Inconclusive Follow up Mammogram
Hi there everyone, I wanted to see if anyone out there has had a similar experience to me at their follow up scans. I was diagnosed with early-stage breast cancer about 2 years ago, had a lumpectomy and radiation treatment. I've been having mammograms every 12 months and up until the last scan it's been "nothing to see here". At my last mammogram, the radiologist said that they noticed some changes around the site of my scar as compared to the previous scan which could be calcification or something else but that they were not worried enough to do a biopsy so come back in 6 months. I have to say this was not as reassuring as my previous scans where I could walk away and not have to worry/think about things too much. I do feel like I am a bit in limbo and the fear of recurrence which I normally manage quite well is somewhat heightened. Just wondered if anyone else has had a similar experience with their scans (ie not conclusive but advised to sit tight for now)? Thanks All
Tamoxifen..
Hi I had been on Tamoxifen for 3 months. I'm post menopausal. I'm 64. I started getting a discharge after couple months and heavy feeling in bottom of stomach like having a period again. Haven't had one in 18 yrs. Also diagnosed with ongoing constipation. Told med onc she said get gp to do an xray of pelvis and u sound. Had Gray then trans vaginally u sound. Results..thickened uterus and possibly hyperplasia along with increased uterine volume. I am off Tamoxifen and have appt with Gyno at qe2 in Brisbane on 12th may. I am more nervous of this app than when diagnosed with ILC. Has anyone had this while being on Tamoxifen. I d like to have a historectomy I don't need my uterus annymore then I could go back on Tamoxifen. Stay safe.. Tanya xx
Feeling overwhelmed
Hi thereAll I am 59, happily married, have two adult children. One grandson and baby no 2 due anyday now... Had surgery last week for lumpectomy and Sentinel node biopsy. Everything went well Saw surgeron yesterday . Lymph nodes are clear. Margins good. My issues is I am SO overwhelmed. Smiling for family. Smiling for friends. Little background. I had **bleep** cancer 10 years ago, back in 2016. Chemo and radiation. It was brutal. The burns were horrible. The exhaustion was the worst. Everyone is saying.... your so lucky you caught it early. You've done this before... you'll be right. Support is encouraging and I am lucky to be surrounded by lots of love. I am to be a grandmother again in two weeks and have a lively gorgeous 2 year old grandson. Timing suck.... I am overwhelmed with sadness I am overwhelmed With discourage, feeling of resentment. Feeling very isolated. **bleep** THIS CANCER... so sorry for language but it express how I feel. I want to shout. Cry. Hit something and hide under the covers and not deal with this. I know that I should be grateful. I am sick and exhausting from smiling on the outside, but paddling like hell of the inside. Hiding my emotions. I still work. Love the job. I work for a Toy library as assistant. Its not a stresing job. Only 3 days a week. They have been wonderful. How has everyone else cope. I know what I am going through is normal. Can anyone suggest a good cancer support group. I live in Victoria on the Mornington peninsula. Love and support to everyone going on this same journey Let's kick ass . Cancer sucks. Xxxxxx
Neuropathy- need some moral support
Hi all, I had one dose taxol and 2 doses herceptin. They have since put treatment on hold 3 weeks ago due to neuropathy in feet and legs (I was borderline for needing it anyway). Im now in a vicious cycle or spiralling anxiety and worsening symptoms, despite them only being mild to begin with. I’ve upped my antidepressants which will hopefully kick in soon. But I’m so scared that this is going to be permanent. I get zapping, tingling and varying numbness. Some days are good, where I barely notice, and other days, like today, it feels debilitating. I guess I’m looking for some good news stories or tips on what worked physically or mentally to help get you through this. many thanks, Anna
🌏Take A Global Deep Breath on May 13th
On May 13th, take one big pause together In a world full of constant news, chaotic schedules, and fast-moving technology, we could all use a big, deep breath. Join Headspace for a free, live virtual event on May 13th at 12pm EDT that connects the mind, the body, and communities around the globe. Meditation teacher Dora Kamau will lead a free, guided breathing exercise. No app or login required — just bring your open mind. Please see link below. Link for additional information🎧 Have you connected with our podcast: Upfront About Breast Cancer
Within our Online Network, we know how important it is to feel informed, supported, and connected at every stage of a breast cancer experience. One of the many ways we support our community is through our Upfront About Breast Cancer podcast. This is a resource created for you, where real stories, expert insights, and practical guidance come together in a way that is easy to access whenever you need it. A much loved part of the podcast is the What You Don’t Know Until You Do series, hosted by Dr Charlotte Tottman. Dr Tottman is a psycho oncologist who has supported many people through the emotional impact of cancer and, following her own breast cancer diagnosis. Her thoughtful and compassionate approach creates a space where the emotional side of breast cancer can be explored openly, helping listeners better understand their own responses and feel less alone in what they are experiencing. 💬 Real conversations from our community Upfront About Breast Cancer brings together the voices that matter most. People with lived experience share their stories alongside healthcare professionals and experts, creating conversations that feel both genuine and reassuring. These discussions reflect the reality of breast cancer. They explore the shock of diagnosis, the emotional highs and lows, and what it can take to adjust to life during and after treatment. For many, simply hearing someone else say “me too” can make a powerful difference. 🌱 Supporting you at every stage We know that every experience is different, which is why Upfront About Breast Cancer is designed to support people across all stages. Whether you are newly diagnosed, living with metastatic breast cancer, supporting a loved one, or moving through life after treatment, there is something here for you. Episodes cover important topics such as what to expect after diagnosis, how to communicate with your healthcare team, managing side effects, and navigating the healthcare system. This means you can return to the information in your own time, absorb it at your own pace, and feel more prepared for the next step in your journey. 👉 Listen to Upfront About Breast Cancer podcast here. 🌸 A gentle reminder Some topics may feel emotional or challenging. Please take things at your own pace and look after yourself as you listen. Support is always available, the online community and our Helpline on the phones are here for you. Have you listened to Upfront About Breast Cancer? We'd love if you shared: an episode that stayed with you something new you learned a conversation you would like to hear in the future 💪 Your experience may help someone else going through a challenging part of their journey. We are stronger, together.
New diagnosis, mum guilt and surgery
Hi All! It’s been a big month… recent diagnosis of invasive ductile carinomas x 2 in left breast, E+ PR+HER2LOW+1. Grabbed my breast after shooting pain on night before my 39th birthday, GP few days later, week after that had mammogram/ultrasound/biopsies x 3. Scheduled for bilateral mastectomy with DIEP flap reconstruction in a few weeks at the Wesley in Brisbane. Have been feeling quite positive, but now surgery date locked in I’m having a lot more anxiety!! Have 2 kids (5 & 7) that I’m worried about being away from, and have a busy job as a lawyer that I’m keeping going whilst waiting for surgery. I’m finding it a lot to plan for all I want to organise before surgery, so any tips/suggestions/ support would be amazing - I like to be super organised so particularly keen for any recommendations re what to pack etc!!
Radiation Therapy
It's all been very quick diagnosed with stage 1, grade 1 invasive breast cancer, ER+ then appointment with surgeon 2 days later, lumpectomy and removal of two lymph nodes 4 days after seeing surgeon. Currently day 3 after surgery, home recovering. Get results on lymph nodes and margins next week. I'm trying not to think too far ahead, but ... I worry about radiation (been told 5 days a week for 4 weeks) and how it will affect me as I work full-time. Any advise on what I can do to make the next stage of treatment easier and what to expect ☺️🌱Wednesday Wellness - 22Apr26 -Informed Decisions Reduce Anxiety🌱
🧠 Anxiety rises with the unknown, the unfamiliar, and the uncertain. But the flipside is that anxiety comes down with good quality information. – Dr Charlotte Tottman One of the strongest tools to support you through breast cancer is good, trustworthy information. It does not remove uncertainty entirely, but it can make decisions feel stronger and anxiety around the unknown more managable. At BCNA, information and resources sit at the heart of everything we do, because being informed helps you feel more confident when making decisions about your body, your treatment, and your wellbeing. 📚 What information can I access? BCNA's Information and Resources hub brings together a wide range of evidence‑based information to support people affected by breast cancer at every stage of their journey. This includes clear explanations of different types and subtypes of breast cancer, treatment options and therapies, and what to expect before, during and after treatment. You will also find practical guidance on managing side effects, looking after your physical and emotional wellbeing, navigating life during and after treatment, and understanding topics like genetic testing and clinical trials. Resources are available in multiple languages and formats, including booklets, fact sheets, articles and podcasts, so you can choose what works best for you and access information at your own pace. All content is designed to help you feel informed, supported and confident when making decisions. ☎️ Support when information feels overwhelming As you move through making your important decisions, whether they feel big or small, remember that you are not expected to know everything. Information can be explored at your own pace. If things start to feel overwhelming, BCNA's Helpline is always here. No question is too big, too small, we are here to help. We are available Monday-Friday, 9am-5pm AEST on 1800 500 258, and will listen first, then help guide you towards the information, support, or next steps that feel right for you. 💭 Gentle reflection for today... We invite you to share below what information helped you feel more confident making decisions during your experience with cancer, or simply have a think and take a moment for yourself today. 💗Just need to talk to someone
I’m 59yo and newly diagnosed with breast cancer. I’m really not sure I get what is going on either because I’m just slow or it’s just not all clear yet so I feel confused, in total panic and that I’m drowning and there is nobody to save me 😢 I am waiting for an mri this Thursday. I have a 10cm Not Special Type Grade 1 something positive to do with hormones and her2 1+. The surgeon says mastectomy is the only choice because of the size. There isn’t anything clear about what happens after that… is that how it’s meant to be? I just feel very lost appreciate any words of wisdom for these circumstances? susan
