First appointment since diagnosis
Hi Lovely Ladies, I have my first appt on wednesday at Peter Mac and was wondering if anyone else went to Peter mac and what their experience was with the first appointment. Im hoping to come away with some dates of appointments to start my journey or am I being unrealistic and is it just really an information session? Thanks in advance
Newly Diagnosed WA
Hi, I have just been diagnosed with invasive ductal carcinoma. I have decided to have a double mastectomy. I live in a regional town in WA so I will be flying to Perth for the surgery. Any advice for preparation for surgery. Will I need propping pillows to sleep post surgery. I am staying in Perth post op for 14 days to allow for the nurse care of drains. Has anyone else done this in Perth?
Not sure
I was diagnosed with invasive ductal BC stage 2 ER+PR a couple of weeks ago lymph nodes do not seem affected for now ( biopsy was negative). My breast are small and MRI showed ~4cm cancer. I was wondering if mastectomy + reconstruction and possibly no radiation therapy was better than lumpectomy + radiation. Not sure what to do🤔
Breast cancer diagnosis- did you have a Mirena in place, like me?
I was diagnosed with breast cancer 3.5 months ago and had a double mastectomy 3months ago. I am 44 years old. I started doing some research as a number of people I know with breast cancer who were young also had a Mirena. There is new research coming out of: -Europe that indicates that there is a 40% higher risk of breast cancer if you had a Mirena, and -Germany that shows that the Mirena can change hormone levels in the breast based on scans I had breast ultrasound scans that show I did not have breast cancer just before my Mirena was inserted 5 years ago, and that it developed post Mirena insertion. I had no genetic factors (based on testing), and no risk factors for breast cancer. It seems highly co-incidental. I also looked up the FDA documentation for Mirena approval and it states that "Spontaneous reports of breast cancer have been received during postmarketing experience with Mirena. Because spontaneous reports and voluntary and from a population of uncertain size, it is not possible to use postmarketing data to estimate the frequency or establish causal relationship to drug exposure..." I am keen to connect with other women who had a Mirena in place and then were diagnosed with breast cancer. If this is you, please respond to this post- I would love to hear your story!So confused, scared and teary
Hi all, I was just diagnosed yesterday with DCIS intermediate grade 2 and told to get off my HRT patches immediately. I have 3 areas in the one breast so I think i will need a masectomy. I have been contacted by Peter Mac in Melbourne regarding my referral and just waiting on confirmation of my appointment date. My brain is saying if I had to have cancer this is the one to get but my emotions are being ridiculous, so teary inside but cool and calm on the outside trying to support everyone else. If I do need a masectomy i want to have reconstruction surgery on the same day with a small implant but Im so worried as 6 months ago I was let go at work due to business downsizing and ive really struggled to find another job, my mum has just passed away and any savings I had have helped with the funeral etc so basically I am seriously going through hardship and only just paying my rent on my job seeker payment. I am so scared that I will find out going through this process there are some unexpected charges that arent included, all the sites say peter mac is free and I am bulk billing but Im so scared that my health is going to held back due to financial stress. Has anyone had this process done at peter mac, chose the medicare bulk billing option and was their reconstruction covered? Sorry Im really rambling here but its so much easier to type this to a stranger than someone I know. xxxxxSurgeon & Hospital Choices Melbourne
Hi, I am recently diagnosed with DCIS and 75 years old. I live in Melbourne and need to select a Surgeon and Hospital for either a Lumpectomy or mastectomy. Does anyone have experience with Cabrini or Epworth and also with the surgeons Sarah Kemp or Melanie Walker?Emotional speed bumps
Hi, I'm trying to figure out how to prepare for life post-mastectomy. I got my diagnosis a week ago and have been managing well, but then I tried to join a FB group for people going flat and got hit hard by a gatekeeper question. The question was something like, "Have you had a mastectomy?" Options: 1. Yes 2. No, but I'm looking at my options 3. No, but I am supporting a loved one who has. The curious thing is that I felt completely left out by this option list. I wanted the option: No, but I am about to. I got all teary and had to write about it. Funny what sets us off. Anyway, I would love some tips about clothes to wear during recovery that are easy to manage and don't make me stand out.DCIS, DMX reconstruction new diagnosis
Recently diagnosed DCIS Stage 0. Opting for DMX and reconstruction using my tummy fat same day…. Videos and some social media groups are TBH quite confronting and disturbing. I would rather know but….. Reading and hearing how awful the recovery is, pain, discomfort, loss of movement and after some helpful tips to prepare please: particularly diet, did you change your diet pre surgery? High protein to help with recovery? Can you recommend a website or recipe site? Things post surgery: hire a recliner to rest in, did you hire a wedge or breast pillow as well? Button up shirts and pjs, anything else that you found useful please? I’ve heard about the drains which sound daunting… what do i need to do with them? Toileting and cleaning myself… I hear you can’t put your arm around your back to wipe? I’ve got wet wipes but …. Don’t want to ask my partner to wipe my bum? Diet after surgery to avoid constipation. Any tips would be greatly appreciated thank you so so much.
Post surgery Rehab options
Hi all, hope you all are doing fine. I wanted to share my experience in y BC journey and also want to get some expert advice/ help if you have been thru this already. I was diagnosed with a stage 3 Triple positive BC last July. Since then I have been going through Chemotherapy and targeted therapy as advised my Breat surgeon and Oncologist. I recently completed my 6th cycle of Chemo and have my surgery scheduled this Saturday on. 6Dec. I will need to undergo full Mastectomy on my left. This will be followed by immediate reconstruction- will be a lengthy process I have been told. While understandably we are all nervous , I am also hopeful that I have been thru half of my battle. I am also a mother of two, and younger one is only 2.5 years old. I am also really anxious about the post surgery situation. My Doctor has told that I should not be taking stairs post surgery after I go back home. Given that I have little kids at home and none of our bedrooms are at downstairs, I am really keen to see if I can stay at a Rehab after I am released from the hospital. This would allow me to heal for few more days and would not endanger myself with the little one ( she jumps on to my lap anytime she wants). That would also help my husband who is my only carer at this stage. Love to get some ideas and advice how can I avail the Rehab facilities. I was also told by my Insurance provider that I have restrictive coverage for Rehab. I am in a tricky situation ( and am sure many of you are ) and wanting see what support can I get at this very difficult time. Many thanks and wish me luck!DIEP reconstruction or going flat
Good morning, I'm new to this site and I'm so glad I was referred to it. I've been diagnosed with HER2 positive last week and need to have a complete mastectomy on my left breast. Everything is moving quickly with my various appointments which I'm really thankful with. I'm now faced with the decision whether to have a DIEP reconstruction or going 'flat'. I realise this is a personal choice and everyone is different but I'm keen to hear how you made the decision to go flat and if you have any regrets as I'm leaning towards this option. I'm fairly active with swimming at the beach in Summer, weekly aqua aerobics, gym, walking. Thanking you for your support 🙏
