Forum Discussion

proggma's avatar
proggma
Member
2 months ago

Post surgery Rehab options

Hi all,

hope you all are doing fine. I wanted to share my experience in y BC journey and also want to get some expert advice/ help if you have been thru this already. I was diagnosed with a stage 3 Triple positive BC last July. Since then I have been going through Chemotherapy and targeted therapy as advised my Breat surgeon and Oncologist. I recently completed my 6th cycle of Chemo and have my surgery scheduled this Saturday on. 6Dec. 
I will need to undergo full Mastectomy on my left. This will be followed by immediate reconstruction- will be a lengthy process I have been told. While understandably we are all nervous , I am also hopeful that I have been thru half of my battle. 
I am also a mother of two, and younger one is only 2.5 years old. I am also really anxious about the post surgery situation. My Doctor has told that I should not be taking stairs post surgery after I go back home. Given that I have little kids at home and none of our bedrooms are at downstairs, I am really keen to see if I can stay at a Rehab after I am released from the hospital. This would allow me to heal for few more days and would not endanger myself with the little one ( she jumps on to my lap anytime she wants). That would also help my husband who is my only carer at this stage.

Love to get some ideas and advice how can I avail the Rehab facilities. I was also told by my Insurance provider that I have restrictive coverage for Rehab. I am in a tricky situation ( and am sure many of you are ) and wanting see what support can I get at this very difficult time.

Many thanks and wish me luck!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

children
mastectomy
Reconstruction
support groups
triple positive breast cancer

1 Reply

  • arpie's avatar
    arpie
    Member
    2 months ago

    So sorry to see you joining us here proggma​ - but you are in the right place to ask any question of us  ... and we'll do our best to help you out as we've 'been there, done that' xx  I hope you're going OK with your chemo, without too many side effects xx

    I'd suggest that you join both the Reconstruction group(Group: Choosing breast reconstruction | BCNA Online Network) and the Triple Positive group (Group: Triple Positive Breast Cancer (TPBC) | BCNA Online Network) so you can discuss some issues in private .... and you can still  post on the 'open forum' too.

    Is your surgeon aware that your bedrooms are upstairs & that you have young children?  Have you been assigned a Breast Care Nurse?  I would raise that question with both of them asap ... maybe even your chemo nurses, too, as they may be able to point you to the Occupational Therapist or the correct person that will be able to line up the rehab stay for you.  It makes really good sense to do that - so you can rest up, recover that little bit more & have the family visit you at rehab, with your youngest 'learning' not to jump on you just yet  xx .... 

    You might also like to check out this post that has a lot of info in it about the forum in general & some tips on what to take to hospital with you (like button up nighties, not 'over the head' ones ... for ease of getting in & out of) and lot of other valuable info.  We even have some 'funny bits' if you need a laugh xx
    https://onlinenetwork.bcna.org.au/discussions/general-discussion/a-big-welcome-to-all-new-online-network-members-/222737

    Take care & all the best for your surgery & ongoing treatment xx