Just need to talk to someone
I’m 59yo and newly diagnosed with breast cancer. I’m really not sure I get what is going on either because I’m just slow or it’s just not all clear yet so I feel confused, in total panic and that I’m drowning and there is nobody to save me 😢 I am waiting for an mri this Thursday. I have a 10cm Not Special Type Grade 1 something positive to do with hormones and her2 1+. The surgeon says mastectomy is the only choice because of the size. There isn’t anything clear about what happens after that… is that how it’s meant to be? I just feel very lost appreciate any words of wisdom for these circumstances? susan
Working while waiting for surgery
Hi all, was diagnosed 3 weeks ago today with early stage and was told I’d be having surgery pretty quickly. Ended up having to have more tests to eliminate issues in the other side and thankfully that all seems to be clear. But that has meant I still don’t have a date for surgery (I should find out tomorrow hopefully). My question is about how you’ve all kept sane during this ‘limbo’ period. My emotions and anxiety are all over the place, I can’t really focus or concentrate so I’ve taken a fair few days off work. I’m lucky enough that I can work from home (when I’m up to it) and my boss is awesome but I weirdly feel guilty about taking time off as though I should be managing this better. I’m conscious my surgery might not be for another few weeks so feel I need to work out better ways to handle this. Any inputs welcome! Thanks.
Heavy lifting after surgery
Hi all Im 17 days post bilateral mastectomy and recon. I have a 3 yr old and a 1 year old. My husband is doing all the lifting etc but today I forgot myself and picked up my 3 year old. I instantly remembered and went to sit down with her. Im not in any pain and nothing on the outside seems to be affected. has anyone done this and if so, what signs do I need to watch out for with messing up recovery? thank you
Being flat chested :(
I have had my prothesis in ,firstly my right breast for 25 years, and then my left breast for 20 years . I so want to take them out. They have been in there a long time. And have helped me feel like I still have my breasts. But I want to remove them forever.I feel that having the prothesis in for such a long time is not healthy..... But I don't want to be flat chested. I know I should be proud to be a woman without breast. I know breasts do not determine who I am. I have watched shows about being flat chested. I really don't think I can do it. I love feeling like a woman and looking like a woman. Yes, I can get bra implants etc. Fake breasts. But I just can't be forever flat.....It's so confusing my head. Is there anyone else out there who feels the same ?
First appointment since diagnosis
Hi Lovely Ladies, I have my first appt on wednesday at Peter Mac and was wondering if anyone else went to Peter mac and what their experience was with the first appointment. Im hoping to come away with some dates of appointments to start my journey or am I being unrealistic and is it just really an information session? Thanks in advance
Newly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel I’m in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. I’ve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. I’m worried that it’s just growing/spreading as I wait. I don’t have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. I’m really struggling wondering if I should have gone private and quick :-( Thank you xNew diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first mammogram 18 mths previous which was clear. I felt unwell at work & went to hospital and they found it looking for something else. It has been such an overwhelming process. My family & friends have been amazing but am feeling so very alone.
New to the Team- not exactly happy about it
Hi, 03Dec had a lump checked- invasive lobular cancer, left breast. 09Dec- MRI and spot detected right breast followed by biopsy- same cancer although non-palpable. 19Dec bilateral partial masectomy plus sentinel lymph nodes, and conservative reconstruction. 04JAN results back- MBC!!!!!....PETscan tomorrow. I feel like I am standing in a well listening to grenades go off. I don't know how I got here although I don't think that matters. I am terrified for the future and how short it may be, but then I see some of you with MBC post 6 years,or 9 years, diagnosis and I wonder if that could be me. I used to be a microbiologist before I moved into law (these days I manage risk-imagine managing risk for a living and getting this diagnosis!). I read about the science which is ever changing and getting better at longevity and quality of life and the personalised approaches available for my situation (whatever that turns out to be) but I don't know when the sadness and fear will stop or if this is my life now. I know I am not dying this week or next week or even next year, but the overwhelming feeling is that I might, and so I have organised a council pick up and getting rid of all my furniture that isn't essential, and giving away or selling my clothes BCS I can't see which way is forward, or if there even is forward. I contacted my BCN today and asked for a psychologist BCS I need something to hold onto and this diagnosis vortex is chaotic.
Cording/axillary web syndrome
Hi everyone, it's been a long time since my last post and so much seems to have happened in my life in that time. After having a lumpectomy and axillary lymph node removal on the right side, July 2024, I undertook chemo and radiation. Since then it's been medication treatment with Letrozole (hormone lowering) and Verzenio (cancer blocking). I've undertaken some gym working, focussing on weights to build bone strength but still have residual side effects from all the treatments. I've been to my lymphatic physio yesterday and she informs me that I have axillary web syndrome which is travelling from my affected breast down the fascia of my ribs. Quite painful! And after her massage (sounds nice, but wasn't! 😩) I was wondering how many of you might have had the same? Do you have any tips that could help me please? It's lovely to reconnect again and hope to hear your story. ☺️ JoSo confused, scared and teary
Hi all, I was just diagnosed yesterday with DCIS intermediate grade 2 and told to get off my HRT patches immediately. I have 3 areas in the one breast so I think i will need a masectomy. I have been contacted by Peter Mac in Melbourne regarding my referral and just waiting on confirmation of my appointment date. My brain is saying if I had to have cancer this is the one to get but my emotions are being ridiculous, so teary inside but cool and calm on the outside trying to support everyone else. If I do need a masectomy i want to have reconstruction surgery on the same day with a small implant but Im so worried as 6 months ago I was let go at work due to business downsizing and ive really struggled to find another job, my mum has just passed away and any savings I had have helped with the funeral etc so basically I am seriously going through hardship and only just paying my rent on my job seeker payment. I am so scared that I will find out going through this process there are some unexpected charges that arent included, all the sites say peter mac is free and I am bulk billing but Im so scared that my health is going to held back due to financial stress. Has anyone had this process done at peter mac, chose the medicare bulk billing option and was their reconstruction covered? Sorry Im really rambling here but its so much easier to type this to a stranger than someone I know. xxxxx
