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Triple positive invasive lobular carcinoma
Hi everyone Having been diagnosed February 2025 I have had surgery and now have my medical oncologist and radiation oncologist this week. My surgeon chose not to do neoadjuvent treatment . This is my second cancer diagnosis with the first being a grade 3 melanoma some years ago. My surgeon suggests radiation and chemo+ targeted therapy and the five year hormone blocker. I see alot of women had treatment before surgery and I am wondering if anyone is similar to me and went straight to surgery? What was your treatment after surgery? How did you pull through? Any advice or information is so appreciated Donna
Avoiding radiotherapy
Hi, are there any community members here that have avoided radiotherapy and then regretted it later? or vice versa. I had a very small pre cancer, which was non-invasive and I'm in my 40s. I am anxious about radiotherapy (long term effects) and though its the standard treatment (because the precancer was high grade), I am not totally comfortable with it, but perhaps that is normal? Any insights appreciated.
New diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first mammogram 18 mths previous which was clear. I felt unwell at work & went to hospital and they found it looking for something else. It has been such an overwhelming process. My family & friends have been amazing but am feeling so very alone.
Triple Positive HER2+
Hi everyone BCNA Online Network established a Group with Triple Positive breast cancer which is useful also for people who might be HER2+ but not positive for oestrogen or progesterone. This post is also to alert previously accepted Triple Positive Group members: you might not have been automatically transferred across to the Triple Positive Group with the recent upgrade to the new BCNA Network site. Please do request to rejoin the Group (I did)! Ned01CheriSukiCheriAnna15FeRnurserachMareealsoTriplebreast240Number2CaitySXC1947
Today was D Day
Hey all, So today I have gotten from my GP a preliminary result of stage 2 IDC involving the lymph nodes. HER negative and hormone receptor positive. Still need to do more tests to see if it’s spread. I felt something was wrong about a month ago and had developed a lump under my arm. I had a breast exam by the GP who thought it might be an abscess but wanted to rule out any other issues, since I’m only 41 and had never had a mammogram. I’ve felt a bit under the weather for about the same time but put it down to work stress since I’m a high school teacher. Emotionally though I think so far I’m taking it well, although I might be compartmentalising until I get the next set of results. The only thing I’ve struggled with is the emotional reactions of others- one of my siblings has been a godsend but the other managed to turn my telling her about my cancer her retelling every scare she’s ever had. However as a single parent with previous DV and high conflict I’m worrying about my ex finding out. I need to tell my kids (14 and 12) but keeping the news away from social media is definitely something I need to do because even though my profile is locked down he has found out stuff I didn’t want him to know before, and this is bigger news than that. I guess that’s all for me atm- reaching out and seeking support is something I want to do earlier rather than later.
De novo Mets
It's everywhere, all through my spine, left shoulder , should blade, breast bone, hips and both femurs. Some of them are big . In February I was blissfully happy with my husband , backpack hiking in Tasmanian mountain wilderness for our 1st year anniversary. I just had an annoying sore shoulder and what I thought was normal menopausal aches. The tumour in my boob is tiny, I can't even feel it now I know where it is. It wasn't picked up in mamograms. My blood test are normal. I don't feel sick other than waves of panic. I'm not angry, just terribly terribly sad . Biopsy says it's a HR+ PR+ Her -. The nurses telle that's good and slow growing, lol, tell that to my skeleton! I'm finding it hard to be positive given the extent of the spread. Still waiting to see a specialist and start treatment. My doctor has said no running, cycling or hiking and that I'm lucky I haven't broken my arm or back. I literally don't know what to do with myself. It's like I have to give up my "core" personality
Hello Fellow Peeps
Hello - Lovely to meet you all! Didn't expect there would be so many of you! Didn't expect to be here - but here we are! Thanks to BreastSceen Qld and team of pathologists - they found DCIS G#3. What an amazing group of caring people. Next is an appoint re treatment - only 17 more days to wait - not that one needs to be impatient about such things. Ha. In any case I kind of know the options - but would love to hear from anyone regarding their treatment and recovery and choices - especially if you're a runner/jogger and a multiple dog mum who loves 2 walks a day. Thanks so much and take care everyone :-)
