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Post surgery Rehab options
Hi all, hope you all are doing fine. I wanted to share my experience in y BC journey and also want to get some expert advice/ help if you have been thru this already. I was diagnosed with a stage 3 Triple positive BC last July. Since then I have been going through Chemotherapy and targeted therapy as advised my Breat surgeon and Oncologist. I recently completed my 6th cycle of Chemo and have my surgery scheduled this Saturday on. 6Dec. I will need to undergo full Mastectomy on my left. This will be followed by immediate reconstruction- will be a lengthy process I have been told. While understandably we are all nervous , I am also hopeful that I have been thru half of my battle. I am also a mother of two, and younger one is only 2.5 years old. I am also really anxious about the post surgery situation. My Doctor has told that I should not be taking stairs post surgery after I go back home. Given that I have little kids at home and none of our bedrooms are at downstairs, I am really keen to see if I can stay at a Rehab after I am released from the hospital. This would allow me to heal for few more days and would not endanger myself with the little one ( she jumps on to my lap anytime she wants). That would also help my husband who is my only carer at this stage. Love to get some ideas and advice how can I avail the Rehab facilities. I was also told by my Insurance provider that I have restrictive coverage for Rehab. I am in a tricky situation ( and am sure many of you are ) and wanting see what support can I get at this very difficult time. Many thanks and wish me luck!
Newly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel I’m in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. I’ve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. I’m worried that it’s just growing/spreading as I wait. I don’t have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. I’m really struggling wondering if I should have gone private and quick :-( Thank you x
DIEP reconstruction or going flat
Good morning, I'm new to this site and I'm so glad I was referred to it. I've been diagnosed with HER2 positive last week and need to have a complete mastectomy on my left breast. Everything is moving quickly with my various appointments which I'm really thankful with. I'm now faced with the decision whether to have a DIEP reconstruction or going 'flat'. I realise this is a personal choice and everyone is different but I'm keen to hear how you made the decision to go flat and if you have any regrets as I'm leaning towards this option. I'm fairly active with swimming at the beach in Summer, weekly aqua aerobics, gym, walking. Thanking you for your support 🙏
Guilt
Thanks to BCNA and the forum contributors (my new friends). I was diagnosed with IDC this week at 49 and have been 'battling' my emotions rather than sitting into them. That stops now. A couple of family and friends have tried to console me by dismissing my emotions. "Oh, you'll be fine. So-and-so had breast cancer and she's fine." "It's like appendicitis. You'll get it cut out and move on." "With all the advancements in treatment, it's not like it can kill you anymore." "You're not special. Everyone has some form of cancer these days." I was starting to feel guilty for being so emotional. I felt like I needed to get over myself and just deal with it quietly and confidently. I'm lucky I have a supportive husband... and you all!
Settling of the scars from my double mastectomy
I’m not sure where to start with what I want to ask, I was recently diagnosed with three different cancers in my left breast and chose to have a mastectomy but before proceeding my surgeon decided an MRI should be done which showed another mass in my right breast, so without further testing I opted for a double mastectomy. This all happened in two weeks. It’s now five weeks since surgery and I’m wondering about the tightness that’s in my breasts (a bit like I still have a tight fitting bra on) and the small amount of fluid that is also in both flat sides and wobbles from side to side when I walk. I’ve finished with my surgeon and her nurse and I don’t know if I need to have my chest checked again or if it is just par for the course. I start treatment for HER 2 positive cancer from the right breast in two weeks. my how quickly things have changed,Struggling through Chemo
Hi all, My nurse has just introduced me to this group. I’m hoping to connect and share my story and hopefully somehow feel better. After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it! Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories. I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through. Looking forward to connecting 😊
Nerve Pain Management
Hello, I have recently been diagnosed with DCIS left breast for which I am 1 surgery done and another next week to clear further margins. I am struggling with the sensation in my nipple area for which I'm told is my nerves rejoining which can take up to 6 months to reform. I am finding the sensation extremely uncomfortable and am often in tears at the end of the day at the overstimulation of the area. I am wearing a bra 24/7 as a simple movement on my nipple is too much. I'm wondering if anyone has had success with anything natural as I ideally don't want to take any pharmaceutical medicines. Appreciate any guidance 😊Looking at the 3rd surgery in 1 month
Hi all, I have been diagnosed with Stage 1 breast cancer with two less than 2cm but fast growing grade 3 tumor in mid Sept and had the lumpectomy surgery to remove the tumor . however pathology report came back saying they found DCIS cells at the margin. So I quickly done a re-excision surgery in mid Oct. The second surgery hit me really hard for not only I felt more pain but also i felt way weaker. But this tues, the surgeon told me they find IDC cancer cells at another margin. Now the surgeon is saying you should do another lumpectomy re-excision surgery. Emotionally I am devastated. But I cannot understand why can't they do a MRI to double check the margin? Or is this newly grown mass? My surgeon was not very open in sharing information. I am now seeking 2nd opinion. But i am so worry it will delay my whole treatment process. Anyone has similar experience to go through multiple surgeries?Looking for IVF specialist who knows menopause/tamoxifen
Hello! First time poster here. I was diagnosed with triple positive BC in 2022. We welcome our first baby born via surrogacy in 2023 but have one more embryo that I’m going to transfer myself because I’ve had 2.5 years on tamoxifen and no sight of reoccurrence. My Oncologist said okay yesterday! I am hoping to find an IVF specialist in Australia- preferably Bris that has dealt with my situation before - medical menopause and 2.5 years tamoxifen. Has anyone heard of a doctor like this? I’m happy to do Telehealth. My current doctor is Tiana Ernst at City Fertility Brisbane (where our embryo is) who is lovely but want to be sure I research for our best chance. Thank you!