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Newly diagnosed

Latest Activity: 17 hours ago

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Treatment and surgery

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Groups

Latest Activity: 3 months ago

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Whats going to happen next
as the heading states what next. I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i...
cranky_granny
2 hours ago
coping
94Views
0likes
8Comments
Every story counts
1 MIN READ 3,863 Queenslanders living with metastatic breast cancer have been counted, ending years of invisibility for this community and making sure they are seen and recognised in the health system for the f...
Mez_BCNA
5 hours ago
advocacy
awareness
metastatic breast cancer
news
support
33Views
2likes
2Comments
Annual screening - mammogram vs mri
Hi, I’m looking for advice or shared experiences. For annual monitoring (e.g. after a diagnosis of DCIS), has anyone been offered the choice between a mammogram with contrast and an MRI with contras...
aj456
17 hours ago
dcis
screening
320Views
0likes
10Comments
Cost of breast reconstruction
Hi, I had a mastectomy 2 years ago and am looking at reconstruction, my breast specialist referred me to a plastic surgeon. His quote has come in where I will be $16000 out of pocket after medicare ...
eberk
2 days ago
breast-reconstruction
105Views
0likes
2Comments
Triple positive invasive lobular carcinoma
Hi everyone Having been diagnosed February 2025 I have had surgery and now have my medical oncologist and radiation oncologist this week. My surgeon chose not to do neoadjuvent treatment . This is...
Donna_B
2 days ago
triple positive breast cancer
255Views
1like
8Comments
Notification of activity
Do you want to be notified when there is activity in the Online Network? You will automatically get a notification when someone comments on one of your discussions or a discussion you have partici...
Daina_BCNA
2 days ago
29Views
2likes
0Comments
Mastectomy/Diep flap reconstruction - What to prepare for
Hello, I am heading into hospital shortly for a Mastectomy with a DIEP flap reconstruction at same time. I am starting to prepare everything now, ie stocking freezer, ensuring I have everything at h...
melbgirl74
2 days ago
diep
mastectomy
post-surgery
Reconstruction
side-effects
30Views
0likes
1Comment
Hormone inhibitor treatment decisions
Sorry this is a long post. 70 year old, between August 2024 to April 2025 diagnosed DCI, PR+, ER+, HR -, R partial mastectomy and reconstruction, radiation, Anastrazole(such awful, awful side effect...
be_sage
3 days ago
treatment decisions
185Views
0likes
8Comments
Chemo treatment decision
I was diagnosed with IDC in my left breast in April 2025. I have had surgery and am now navigating treatment options. I had my tumour tested with the Oncotype DX test and it came back in the middle r...
LauraB27
3 days ago
chemotherapy
54Views
0likes
3Comments
How did I get here?
Hi everyone, what do I say…I am in shock! I felt it was time I reached out to the community as I’ve been reading all your posts the past few weeks and now I really need support and reassurance. I am...
LeanneO
3 days ago
anxiety
invasive ductal carcinoma
lumpectomy
lymph nodes
surgery
105Views
0likes
2Comments
Immune system lowered
Hi Everyone, My oncologist transferred me to Aromasin mid April. I had been on Tamoxifin then Letrozole (which did not agree with me at all) previously. Since changing to Aromasin my immune system ...
nicmaree
3 days ago
coping
Lower imune system
post treatment
50Views
0likes
2Comments
Emotional Guidance
Hello 👋 I was just diagnosed two weeks ago with HER2 Positive BC. I’m 36 yrs old with two young children and a wonderful husband. I’m struggling with the mental, emotional side of it all and won...
Rose1988
5 days ago
children
emotions
396Views
2likes
11Comments
Suggestions/Experience
Hi everyone, I’m looking for some advice or experiences from others who might have faced a similar situation. I was recently diagnosed with invasive carcinoma grade 1 and have undergone a lumpectomy...
Lana1
5 days ago
double mastectomy
lumpectomy
144Views
0likes
4Comments
Using 'the oil' for Exemestane side effects
Hi there, I'm curious to hear from people who've been using 'the oil' to treat side effects of hormone therapy. I've noticed people don't say the actual name of it, assuming it gets flagged?! To cu...
Gemini78
6 days ago
aromatase-inhibitors
hormone-therapy
side-effects
126Views
0likes
3Comments
New diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first ma...
mel51
8 days ago
anxiety
coping
emotions
triple positive breast cancer
611Views
1like
15Comments
Friday Update - 6th June 2025
3 MIN READ Hi everyone, Welcome to your Friday Update from BCNA's Online Network! As we wrap up May, we're excited to share the latest highlights and activity that have shaped our community last month. From...
BCNA_Mod
8 days ago
advocacy
awareness
brca1 and brca2
event
friday update
44Views
1like
0Comments
Lymphoedema compression bra cost
After months of trying to use a sports bra with a lymph flow pressure pad my lymphoedema physio has just recommended I move to proper lymphoedema compression bras and am gobsmacked at the cost. I ran...
Minka
9 days ago
lymphoedema
100Views
0likes
5Comments
Radiation tips?
Hi, I have no idea how to negotiate this platform so forgive me if this turns up in the wrong place… I’ve lobular invasive -had lumpectomy & 10 lymph nodes removed. Hellish pain with seromas after th...
Bron77
9 days ago
coping
emotions
post surgery
88Views
0likes
3Comments
Sad and lonely
Hi everyone. I’m new here, recently diagnosed with high grade DCIS. I had a wide excision to remove the DCIS and margins. Results showed small amounts of invasive cancer in the margins, so a week ag...
angea
9 days ago
coping
dcis
emotions
work
271Views
0likes
12Comments
Is everyone sleeping or just not posting?
Hi there Not sure at what point I go from newly diagnosed (August 2024) to more? Or if I’m no longer considered “new” if I’ve just had surgery early October? Like many others I’ve been busy just get...
sunrise_sunset
9 days ago
coping
early-breast-cancer
new-diagnosis
post-surgery
229Views
0likes
8Comments

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