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shanny63's avatar
shanny63
Member
2 months ago

High grade DCIS

Hello everyone, diagnosed with high grade DCIS I've had a lumpectomy. The surgeon said clear margins. Im scheduled to have a bilateral mastectomy in 29 days. Im going to go flat no reconstruction. I have no family support and quite frankly a useless husband. Rocky marriage prior to the diagnosis. My surgeon said I don't need lymph nodes removed because of the clear margins. I have myself dead and buried im terrified. I have no one to talk to. Hence why I'm here reaching out to you wonderful people. Please be a support for me I have no one. I've lost two sisters to this disease I don't want to join them just yet. Love and blessings Shannon 

6 Replies

  • Hi Shannon,

    I am sorry to hear about your situation. It is scary when first diagnosed and I can’t imagine the toll of losing two sisters.
    Clear margins and no lymph nodes - that is positive. Take one step at a time and try not to get stuck on worse case scenarios. From my understanding, I think the stats are very much in your favour for beating it!
    I had double masectomy with no reconstruction 8 years ago and have never regretted going flat.

    Good luck and wishing you all the best

     

    • Thank u so much for responding. I tend to think about worse case scenarios so I need to try and reframe myself from doing it

  • So sorry to see you joining us here shanny63​  ... but you are in the right spot for support and info xx

    It is great that you have clear margins ... so try not to be concerned about your longevity xx.  Give our Helpline a buzz tomorrow on 1800 500 258, to chat 'one on one' for some comforting advice xx

    Consider joining the private group for those choosing not to go down the reconstruction road .....
    Group: Flat Chat - no breast reconstruction | BCNA Online Network

    And also have a listen to Charlotte Tottman's podcasts - she is a specialist BC psychologist who also had bilateral mastectomy and chose to remain flat.
    http://www.drcharlottetottman.com.au/my-podcast.html

    Her podcasts are so easy to listen to & gives plenty of tips too.

    Also, check out this link with plenty of tips on the forum .... both medical and 'other' ..... 
    A big welcome to all New Online Network Members ..... | BCNA Online Network

    Take care & all the best xx

  • Hi shanny63​ 

    Cancer is such a cruel thing and for those who have lost family members to it, it is adds another level of stress / trauma.  I was diagnosed with high grade DCIS toward the end of last year & had a double mastectomy with immediate implants in November. My Mum is a breast cancer survivor but my aunt passed away from it in her early 40's and they lost their Mum to bc when they were both young teenagers.  That 'history' was in the back of mind when I was diagnosed and I did have quite the panic at first, thinking the worst.  Navigating cancer is complicated enough but to add a rocky marriage to it must be incredibly hard for you. Definitely reach out to the helpline when you need it. The girls in the no recon group will also be a great source of support. Do you have any friends or work colleagues who would be able to help out after your mastectomy?  All the best with your surgery and recovery journey

  • Hi Shanny63, I too have been diagnoed with high grade DCIS, having a double mastectomy next week, however opted for reconstruction, reason been I have already have / had breast implants. However rescontruction will come at a later date as they are informing me breast implants and radiation do not go hand in hand so need to wait for outcome of surgery, so hoping no more surprises.

    • arpie's avatar
      arpie
      Member

      Sorry to see you joining our select little 'club' Eeb​  ..... feel free to check out the links on my post below - but instead of the 'Flat Chat' group, consider joining the Reconstruction Private Group, where you can chat with members who've had the same or similar procedures, so you can know what to expect.
      Take care & all the best