Grief & emotions
Hi all, I'm 14 mths since my diagnosis of de nova metastatic breast cancer. I thought i was doing quite well coping with it all, but the last few weeks have really been a struggle. I am done with having cancer now, I want my hair back & my old life back. I am just realising the impact of living with this for the rest of my life. I am still working, exercising, having counselling, but it still seems all too much sometimes.
Post-treatment fatigue - feeling discouraged and frustrated
Hi there lovely people. I finished chemo in Sept '25 and radiation in Oct '25 (so about 7 months ago), and I'm on tamoxifen. I am still really struggling with fatigue and having to pace and limit myself. It's really frustrating. I'm trying to do all the right things: eating well, exercising, doing yoga, seeing friends. I'm on a gradual return to work program, currently doing 3 days a week at 6 hours a day. I started my return to work in March. I was thinking I might be ready to increase my hours in the next couple of weeks.....but then last week I was completely wiped out (as in, had to come home and go straight to bed on Friday), and then I was also wiped out by my weekend exercising and socialising (by no means an extreme level of activity). I'm feeling really sad and discouraged that I'm still struggling so much. I'm being kind to myself but I just want to get on with life and I feel like I'm being let down again by my body. How long will this last? Apparently some people's fatigue can last years! Does anyone have some words of wisdom or encouragement for me?š§ Have you connected with our podcast: Upfront About Breast Cancer
Within our Online Network, we know how important it is to feel informed, supported, and connected at every stage of a breast cancer experience. One of the many ways we support our community is through our Upfront About Breast Cancer podcast. This is a resource created for you, where real stories, expert insights, and practical guidance come together in a way that is easy to access whenever you need it. A much loved part of the podcast is the What You Donāt Know Until You Do series, hosted by Dr Charlotte Tottman. Dr Tottman is a psycho oncologist who has supported many people through the emotional impact of cancer and, following her own breast cancer diagnosis. Her thoughtful and compassionate approach creates a space where the emotional side of breast cancer can be explored openly, helping listeners better understand their own responses and feel less alone in what they are experiencing. š¬ Real conversations from our community Upfront About Breast Cancer brings together the voices that matter most. People with lived experience share their stories alongside healthcare professionals and experts, creating conversations that feel both genuine and reassuring. These discussions reflect the reality of breast cancer. They explore the shock of diagnosis, the emotional highs and lows, and what it can take to adjust to life during and after treatment. For many, simply hearing someone else say āme tooā can make a powerful difference. š± Supporting you at every stage We know that every experience is different, which is why Upfront About Breast Cancer is designed to support people across all stages. Whether you are newly diagnosed, living with metastatic breast cancer, supporting a loved one, or moving through life after treatment, there is something here for you. Episodes cover important topics such as what to expect after diagnosis, how to communicate with your healthcare team, managing side effects, and navigating the healthcare system. This means you can return to the information in your own time, absorb it at your own pace, and feel more prepared for the next step in your journey. š Listen to Upfront About Breast Cancer podcast here. šø A gentle reminder Some topics may feel emotional or challenging. Please take things at your own pace and look after yourself as you listen. Support is always available, the online community and our Helpline on the phones are here for you. Have you listened to Upfront About Breast Cancer? We'd love if you shared: an episode that stayed with you something new you learned a conversation you would like to hear in the future šŖ Your experience may help someone else going through a challenging part of their journey. We are stronger, together.š±Wednesday WellnessĀ -Ā 22Apr26 -Informed Decisions Reduce Anxietyš±
š§ Anxiety rises with the unknown, the unfamiliar, and the uncertain. But the flipside is that anxiety comes down with good quality information. ā Dr Charlotte Tottman One of the strongest tools to support you through breast cancer is good, trustworthy information. It does not remove uncertainty entirely, but it can make decisions feel stronger and anxiety around the unknown more managable. At BCNA, information and resources sit at the heart of everything we do, because being informed helps you feel more confident when making decisions about your body, your treatment, and your wellbeing. š What information can I access? BCNA's Information and Resources hub brings together a wide range of evidenceābased information to support people affected by breast cancer at every stage of their journey. This includes clear explanations of different types and subtypes of breast cancer, treatment options and therapies, and what to expect before, during and after treatment. You will also find practical guidance on managing side effects, looking after your physical and emotional wellbeing, navigating life during and after treatment, and understanding topics like genetic testing and clinical trials. Resources are available in multiple languages and formats, including booklets, fact sheets, articles and podcasts, so you can choose what works best for you and access information at your own pace. All content is designed to help you feel informed, supported and confident when making decisions. āļø Support when information feels overwhelming As you move through making your important decisions, whether they feel big or small, remember that you are not expected to know everything. Information can be explored at your own pace. If things start to feel overwhelming, BCNA's Helpline is always here. No question is too big, too small, we are here to help. We are available Monday-Friday, 9am-5pm AEST on 1800 500 258, and will listen first, then help guide you towards the information, support, or next steps that feel right for you. š Gentle reflection for today... We invite you to share below what information helped you feel more confident making decisions during your experience with cancer, or simply have a think and take a moment for yourself today. šJust need to talk to someone
Iām 59yo and newly diagnosed with breast cancer. Iām really not sure I get what is going on either because Iām just slow or itās just not all clear yet so I feel confused, in total panic and that Iām drowning and there is nobody to save me š¢ I am waiting for an mri this Thursday. I have a 10cm Not Special Type Grade 1 something positive to do with hormones and her2 1+. The surgeon says mastectomy is the only choice because of the size. There isnāt anything clear about what happens after thatā¦ is that how itās meant to be? I just feel very lost appreciate any words of wisdom for these circumstances? susanWorking while waiting for surgery
Hi all, was diagnosed 3 weeks ago today with early stage and was told Iād be having surgery pretty quickly. Ended up having to have more tests to eliminate issues in the other side and thankfully that all seems to be clear. But that has meant I still donāt have a date for surgery (I should find out tomorrow hopefully). My question is about how youāve all kept sane during this ālimboā period. My emotions and anxiety are all over the place, I canāt really focus or concentrate so Iāve taken a fair few days off work. Iām lucky enough that I can work from home (when Iām up to it) and my boss is awesome but I weirdly feel guilty about taking time off as though I should be managing this better. Iām conscious my surgery might not be for another few weeks so feel I need to work out better ways to handle this. Any inputs welcome! Thanks.
Heavy lifting after surgery
Hi all Im 17 days post bilateral mastectomy and recon. I have a 3 yr old and a 1 year old. My husband is doing all the lifting etc but today I forgot myself and picked up my 3 year old. I instantly remembered and went to sit down with her. Im not in any pain and nothing on the outside seems to be affected. has anyone done this and if so, what signs do I need to watch out for with messing up recovery? thank you
Being flat chested :(
I have had my prothesis in ,firstly my right breast for 25 years, and then my left breast for 20 years . I so want to take them out. They have been in there a long time. And have helped me feel like I still have my breasts. But I want to remove them forever.I feel that having the prothesis in for such a long time is not healthy..... But I don't want to be flat chested. I know I should be proud to be a woman without breast. I know breasts do not determine who I am. I have watched shows about being flat chested. I really don't think I can do it. I love feeling like a woman and looking like a woman. Yes, I can get bra implants etc. Fake breasts. But I just can't be forever flat.....It's so confusing my head. Is there anyone else out there who feels the same ?
First appointment since diagnosis
Hi Lovely Ladies, I have my first appt on wednesday at Peter Mac and was wondering if anyone else went to Peter mac and what their experience was with the first appointment. Im hoping to come away with some dates of appointments to start my journey or am I being unrealistic and is it just really an information session? Thanks in advanceNewly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel Iām in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. Iāve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. Iām worried that itās just growing/spreading as I wait. I donāt have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. Iām really struggling wondering if I should have gone private and quick :-( Thank you x
