Cry. Hit something and hide under the covers and not deal with this. I know that I should be grateful. I am sick and exhausting from smiling on the outside, but paddling like hell of the inside. Hiding my emotions. I still work. Love the job. I work for a Toy library as assistant. Its not a stresing job. Only 3 days a week. They have been wonderful. How has everyone else cope. I know what I am going through is normal. Can anyone suggest a good cancer support group. I live in Victoria on the Mornington peninsula. Love and support to everyone going on this same journey Let's kick ass . Cancer sucks. XxxxxxNewly Diagnosed
Hi everyone, I was diagnosed on the 12 May with Invasive ductal Carcinoma ER + PR+ and HER 2 negative. I'm still getting my head around the situation. I stopped all forms of hormone therapy, for menopause when I was told about my diagnosis and am now experiencing more menopause symptoms, hot flushes, night sweats, lack of sleep, and aching joints. I've met with the surgeon this week and have decided to have a lumpectomy. I'm now waiting on a surgery date. I've collected my hormone blocking medication Tamoxifen and am planning to start this weekend. I'm worried about the side effects that I might experience and how it might affect my work as a disability support next week.Who to ask about pathology details?
Hi all, just new here…yay🎉?! 🤦🏻♀️ I see everyone seems to know what hormone, stage and other details of their cancer. I know the size of mine, that it is invasive lobular. Just wondering, as I’d like to find out further details and I guess just assumed someone would “tell me” when I needed to know. Would my surgeon or GP be the person to ask for those details? I’ve had a lumpectomy, several lymph nodes removed and need to have further margins or areas of margin removed. I’d like to know obviously if the cancer is potentially fast growing, stage and hormones. thanks so much.
Tamoxifen..
Hi I had been on Tamoxifen for 3 months. I'm post menopausal. I'm 64. I started getting a discharge after couple months and heavy feeling in bottom of stomach like having a period again. Haven't had one in 18 yrs. Also diagnosed with ongoing constipation. Told med onc she said get gp to do an xray of pelvis and u sound. Had Gray then trans vaginally u sound. Results..thickened uterus and possibly hyperplasia along with increased uterine volume. I am off Tamoxifen and have appt with Gyno at qe2 in Brisbane on 12th may. I am more nervous of this app than when diagnosed with ILC. Has anyone had this while being on Tamoxifen. I d like to have a historectomy I don't need my uterus annymore then I could go back on Tamoxifen. Stay safe.. Tanya xx
LCIS on 1st year
Hi, last year in Mar25 I was diagnosed with a DCIS, I have dense (c) breasts. In Apr25 I had a lumpectomy and then 2 weeks of radiation. My 1st year review was Mar26 and now I have been diagnosed with an LCIS - pleomorphic. My concern is that the 1st report says L high-grade DCIS - HR immunohistochemistry is in progress a supplementary report will follow - that says Oestrogen receptor (ER) strong nuclear express in 60% of cells, PR is -negative <1% - however, assessment is hampered by the limited extent of the intraductal proliferation. E-cadherin immunohistochemistry pathology is underway to confirm a ductal phenotype, a supplementary report will follow. On the following report conclusion is LB, stereotactic biopsis, stromal microcalcifications and focal in situ carcinoma, features favour plemorphic lobular carcinoma LCIS over DCIS My surgeon advised if it was the DCIS he would be recommending mastectomy but as it is LCIS then lumpectomy (same as last year) but no radiation. I have since had an MRI so we can be more conclusive but my concern is the rate at which I have had a LCIS pleomorphic grow. I am considering a second opinion, has anyone else been in this situation. I am 62years old and other than the above I am generally healthy. I am seriously considering a mastectomy given my dense breast, what if something is missed, I don't want to keep doing this each year. After reading many of your journeys I appreciate that I am possibly one of the lucky ones but at the moment very confused. BNew grade 1 diagnosis
Hello. I’ve just been diagnosed: left breast invasive ductal, grade 1, hormone receptor-positive, HER2-negative. GP summary is that this is a low-grade hormone-positive breast cancer that can be successfully treated usually with lumpectomy then radiotherapy. I’m seeing a surgeon next week and feel relieved that this has been caught early. That said, I’m not looking forward to the next few months and am wondered if there is anyone else at a similar starting point - or people who’ve been down a similar road and can share advice and support. I’m 59, live in Sydney, work full time in a high pressure job, and am a single mum with a teenager at home. Thank you
Newly Diagnosed
Hi My name is Victoria, I'm 42 years old and I have been newly (well, 5.5 weeks ago) diagnosed with breast cancer. It is is located underneath the nipple on my left breast and it is invasive ductal carcinoma, ER+, PR- HER2-, Stage Two. (Sorry if I don't have all the details but that is what I have interpreted it as). The tumor is 2.5 cm. I have seen my surgeon twice and I will be having a single mastectomy next week some time followed by 6 months of chemotherapy. We had discussed a lumpectomy so he could try and save the nipple but I opted for the mastectomy, just for a clean break. I'm dealing with it okay- I'm a bit concerned I haven't cried yet- and everyone else around me is very supportive and very shocked. I just wanted to introduce myself and hopefully be able to contribute something to these groups. Thank you Victoria
Both !! Triple negative and HER2 positive diagnosis in the same breast synchronous
Hi i have just had a left breast full mastectomy and sentinel node/s excision due to initial diagnosis of extensive high grade DCIS. I had DIEP flap reconstruction at the same time. Tests of the removed tissue indicate both Triple negative and HER2 positive cancers (early stage) in the same breast at the same time. My surgeons are on leave. I have only received a partial summary report so far and don’t get full results or next steps for treatment til end of January. Is this unusual to have 2 types of BC at once? In the same breast? Any others have similar experience. The half news and lack of next steps just now with all the specialists away is a psychological and emotional challenge. Advice appreciated thank you 🙏🏼
New diagnosis, mum guilt and surgery
Hi All! It’s been a big month… recent diagnosis of invasive ductile carinomas x 2 in left breast, E+ PR+HER2LOW+1. Grabbed my breast after shooting pain on night before my 39th birthday, GP few days later, week after that had mammogram/ultrasound/biopsies x 3. Scheduled for bilateral mastectomy with DIEP flap reconstruction in a few weeks at the Wesley in Brisbane. Have been feeling quite positive, but now surgery date locked in I’m having a lot more anxiety!! Have 2 kids (5 & 7) that I’m worried about being away from, and have a busy job as a lawyer that I’m keeping going whilst waiting for surgery. I’m finding it a lot to plan for all I want to organise before surgery, so any tips/suggestions/ support would be amazing - I like to be super organised so particularly keen for any recommendations re what to pack etc!!
Write off 6 to 12 months?
I was given a diagnosis today of small tumor, early invasive breast cancer, double hormone positive and I have an appointment with surgeon in 1 week. At just-turned-60, the next 9 months were supposed to include 2 sons' graduations, 1 son's wedding (a family first), our 25th wedding celebration, a road trip to find-purchase-or-build a new home in a tree-change location in another state, and downsizing-packing-relocating. Surgeon and nurse at breast clinic today seemed to think "we can work around things" ...is that realistic? What is the most valuable question to ask the surgeon, next week, re time frames and realistic expectations? Thanks.
