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New here
hello everyone my name is susan I’m 51 and live in Tasmania just been diagnosed with HER2 positive stage 3 was abit of a shock have had a full on mth of test scans ultrasound pet scans ect having surgery on the 29th followed my chemo and radiation.its great to have somewhere to go for information and others that are or…
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Welcome New Members - 10th October 2024
Thankyou to everyone who has recently join our community: @tracyk @LuLua @Darby @Strawbz @Leslie_A @yharding @CarrieB @Aries @amch @Ally_B @sandrar @Maxiash @Birdsworth @wynette @Newgrandma @mamal @Shazzi @chersher @TiffyM @npolmans @Grid @elas1620 @Caithness @syrettmanda @ReggieO @anaprivado @SusieQuzie @HRM @SarahS0309…
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Prioritisation of prophylactic (preventive) mastectomy for people at high risk of breast cancer
BCNA Callout for your Help Under current national and state/territory guidelines for elective surgeries delivered through the public health system, a prophylactic mastectomy is treated as a Category 3 surgery holding a 365-day waiting period. BCNA is advocating for change because people at high risk of breast cancer…
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Radiotherapy - breast pain at night
Hello, I have heard a lot about skin changes and fatigue with radiotherapy but not much has been said about breast pain. I have only had 5 sessions, and I am having strange pains in the treated side - mostly at night. Looking for your experiences and of course will speak to my specialist. Thanks
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Baring all
News story about showing off the scars doesn’t consider the trauma of seeing this. There’s a lot of discussion about bringing breast cancer to the attention of the public. With one in seven women likely to experience this disease I’d think it was already noticed, without having women undress to show scars. Also some of us…
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Drain pain
Hi all I am two weeks post left nipple saving mastectomy on left with implant reconstruction. Pathology after surgery found cancer in lymph nodes so I had a lymph clearance one week ago. I have found the recovery from the lymph surgery so much more painful and my drain site seems to be where the pain is coming from. The…
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DCIS and HRT
I am was recently diagnosed with DCIS stage 1 - there is a lot to take on board - I am currently using HRT - which will be ceased very soon - I don't know what to use for menopause symptoms after HRT ceases - any ideas!!
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BYO Cold Cap?
Hi all, I have just found out that my hospital (Monash) doesn’t offer the cold cap for chemo. The breast care nurse I spoke to was very disparaging of them, saying there was no evidence they worked, which surprises me as they seem relatively common in better hospitals. She said the only option was to BYO frozen caps in an…
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Confused & Overwhelmed
Hi everyone I'm brand new & so overwhelmed. My nurse has passed on theses details & I'm looking to share my story, offer my support & hope my new sisters can help & guide me please. I've got a small 11 x 8mm cancer. Grade 2, invasive ductal, ER 95%, PR 95%, Her negative & I'm booked for surgery 24 October. I've been told…
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More on the Elle saga
Major debunking of one of Elle McPherson’s ‘medical advisors’ on the 7.30 Report tonight. Emphasises the importance of knowing real qualifications rather than the hype. Or the vibe!
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Incurable breast cancer numbers almost triple previous estimates. World first data
After 25 years of advocacy by BCNA, people with metastatic breast cancer (MBC) have finally been counted — at least in New South Wales. In a data breakthrough that far surpasses previous estimates, the Cancer Institute NSW has identified there are 7900 (7850 women and 50 men) living with MBC in NSW alone. This world-first…
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More information about Elle MacPherson's breast cancer treatment
For anyone who wants to know more about why Elle may have decided not to have chemotherapy. https://theconversation.com/elle-macphersons-breast-cancer-when-the-media-reports-on-celebrity-cancer-are-we-really-getting-the-whole-story-238231
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Nervous and new
Hi all. Im a 53 year old single mother of 2 adult children with an elderly mother who has been battling lung liver and bone cancer for the last 7 years. She lives an hour away from me with my awesome step father whom also is being treated for prostrate cancer. I was diagnosed as having grade 2 invasive ductal cancer 2…
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Hair colouring
Hi, I was diagnosed with Estrogen Positive & Her2 Breast cancer in March 2024. I had 14 weeks of chemo with a cold cap and managed to keep my hair. I had my double mastectomy 3 months ago followed by 3 weeks of radiation. I am still on immunotherapy until next year. I am wondering if anyone with a similar experience can…
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Inflammatory Breast Cancer
Moderator moved @MissL post from activity section to 'Newly Diagnosed':