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New to BCNA
Hi. I was diagnosed with bc in January. Ive had a single mastectomy and have round 4 of dose dense chemo on wednesday. I'm 37 and have no family history. I have 2 sons 13 and 14 and dont know anyone who has been through this, let alone anyone around my age going through this. I'm not usually a blog/forum type person but…
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I need a hug
Hi everyone, I thought I was coping pretty well considering the sucky state of my family's health at the moment. But today I've been thrown yet another curve ball. My surgery is on Friday 24 th and I was scheduled for the lymphoscintogram and needle localisation procedures to be done on the same day - pre my afternoon…
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Trying to join a group ....?
Hi everyone :) Just after some information - I'm trying to join the private reconstruction group. I have elected for a bilateral mastectomy with an immediate TRAM flap recon. Am meeting with the second PS on Wednesday and hopefully will be given a date soon!! This waiting sux - as I'm sure all on here know!! Would love to…
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uke players
who is our Uke players please
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Breast friends are vital when you’re diagnosed with breast cancer
Many people have told us that your whole world is turned upside down when you find out you have breast cancer, and it’s at that moment your support network becomes really important to you. Many people have also told us they were surprised and moved by the people who stepped up and provided real support. Those people who…
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What’s my prognosis doc? Artical by Sunil Jassal
https://www.suniljassal.com.au/post/what-s-my-prognosis I think it’s natural to ‘obsess’ about risk when you’re first diagnosed. I know personally I said to this wonderful surgeon (Sunil Jassal) ‘I have a husband and two children who need me, I need you to save my life!’ And 2.5 years on, I’m well, I don’t know what…
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Palbociclib
Please excuse my spelling guys, the names of these drugs do my head in! I have a friend who is currently taking this medication as a last attempt at slowing the progression of her metastatic cancer, she has been paying for this drug since the 26th of Feb out of her own pocket - 5k a month...it is now on the pbs from the…
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Phone Contact with Eastern Health Breast and Cancer Centre
Just wondering if anyone else has had difficulty contacting the Eastern Health Breast and Cancer Centre by phone? Maybe it's just me but every time I call I get transferred to an answer machine, either for appointments OR to speak to a Breast Care Nurse and am told someone will call back. And they usually do, however, I…
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Skin cancer after radiation
I finished 5 weeks of radiation just over a month ago and in the last week or so of treatment I had a sore appear on my upper arm on the side being treated. It didn’t go away and turned out to be a basal cell carcinoma which has now been removed, just wondering if anyone else had any skin cancer problems after radiation.…
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Today's election
I have just voted. My local member was at the poling booth. I told her that I would vote for her if she could guarantee that if her party was elected they would have more metastatic breast care nurses in the first month as government. She replied that she had done something about prostate cancer. She had also had some sort…
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Tamoxifen after a double mastectomy
I have had a mastectomy, chemo and another mastectomy is planned this year, was on Tamoxifen but suffered enormously from its side effects so currently taking a break and seriously considering staying off it altogether. I would be interested in peoples thoughts that have been in the SAME situation. My oncologist…
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Octobers coming
So here we are in May 2019, 6 months away from October’s Breast Cancer month. Just wondering if given 6 months notice before the October campaign if the organisers such as BCNA, NBCF, McGrath Foundation, Cancer Council Australia will do something about including MALES who also go thru Breast Cancer. Not just acknowledging…
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A New job!!! At Last!! But....................
Hi All, Well its taken a long time but I have a new job!!! The only problem with it is the stupidly long hours ( 5 am to 3.30/4 pm) and its quite physical. Its only 4 days a week 2 days on 1 day off and a long weekend every 3 weeks, but I am really struggling with it. I am in bed by 8.00pm on my work days but can't sleep…
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Moving to Canberra-public or private?
Good morning all, we we will be moving to live in Canberra in approximately 8 weeks. This is for a new role my husband has just been offered. I have both a medical oncologist and surgical appointment prior to this and will ask for referrals. I am currently 4 months post op and have just completed radiotherapy. I have so…
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Unfortunately someone else always has worse news
Yesterday I started Cycle 2 Round 1 of 12 chemo treatments, it hasn't gone to bad. I just woke with it being a very emotional day, continually crying at any little thing but thankfully woke (haahaa as if sleeping happened) feeling much better today. Whilst I was having chemo in Cancer Clinics very comfy recliner my Aunt…