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Invasive Lobular Cancer (ILC)
Hi all, I have just discovered that ILC is lumped into general ductal breast cancer. America research have started to recognise there are huge differences. Treatment in Australia is the same as ductal cancer and even the metastasized areas are generally different to ductal cancers.. Australian research and recognition is…
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Lobular Carcinoma Advocacy Group
I don't do a lot of googling about BC but every now and then I dip my toes into the general morass of information. Now, I may have come across this group before but, with my murky memory of last year, who knows? I did think it might be useful for others, though, so hence this post (although you may already know about it).…
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Support group meeting tomorrow
Our bc support group,Kellyville Breast Buddies,is meeting tomorrow at 10am.We have an amazing guest speaker,Louise Kohlmeyer-top lymphoedema specialist in NSW.
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sudden pain
had a lumpectomy last november, finished chemo - though still having 3 weekly Herceptin - finished radiotherapy 6 weeks ago and have been on Arimidex for a month. No problems and suddenly quite a bit of pain as the site of the lumpectomy. Is this normal? Should I call oncologist? Doesn't hurt as I move around and do stuff…
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Have you checked in with the Breast Cancer, Childlessness and Us Group ?
For ladies who do not have children, for whatever reason, this Group is a good additional resource. Recommend you apply to join if you have not yet done so.
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Triple Negative - persistent cancer cells after mastectomy.
Hello 👋 I am currently in hospital after having a double mastectomy, axillary clearance & reconstruction. The operation was quite a bit more intense than I imagined, so it’s thrown me around a bit. I’m coming good though after 7 days in hospital. The disappointing part is the pathology results.. Obviously I was hoping for…
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Guilty pleasures
It's been an interesting week. Physically challenging, it's also been quite tricky emotionally. There have been confessions and difficult conversations. Moments of triumph and others of deep sadness. We tell each other to be kind to ourselves, but that isn't always easy. Today, on a whim, I went and had a relaxation…
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New to BCNA
Hi. I was diagnosed with bc in January. Ive had a single mastectomy and have round 4 of dose dense chemo on wednesday. I'm 37 and have no family history. I have 2 sons 13 and 14 and dont know anyone who has been through this, let alone anyone around my age going through this. I'm not usually a blog/forum type person but…
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I need a hug
Hi everyone, I thought I was coping pretty well considering the sucky state of my family's health at the moment. But today I've been thrown yet another curve ball. My surgery is on Friday 24 th and I was scheduled for the lymphoscintogram and needle localisation procedures to be done on the same day - pre my afternoon…
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Trying to join a group ....?
Hi everyone :) Just after some information - I'm trying to join the private reconstruction group. I have elected for a bilateral mastectomy with an immediate TRAM flap recon. Am meeting with the second PS on Wednesday and hopefully will be given a date soon!! This waiting sux - as I'm sure all on here know!! Would love to…
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uke players
who is our Uke players please
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Breast friends are vital when you’re diagnosed with breast cancer
Many people have told us that your whole world is turned upside down when you find out you have breast cancer, and it’s at that moment your support network becomes really important to you. Many people have also told us they were surprised and moved by the people who stepped up and provided real support. Those people who…
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What’s my prognosis doc? Artical by Sunil Jassal
https://www.suniljassal.com.au/post/what-s-my-prognosis I think it’s natural to ‘obsess’ about risk when you’re first diagnosed. I know personally I said to this wonderful surgeon (Sunil Jassal) ‘I have a husband and two children who need me, I need you to save my life!’ And 2.5 years on, I’m well, I don’t know what…
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Palbociclib
Please excuse my spelling guys, the names of these drugs do my head in! I have a friend who is currently taking this medication as a last attempt at slowing the progression of her metastatic cancer, she has been paying for this drug since the 26th of Feb out of her own pocket - 5k a month...it is now on the pbs from the…
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Phone Contact with Eastern Health Breast and Cancer Centre
Just wondering if anyone else has had difficulty contacting the Eastern Health Breast and Cancer Centre by phone? Maybe it's just me but every time I call I get transferred to an answer machine, either for appointments OR to speak to a Breast Care Nurse and am told someone will call back. And they usually do, however, I…