DCIS diagnosis & double mastectomy
Hi all! I am 38 with 2 young kids - 5 and 1.5, based in Brisbane and working full time. I was diagnosed with DCIS on Monday and am booked in for a double mastectomy, also removing some lymph nodes and a reconstruction in 2 weeks time. I have an appointment with the plastic surgeon to discuss reconstruction options on Friday, so this is all happening really quickly. There’s no family history of cancer and it basically came down to “being really unlucky” - but also lucky that I found lumps in my breast and followed through with all the medical appointments and tests. It’s overwhelming and I’ll be honest, I am angry at the world but it also is what it is so just need to tackle this head on. Any advice and tips in regards to what to expect after surgery, aftercare, exercise are greatly appreciated. Thank you.50ViewsSign in to react to this post1Comment
Bayside Melbourne
Hi everyone, Just diagnosed sadly. It's a little lump so this whole situation should just end up a another campfire story. Hopefully. My family has never experienced anything to do with the big C word. It's very foreign to any of us and I was just wondering if there is any one base I'd Melbourne who was experiencing the same thing? If so it would be really nice to meet up for a coffee or something and just chat about what's to come next. Love and hope, Sim x137ViewsSign in to react to this post4Comments
So confused, scared and teary
Hi all, I was just diagnosed yesterday with DCIS intermediate grade 2 and told to get off my HRT patches immediately. I have 3 areas in the one breast so I think i will need a masectomy. I have been contacted by Peter Mac in Melbourne regarding my referral and just waiting on confirmation of my appointment date. My brain is saying if I had to have cancer this is the one to get but my emotions are being ridiculous, so teary inside but cool and calm on the outside trying to support everyone else. If I do need a masectomy i want to have reconstruction surgery on the same day with a small implant but Im so worried as 6 months ago I was let go at work due to business downsizing and ive really struggled to find another job, my mum has just passed away and any savings I had have helped with the funeral etc so basically I am seriously going through hardship and only just paying my rent on my job seeker payment. I am so scared that I will find out going through this process there are some unexpected charges that arent included, all the sites say peter mac is free and I am bulk billing but Im so scared that my health is going to held back due to financial stress. Has anyone had this process done at peter mac, chose the medicare bulk billing option and was their reconstruction covered? Sorry Im really rambling here but its so much easier to type this to a stranger than someone I know. xxxxx623ViewsSign in to react to this post7CommentsJust need to talk to someone
I’m 59yo and newly diagnosed with breast cancer. I’m really not sure I get what is going on either because I’m just slow or it’s just not all clear yet so I feel confused, in total panic and that I’m drowning and there is nobody to save me 😢 I am waiting for an mri this Thursday. I have a 10cm Not Special Type Grade 1 something positive to do with hormones and her2 1+. The surgeon says mastectomy is the only choice because of the size. There isn’t anything clear about what happens after that… is that how it’s meant to be? I just feel very lost appreciate any words of wisdom for these circumstances? susan655ViewsSign in to react to this post15Comments
Working while waiting for surgery
Hi all, was diagnosed 3 weeks ago today with early stage and was told I’d be having surgery pretty quickly. Ended up having to have more tests to eliminate issues in the other side and thankfully that all seems to be clear. But that has meant I still don’t have a date for surgery (I should find out tomorrow hopefully). My question is about how you’ve all kept sane during this ‘limbo’ period. My emotions and anxiety are all over the place, I can’t really focus or concentrate so I’ve taken a fair few days off work. I’m lucky enough that I can work from home (when I’m up to it) and my boss is awesome but I weirdly feel guilty about taking time off as though I should be managing this better. I’m conscious my surgery might not be for another few weeks so feel I need to work out better ways to handle this. Any inputs welcome! Thanks.744ViewsSign in to react to this post9CommentsFirst appointment since diagnosis
Hi Lovely Ladies, I have my first appt on wednesday at Peter Mac and was wondering if anyone else went to Peter mac and what their experience was with the first appointment. Im hoping to come away with some dates of appointments to start my journey or am I being unrealistic and is it just really an information session? Thanks in advance456ViewsSign in to react to this post3Comments
Newly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel I’m in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. I’ve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. I’m worried that it’s just growing/spreading as I wait. I don’t have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. I’m really struggling wondering if I should have gone private and quick :-( Thank you x865ViewsSign in to react to this post14CommentsNew diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first mammogram 18 mths previous which was clear. I felt unwell at work & went to hospital and they found it looking for something else. It has been such an overwhelming process. My family & friends have been amazing but am feeling so very alone.1.8KViewsSign in to react to this post29Comments
DCIS, DMX reconstruction new diagnosis
Recently diagnosed DCIS Stage 0. Opting for DMX and reconstruction using my tummy fat same day…. Videos and some social media groups are TBH quite confronting and disturbing. I would rather know but….. Reading and hearing how awful the recovery is, pain, discomfort, loss of movement and after some helpful tips to prepare please: particularly diet, did you change your diet pre surgery? High protein to help with recovery? Can you recommend a website or recipe site? Things post surgery: hire a recliner to rest in, did you hire a wedge or breast pillow as well? Button up shirts and pjs, anything else that you found useful please? I’ve heard about the drains which sound daunting… what do i need to do with them? Toileting and cleaning myself… I hear you can’t put your arm around your back to wipe? I’ve got wet wipes but …. Don’t want to ask my partner to wipe my bum? Diet after surgery to avoid constipation. Any tips would be greatly appreciated thank you so so much.388ViewsSign in to react to this post5Comments
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