Waiting, waiting, waiting….
Hi all, diagnosed 1st September, multifocal invasive lobular carcinoma. Surgeons appt scheduled for 17 September. Surgeon has referred me for an mri with contrast. The surgeon completed my biopsies (3) in breast screen clinic, so I’ve met her. My biggest question now is how long do you wait for the mri apointment? They acknowledge receipt of ‘urgent referral’ on 2nd of September and now it’s the 10th, they’re telling me they are waiting on ‘protocols’, my breast care nurse is wonderful and is following it up along with me, how long did you all wait? I thought I was coping not too bad, but today it all just seems really cruel……?
Very difficult to listen the Podcast
Hi all, so I started listening to Charlotte's podcast. I just started the Episode 2. While this podcast is fantastic, I find it extremely hard to listen and my emotions just overcome me. I would love to know how is everyone going and what do you do to stay calm and not be a slobbering and emotional mess like me. 😔 Thank you everyone 💓
DCIS diagnosis last friday
I found out Friday afternoon that I had DCIS, thought nothing of it till later in the evening when I was doing a bit of research . Totally overwhelmed & unsure what to do now, surgeon is having a team meeting Wednesday & then having a telehealth with me. AtM I’m trying to put together a few questions based on the pathology results I have. I want to be proactive & aggressive in confronting this disease. Any commments or ideas? I have had MRI, needle biopsy, ultrasounds, & then excision. This was all following my sister diagnosis of invasive lobular breast cancer recently. I had no symptoms prior & a negative mammogram last November .
Just diagnosed
Hi, I thought I would introduce myself here. I am 49 years old and have just been diagnosed (two days ago) with an Invasive Ductal Carcinoma in my left breast. HR+ HER 2 negative, provisional grade 1, 4 small lumps. Will be meeting my surgeon at RBWH next week on Wednesday. The last 11 days, since the Breast screen recall feel like a blur. So much has happened and of course I didn’t anticipate any of that (lumps aren’t palpable). I have been directed here by the wonderful nurse from the Breast Screen and am very grateful to find so much support and information. I haven’t told my kids or friends yet so it feels good to be able to open up here.
Newly diagnosed
Hi all, I have received a diagnosis of DCIS, I was told on Friday, and now I need another biopsy before we work out the best way forward, obviously the two options are mastectomy or lumpectomy, my concern is I can’t have this other biopsy for 3weeks, I feel overwhelmed, I was also diagnosed with Multiple Sclerosis this time last year, and I am a hairdresser, so I’m finding work a struggle and I’m wondering what I should expect with the recovery if I have a mastectomy and reconstruction vs lumpectomy and radiation? I would love to hear if anyone has experience any restrictions as a hairdresser getting back to work after a mastectomy? After my MS diagnosis I had to cut my business in half because of fatigue, now I’m concerned that I won’t have a business left after this if I can’t work for a while 😢Feeling lost
I am newly diagnosed and just feel lost. My appointments and tests have been so close to each other. I have had mammogram, ultrasound, biopsy of the breast, FNA of my lymph node, a pet scan and having a mri tomorrow. My diagnosis is invasive carcinoma NST (invasive ductal carcinoma), grade 3, triple-positive (ER+/PR+/HER2+), with associated high-grade DCIS. The ki-67 is 60%. I have been told the I will have 4 months of Chemo, then surgery, radiation and long term medication after. I met with the breastcare nurse and found her extremely unhelpful. I just don’t know what to expect and how to feel at the moment. Has anyone been on a similar journey who can tell me what to expect?Inoperable
Hi all, I am newley diagnosed with stage 2 invasive HER2 negative ERPR positive and inoperable at the moment(that word really freaked me out) I am currently on hormone suppressant tablets to try and reduce the tumours and see the Oncologist next week. I feel very anxious all the time as I thought when I first heard I had it, a masectomy would be first up but it feels like my treatment is all in reverse and I don’t feel positive about it at all. Has anyone had experience with this before.
So it turns out waiting is not for me….
Hi everyone- my name is Jenni and I was diagnosed last Tuesday 28/07/26 with invasive ductal carcinoma and DCIS. I was told a surgeon would be in touch within the week after getting a referral the same day. I have since requested my GPs reception to forward the referral twice - and was met with such hostility I will change doctors. We found out today that the referral was still not sent and hadn't got to where it needed to go. So my husband did a round trip (over an hour as we live in rural Vic) and went and got a hard copy from my GP and took it to the cancer care clinic as instructed via phone- to be told they did not need it yet and he nicely insisted she take a copy and give it to my BC nurse - I am so overwhelmed- how quickly should surgery be happening? I’m sorry to vent but its been a lot ❤️🌸
Fear of the unknown
I have recently been diagnosed last week l had a lumpectomy and nodes removed for further examination and, now l am anxious fearful about the follow up appointment this week. I really would like to become an ostrich put my head in the sand as l am not looking forward to their findings.a difficult day
Today was my PET scan & also a CT scan. Awful. but I did it. I’m just still struggling with the enormity of it all. It’s surreal. I feel like I’m in a bad dream. And on the scan table I was wondering how the hell I got here. I’m scared. I cry lots. I know I’ve posted this before 🫶🏻 it’s good to be able to get it out! Thanks for listening 🌸
