Top Content
Category Content
Recent Content
ER/PR+ HER2- invasive lobular
I’m a 47 yr old mum of one 6 yr old. I received my ER/PR+ HER2- invasive lobular cancer diagnosis this week. Due to strong family history (mum passed away at 62 in 2012 with triple negative BC- and her mother also passed away at similar age from BC type unknown as it was late 1970s) - my sister and I had started the process of having additional screening etc. My mammogram and Ultrasound in Jan this year was clear - MRI last month showed something- which following a core biopsy has revealed 3mm ER/PR+ HER2- invasive lobular cancer. As I was already under care of private breast surgeon due to wanting extra screening etc- I feel grateful to have already talked to her about surgery options and possible surgery week of 12th January. I went for genetic testing this week and now wait to see results. Am weighing up option of double mastectomy(and reconstruction) - though surgeon has advised its very early and very small so lumpectomy and sentinel node surgery is a very feasible option too. Followed by radiation therapy and tamoxifen. If I chose a mastectomy it may reduce my need for radiation and tamoxifen.
DCIS, DMX reconstruction new diagnosis
Recently diagnosed DCIS Stage 0. Opting for DMX and reconstruction using my tummy fat same day…. Videos and some social media groups are TBH quite confronting and disturbing. I would rather know but….. Reading and hearing how awful the recovery is, pain, discomfort, loss of movement and after some helpful tips to prepare please: particularly diet, did you change your diet pre surgery? High protein to help with recovery? Can you recommend a website or recipe site? Things post surgery: hire a recliner to rest in, did you hire a wedge or breast pillow as well? Button up shirts and pjs, anything else that you found useful please? I’ve heard about the drains which sound daunting… what do i need to do with them? Toileting and cleaning myself… I hear you can’t put your arm around your back to wipe? I’ve got wet wipes but …. Don’t want to ask my partner to wipe my bum? Diet after surgery to avoid constipation. Any tips would be greatly appreciated thank you so so much.
Chemo treatment
Start chemo next week. Diagnosed TNBC, surgery/nodes all came back clear. Doing chemo then radiation to make sure no microscopic cells will come back later on. Chemo using is docetaxel and cyclophosphamide and two days later injection of pegfilgrastim(boost immune system) after each treatment, once every three weeks for twelve weeks Wondering if anyone has had similar treatment, if so what side effects they had and how did they manage while being treated and any good things to help me go through it to make it more manageable. Have had radiation before ten yrs ago for HER2-, chemo is all new to me. TIA
Recently diagnosed and have no idea what's in store
Hello there, I was diagnosed with High Grade DCIS in mid June this year. So far it is only in my right breast. It's on the right side of this breast, but a recent MRI showed an unknown area on the left side. I am having a US/MR biopsy on this side next week. I am in the public system and extremely grateful for the treatment I have received this far. I still have no idea what's in store. I am very mindful that time is precious to our medical staff and there are other patients who need treatment now, I haven't asked too many questions on the basis that my treatment is undecided. I was informed by the surgeon that there's two paths, lumpectomy, radiation and hormone blockers or mastectomy. When I asked about the radiation it was explained that you go get it, for a small amount of time each day for a few weeks, then you go about your normal life. When I asked about the hormone blockers, (I am post menopausal, but suffered, and lived with, as you have to, quite severe symptoms through perimenopause for the last 10 years) I was told the dose is really small and I will be fine. Okay, sounds good, too good to be true, but I will take that on board. I am terrified to have a mastectomy. I am very aware that I am luckier than a lot of people and having access to all of these services is amazing. I do have frustration, I look normal and feel normal, but that will all change soon. I feel guilty that I have stage 0 breast cancer whilst others are so much worse off. I work, I have good support around me. I have only told my immediate family (husband & 2 kids who are in their 20s and my brother) and my 2 bosses, they have all been very supportive. I guess I also feel a bit confused and stupid because I really don't know what is going to happen and don't have answers to questions they have. I don't go down the Dr Google path as that just messes with my brain. I am lucky that I've never really been sick in life, so navigating the hospital appointments and communication is a new challenge for me. I also try and distract myself, not ignoring it, it's always there, but I can't let it consume me. Sorry for rambling, I know I will be okay, just writing something down and getting stuff off my chest. I've been a bit scared too up until now. Thank you if you read this far. Onwards and upwards 😘Surgeon & Hospital Choices Melbourne
Hi, I am recently diagnosed with DCIS and 75 years old. I live in Melbourne and need to select a Surgeon and Hospital for either a Lumpectomy or mastectomy. Does anyone have experience with Cabrini or Epworth and also with the surgeons Sarah Kemp or Melanie Walker?
Post surgery Rehab options
Hi all, hope you all are doing fine. I wanted to share my experience in y BC journey and also want to get some expert advice/ help if you have been thru this already. I was diagnosed with a stage 3 Triple positive BC last July. Since then I have been going through Chemotherapy and targeted therapy as advised my Breat surgeon and Oncologist. I recently completed my 6th cycle of Chemo and have my surgery scheduled this Saturday on. 6Dec. I will need to undergo full Mastectomy on my left. This will be followed by immediate reconstruction- will be a lengthy process I have been told. While understandably we are all nervous , I am also hopeful that I have been thru half of my battle. I am also a mother of two, and younger one is only 2.5 years old. I am also really anxious about the post surgery situation. My Doctor has told that I should not be taking stairs post surgery after I go back home. Given that I have little kids at home and none of our bedrooms are at downstairs, I am really keen to see if I can stay at a Rehab after I am released from the hospital. This would allow me to heal for few more days and would not endanger myself with the little one ( she jumps on to my lap anytime she wants). That would also help my husband who is my only carer at this stage. Love to get some ideas and advice how can I avail the Rehab facilities. I was also told by my Insurance provider that I have restrictive coverage for Rehab. I am in a tricky situation ( and am sure many of you are ) and wanting see what support can I get at this very difficult time. Many thanks and wish me luck!
Newly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel I’m in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. I’ve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. I’m worried that it’s just growing/spreading as I wait. I don’t have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. I’m really struggling wondering if I should have gone private and quick :-( Thank you x
DIEP reconstruction or going flat
Good morning, I'm new to this site and I'm so glad I was referred to it. I've been diagnosed with HER2 positive last week and need to have a complete mastectomy on my left breast. Everything is moving quickly with my various appointments which I'm really thankful with. I'm now faced with the decision whether to have a DIEP reconstruction or going 'flat'. I realise this is a personal choice and everyone is different but I'm keen to hear how you made the decision to go flat and if you have any regrets as I'm leaning towards this option. I'm fairly active with swimming at the beach in Summer, weekly aqua aerobics, gym, walking. Thanking you for your support 🙏
Guilt
Thanks to BCNA and the forum contributors (my new friends). I was diagnosed with IDC this week at 49 and have been 'battling' my emotions rather than sitting into them. That stops now. A couple of family and friends have tried to console me by dismissing my emotions. "Oh, you'll be fine. So-and-so had breast cancer and she's fine." "It's like appendicitis. You'll get it cut out and move on." "With all the advancements in treatment, it's not like it can kill you anymore." "You're not special. Everyone has some form of cancer these days." I was starting to feel guilty for being so emotional. I felt like I needed to get over myself and just deal with it quietly and confidently. I'm lucky I have a supportive husband... and you all!
Settling of the scars from my double mastectomy
I’m not sure where to start with what I want to ask, I was recently diagnosed with three different cancers in my left breast and chose to have a mastectomy but before proceeding my surgeon decided an MRI should be done which showed another mass in my right breast, so without further testing I opted for a double mastectomy. This all happened in two weeks. It’s now five weeks since surgery and I’m wondering about the tightness that’s in my breasts (a bit like I still have a tight fitting bra on) and the small amount of fluid that is also in both flat sides and wobbles from side to side when I walk. I’ve finished with my surgeon and her nurse and I don’t know if I need to have my chest checked again or if it is just par for the course. I start treatment for HER 2 positive cancer from the right breast in two weeks. my how quickly things have changed,
