Newly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel I’m in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. I’ve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. I’m worried that it’s just growing/spreading as I wait. I don’t have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. I’m really struggling wondering if I should have gone private and quick :-( Thank you x
DCIS, DMX reconstruction new diagnosis
Recently diagnosed DCIS Stage 0. Opting for DMX and reconstruction using my tummy fat same day…. Videos and some social media groups are TBH quite confronting and disturbing. I would rather know but….. Reading and hearing how awful the recovery is, pain, discomfort, loss of movement and after some helpful tips to prepare please: particularly diet, did you change your diet pre surgery? High protein to help with recovery? Can you recommend a website or recipe site? Things post surgery: hire a recliner to rest in, did you hire a wedge or breast pillow as well? Button up shirts and pjs, anything else that you found useful please? I’ve heard about the drains which sound daunting… what do i need to do with them? Toileting and cleaning myself… I hear you can’t put your arm around your back to wipe? I’ve got wet wipes but …. Don’t want to ask my partner to wipe my bum? Diet after surgery to avoid constipation. Any tips would be greatly appreciated thank you so so much.
Looking for nutrition/natural medicine recommendations
Hi all, Absolutely hating this journey to be honest. Single mum of two auDhd teens. It’s been hell. I’m angry and don’t feel I’ve accepted any part of this. I’m just recovering from double mastectomy and now waiting to see if I need chemo/herceptin. Waiting waiting forever waiting. That’s one of the worst parts. Anyway, just wondering if any of you know any good online nutritional medicine/naturopaths etc who use good evidence based practice to help me navigate through this **bleep** show? I start ovarian suppression and AIs next week, before going back for more surgery because my nipple is now on the banned list 🙄 Many thanks and all the love in the world to you all xxxxx
Too Fat for flap breast reconstruction
Hi all just wanted to make people aware that after having a double mastectomy I was told I am To Fat/ overweight to have flap reconstruction despite having gastric sleeve, optifast mounjaro their expectation was to be ideally 80-85kg which I have never been even when playing sports. I just wanted to make people aware that if you have had a double mastectomy and may need a flap reconstruction and are on the heavier side please be aware of weight expectations. I don't think my body agrees with silicone implants.
Whats going to happen next
as the heading states what next. I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i could Just get life to stand still or at least for once be nice. It seems the whole family is falling apart. 1st daughter is waiting for shoulder reconstruction she has in layman’s terms laxity of the joints already had a knee reconstruction this surgery Dr cant say its going to completely successful 2nd daughter is having major health issues (she has chrons disease, a heart problem plus other complicated health problems all of which are acting up at the same time. She carries a letter for emergency so they don’t have to ask so many questions My Only Son is now on short list for surgery for a shoulder that’s hanging on by a thread of just 1 tendon. ( came off his bike). His wife got admitted to hospital yesterday with several Kidney stones that are not going to pass so she’s in there waiting for a stent then follow up surgery to have them blasted. I’m back on my palbociclib and trying to adjust to the side effects again after such a long break. To top it off I have a new lump on a different rib which wasn’t painful before but now is hot to touch and radiating pain around it. Oncologist had a feel and immediately wrote up a referral for a bone scan asap and I am still trying to recover from the GB surgery Its a bit of where do I go, how do I spread myself around to them all, I want to divide myself into pieces so I can help them all. then my body reminds me I’m not 100% fit either.Raelene Boyle on Julia Zemiro's Home Delivery today (repeat)
Raelene Boyle has been a huge advocate for Breast cancer since her own diagnosis with BC nearly 30 years ago - what a GREAT spirit she has! Oh My Gosh ... I can relate to SO many things that she discusses with Julia Zemiro! LOL Raelene was diagnosed at the same time that the founder of BCNA, Lyn Swinburne was first starting her support for women with breast cancer (out of a Bakers Delight office!) just under 30 years ago. She was then diagnosed with Ovarian Cancer, twice, then Epilepsy! She is still going strong & is an Ambassador and founding board member of BCNA: https://www.bcna.org.au/resource-hub/podcasts/upfront-about-breast-cancer/upfront-about-breast-cancer/episode-21-raelene-boyle-on-pulling-herself-out-of-the-darkness/ You can watch her interview with Julia Zemiro on ABC here: https://iview.abc.net.au/show/julia-zemiro-s-home-delivery/series/6/video/LE1761H006S00
Baring all
News story about showing off the scars doesn’t consider the trauma of seeing this. There’s a lot of discussion about bringing breast cancer to the attention of the public. With one in seven women likely to experience this disease I’d think it was already noticed, without having women undress to show scars. Also some of us don’t appreciate being reminded. And some think their medical history is a private matter. I was having a coffee with a dozen people in a cafe when my friend casually announced to everyone that I’d had breast cancer. Why is this okay?
Working while waiting for surgery
Hi all, was diagnosed 3 weeks ago today with early stage and was told I’d be having surgery pretty quickly. Ended up having to have more tests to eliminate issues in the other side and thankfully that all seems to be clear. But that has meant I still don’t have a date for surgery (I should find out tomorrow hopefully). My question is about how you’ve all kept sane during this ‘limbo’ period. My emotions and anxiety are all over the place, I can’t really focus or concentrate so I’ve taken a fair few days off work. I’m lucky enough that I can work from home (when I’m up to it) and my boss is awesome but I weirdly feel guilty about taking time off as though I should be managing this better. I’m conscious my surgery might not be for another few weeks so feel I need to work out better ways to handle this. Any inputs welcome! Thanks.
