Out of the blue!!
Hi everyone I'm 60 and very recently been diagnosed with TNBC stage 2, routine screening. Everything is happening so quickly!!! Biopsy 5th Oct, results 14th. High contrast mammogram 16th, PET scan 21st Oct. I saw my breast surgeon on 28th, Cancer hasn't spread, small tumor and one lymph node. Then 30th I saw medical oncologist, discussed chemo and immunotherapy, side effects everything. Prognosis is positive, surgery after Chemo, dependant on Brca blood tests, then radiotherapy. Im still in shock, it's a lot to take in!! I have good days then bad. I feel numb, sad, angry and sorry for myself, is that normal? My chemo should start in the next few weeks. I'm worried about how I'll cope. My husband broke his leg in August, so he can't drive, he's on crutches, I'm his carer! What should I expect from the chemo? Can I drive, can I still work? I apologise for all the questions, thanks in advance x DB156ViewsSign in to react to this post8Comments
Bayside Melbourne
Hi everyone, Just diagnosed sadly. It's a little lump so this whole situation should just end up a another campfire story. Hopefully. My family has never experienced anything to do with the big C word. It's very foreign to any of us and I was just wondering if there is any one base I'd Melbourne who was experiencing the same thing? If so it would be really nice to meet up for a coffee or something and just chat about what's to come next. Love and hope, Sim x134ViewsSign in to react to this post4Comments
Just diagnosed - it's all moving so fast
Hi everyone, I was just diagnosed yesterday (Wednesday) with DCIS, plus a focal area of invasive carcinoma NST, provisional grade 2, ER and PR positive and HER2 negative. I meet with the surgeon tomorrow and it all just feels like it is happening so fast my mind is swirling. Very thankful to have found this site as I have already found so much useful information!152ViewsSign in to react to this post4CommentsJust diagnosed
Hi, I thought I would introduce myself here. I am 49 years old and have just been diagnosed (two days ago) with an Invasive Ductal Carcinoma in my left breast. HR+ HER 2 negative, provisional grade 1, 4 small lumps. Will be meeting my surgeon at RBWH next week on Wednesday. The last 11 days, since the Breast screen recall feel like a blur. So much has happened and of course I didn’t anticipate any of that (lumps aren’t palpable). I have been directed here by the wonderful nurse from the Breast Screen and am very grateful to find so much support and information. I haven’t told my kids or friends yet so it feels good to be able to open up here.366ViewsSign in to react to this post14CommentsWaiting, waiting, waiting….
Hi all, diagnosed 1st September, multifocal invasive lobular carcinoma. Surgeons appt scheduled for 17 September. Surgeon has referred me for an mri with contrast. The surgeon completed my biopsies (3) in breast screen clinic, so I’ve met her. My biggest question now is how long do you wait for the mri apointment? They acknowledge receipt of ‘urgent referral’ on 2nd of September and now it’s the 10th, they’re telling me they are waiting on ‘protocols’, my breast care nurse is wonderful and is following it up along with me, how long did you all wait? I thought I was coping not too bad, but today it all just seems really cruel……?337ViewsSign in to react to this post15Comments
Very difficult to listen the Podcast
Hi all, so I started listening to Charlotte's podcast. I just started the Episode 2. While this podcast is fantastic, I find it extremely hard to listen and my emotions just overcome me. I would love to know how is everyone going and what do you do to stay calm and not be a slobbering and emotional mess like me. 😔 Thank you everyone 💓456ViewsSign in to react to this post19Commentsa difficult day
Today was my PET scan & also a CT scan. Awful. but I did it. I’m just still struggling with the enormity of it all. It’s surreal. I feel like I’m in a bad dream. And on the scan table I was wondering how the hell I got here. I’m scared. I cry lots. I know I’ve posted this before 🫶🏻 it’s good to be able to get it out! Thanks for listening 🌸254ViewsSign in to react to this post6Comments
Write off 6 to 12 months?
I was given a diagnosis today of small tumor, early invasive breast cancer, double hormone positive and I have an appointment with surgeon in 1 week. At just-turned-60, the next 9 months were supposed to include 2 sons' graduations, 1 son's wedding (a family first), our 25th wedding celebration, a road trip to find-purchase-or-build a new home in a tree-change location in another state, and downsizing-packing-relocating. Surgeon and nurse at breast clinic today seemed to think "we can work around things" ...is that realistic? What is the most valuable question to ask the surgeon, next week, re time frames and realistic expectations? Thanks.501ViewsSign in to react to this post7Commentsfloundering
Hey everyone Im new here and just found out I have invasive lobular carcinoma grade 2. I’m in shock after a whirlwind 2 weeks of tests. Today it’s hit me hard. I’m 68. I’m now taking Letrzole and surgery is 12th August. I’m having a lumpectomy and although no lymph nodes are involved, the surgeon is taking 3 nodes for testing. I am also dealing with CPTSD and all of this has triggered me. I just cry a lot. I don’t know who to turn to for support. I do have husband & family. I’m not sleeping which doesn’t help. It’s just so overwhelming156ViewsSign in to react to this post4Comments
Feeling angry
I have recently been diagnosed and had a lumpectomy last Thursday. I’m feel fine not overly sore but tired. Mine was picked up on a mammograms so early and I’m very grateful and know how lucky I am. I’m ok with diagnosis 1 in 7 my turn. The issue is I’ve been through so much recently and I’m finding myself angry. Well the last 2 days. 2 knee replacements, fibromyalgia, depression, late adhd diagnosis at 62, mum with dementia I’ve had to put into care, I sold her house without her knowing which is heart breaking - no help from siblings and that just this year. Lol. I had a breakdown a few years ago through work, got divorced, my dog died and I burnt my nachos the other day. A bit of light relief. There is more but that will do. I’m exhausted keeping a lid on everything. I’ve spoken to my psychologist who suggested Emdr. I’m by myself and just so angry. My kids have their own lives and basically my safe place is my home (with a massive mortgage) and my dogs. I had started a wonderful new business but have had to put that on hold until I find out what happens next. Which is next Monday. This is not a why me post it’s a is it normal to be angry. Not all the time but it’s scathing and my dogs have heard some words that I have never mentioned before. I’m not really good at asking for help. And was disappointed with the support I received with my knee replacements so reluctant to go through that rejection again. I think maybe it’s the lack of control, not knowing where we go from here. Again I know how lucky I am and whatever treatment (looks like radiation and hormone therapy and possibly another op and chemo if it’s travelled) I will gladly do and be thankful. I guess I’m just bewildered and have no idea what’s normal and whats not. And if I’ve honest I’m teary too. Ok I feel lonely and unsupported as well.233ViewsSign in to react to this post3Comments
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