Whats going to happen next
as the heading states what next. I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i could Just get life to stand still or at least for once be nice. It seems the whole family is falling apart. 1st daughter is waiting for shoulder reconstruction she has in layman’s terms laxity of the joints already had a knee reconstruction this surgery Dr cant say its going to completely successful 2nd daughter is having major health issues (she has chrons disease, a heart problem plus other complicated health problems all of which are acting up at the same time. She carries a letter for emergency so they don’t have to ask so many questions My Only Son is now on short list for surgery for a shoulder that’s hanging on by a thread of just 1 tendon. ( came off his bike). His wife got admitted to hospital yesterday with several Kidney stones that are not going to pass so she’s in there waiting for a stent then follow up surgery to have them blasted. I’m back on my palbociclib and trying to adjust to the side effects again after such a long break. To top it off I have a new lump on a different rib which wasn’t painful before but now is hot to touch and radiating pain around it. Oncologist had a feel and immediately wrote up a referral for a bone scan asap and I am still trying to recover from the GB surgery Its a bit of where do I go, how do I spread myself around to them all, I want to divide myself into pieces so I can help them all. then my body reminds me I’m not 100% fit either.
Immune system lowered
Hi Everyone, My oncologist transferred me to Aromasin mid April. I had been on Tamoxifin then Letrozole (which did not agree with me at all) previously. Since changing to Aromasin my immune system seems to be very low. In the last 4 weeks I have had a chest infection, a cold, laryngitis and finally tested positive for Covid last Sunday. I'm normally very healthy and maybe catch a small sniffle once a year. Has anyone else found themselves in the same situation and how have you dealt with it? I'm not dealing with it very well. I only need to look at someone and I seem to get sick. Thanks x
New diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first mammogram 18 mths previous which was clear. I felt unwell at work & went to hospital and they found it looking for something else. It has been such an overwhelming process. My family & friends have been amazing but am feeling so very alone.
Radiation tips?
Hi, I have no idea how to negotiate this platform so forgive me if this turns up in the wrong place… I’ve lobular invasive -had lumpectomy & 10 lymph nodes removed. Hellish pain with seromas after the latest op.. anyways .. radiotherapy starting next week for 3 weeks.. any tips, things to be aware of?? It’s been such a rollercoaster I think I’m still processing ..
Sad and lonely
Hi everyone. I’m new here, recently diagnosed with high grade DCIS. I had a wide excision to remove the DCIS and margins. Results showed small amounts of invasive cancer in the margins, so a week ago I had another surgery to remove that invasive tissue and a few lymph nodes. I’ve been coping with everything pretty well and have a loving supportive family. I also have a huge network of friends. However, today, I’m sad. Like tears won’t stop. I haven’t had anyone visit me this week - I get it, people have lives and are busy, but I feel forgotten and as if people think it’s all over now… I don’t get results from second surgery until 2 June so the waiting is torture. I don’t understand why I am being so unreasonable about the lack of visitors!! Does anyone else feel this way? I also have a colleague going through BC treatment. She had a double mastectomy and is amazing- turns up to work straight after her surgery and seems to be coping so well. I feel like I can’t be honest about my feelings at work as my diagnosis is not that bad. Again, this makes me feel so selfish!
Is everyone sleeping or just not posting?
Hi there Not sure at what point I go from newly diagnosed (August 2024) to more? Or if I’m no longer considered “new” if I’ve just had surgery early October? Like many others I’ve been busy just getting ready and preparing and being overwhelmed. These few days post surgery at home are the time I can now think. Only I can’t really think, it’s just blank and nights are the worst.
Fluoxetine and Letrozole
Hello folks, I'm wondering if there is anyone in this community with experience of low mood being exacerbated by Letrozole. I have been on Fluoxetine for many years but am finding after six months on Letrozole my mood has become very low. Does anyone have a similar experience and what have you done to alleviate it? I have an appointment with a GP to ask about it but would like to read about other's experiences and fixes.
Instagram Fam?!
Hi all :) I was just wondering if anyone else is sharing their Breast Cancer journey over on Instagram? I set up a page recently as I want to spread awareness about the realities of treatment & survivorship. I didn't quite have it in me as I went through the first part of my treatment (2 x surgeries, chemo & rads) to share as I went, but now i'm in the next phase (Ribociclib for 3 years + Zoladronic Acid 6 monthly + a bunch of other meds from side effects) I am starting to share more & recount my experiences. It's been lovely to connect with others as well. If anyone would like to follow you can find me at @breastcancerbanterRecovery with other chronic illness/disease
I'm through treatment (surgery and radiation) and the stress of making the huge decision not to take AI’s (pure mucinous carcinoma) and. Y onco team is fine with that. But I suspect like many, breast cancer is not my only life or health issue. Five weeks after radiotherapy I’m so fatigued I’m having trouble doing much. I also have diabetes, severe kidney disease and heart failure, the latter managed by a device that restricts my heart rate range. Not whinging as these are things I have under fairly close to optimal control. And it is what it is. But I don’t know how to get past this fatigue. I'm exercising in small doses, increasing strength training (also in small doses) but my zest for life has disappeared. Is this normal? I usually paint, and crochet and garden and cook and read and play my guitar. Not sure where to turn to or whether to just wait it out in hope. I’m either under or overdoing it. Ideas?
