Finally counted: A milestone for Victorians living with metastatic breast cancer
For the first time, Victoria has counted everyone living with metastatic breast cancer in the state, marking a major step forward for visibility, recognition, and support. New data released by the Victorian Cancer Registry (VCR) estimates that 4,461 Victorians are living with metastatic breast cancer, making them visible in the health system and ensuring their needs can are not overlooked. This achievement is the result of decades of consumer-led advocacy by Breast Cancer Network Australia (BCNA), collaboration with the Victorian Cancer Registry and Cancer Council Victoria, and the determination of women living with metastatic breast cancer who have long called for change. Read more via the link Finally counted: A milestone for Victorians living with metastatic breast cancerEvery story counts
3,863 Queenslanders living with metastatic breast cancer have been counted, ending years of invisibility for this community and making sure they are seen and recognised in the health system for the first time. When we recognise the real people behind the data, we can create positive change for all, and help shape better care, support and research for Australians affected by breast cancer. Now is the time for other state and territories to act, and make sure every Australian living with metastatic breast cancer is seen, heard, and counted. Read more via the link Landmark step for women with metastatic breast cancer in QueenslandFriday Update - 6th June 2025
Hi everyone, Welcome to your Friday Update from BCNA's Online Network! As we wrap up May, we're excited to share the latest highlights and activity that have shaped our community last month. From the inspiring 25th anniversary of the Pink Bun campaign to powerful advocacy efforts and volunteer celebrations, May has been a month of connection and support. Let’s take a look at what’s been happening across the BCNA network 🌸 Pink Bun Campaign – 25 Years of Support May marked the 25th anniversary of the Pink Bun campaign, a long-standing partnership between Bakers Delight and BCNA. From 1 to 21 May, bakeries across Australia turned pink to raise funds and awareness for Australians affected by breast cancer. Highlights included: 100% of Fun Bun sales donated to BCNA. Beanies and tote bags sold to support the cause. Pink Bun Parties hosted by schools, workplaces, and community groups. Over $2.4 million raised this year and still counting! You can watch BCNA's CEO Kirsten reflect on the success of the campaign via the link Thank you from the bottom of our hearts! 🧡 National Volunteer Week BCNA celebrated National Volunteer Week by recognising the incredible contributions of its volunteers. Their dedication helps BCNA provide vital support and resources to those affected by breast cancer. 📢Advocacy and Awareness BCNA have been highlighting concerns about women being denied knowledge of their increased breast cancer risk, advocating for better access to genetic information and screening. We welcome BreastScreen Australia’s new position statement says every woman should be told her breast density because it affects both your breast cancer risk and how easily it can be detected. Some states are leading the way, but others are still catching up. Every woman deserves to know her risk and have access to support, no matter where she lives. You can read via the link Australian women denied knowledge of their increased breast cancer risk 🤝BCNA Celebrating partnerships BCNA proudly celebrates 20 years of partnership with Sussan, one of our most dedicated Major Partners. Since 2005, Sussan has raised over $3.3 million to support BCNA’s vital services and resources for Australians affected by breast cancer We share a vision to ensure every Australian diagnosed with breast cancer receives the very best care and support. Together, we’ve celebrated many achievements and milestones, paving the way for a better breast cancer experience for all Australians – no matter where they live. State of the Nation Report: Sussan's funding of the State of the Nation report has driven significant policy changes and improvements in services for people diagnosed with breast cancer. This report was the largest of its kind and armed BCNA with the information needed to identify eight priorities for urgent action and to influence the necessary change in the healthcare system to address them. Looking ahead, Sussan are focussed on supporting BCNA’s work around risk-based and individualised screening processes, ensuring the 15,000+ Australian currently living with metastatic breast cancer are visible and counted, and enhancing BCNA's digital experience for those affected. Read more about this incredible partnership via the link https://www.bcna.org.au/about-us/our-partners/ 📺 Did you catch Compass episode, “The Breast Decision,” on ABC Australia? We’re so grateful for this powerful episode, which follows Lauren’s decision to stay flat after her breast cancer diagnosis and mastectomy, and how her family navigated learning they carry the BRCA2 gene. The episode demonstrates the importance of informed decision-making and feeling empowered, whether you choose to stay flat or have a reconstruction after mastectomy. This is essential viewing for anyone navigating breast cancer, BRCA decisions, or supporting a loved one. Watch now on Compass Series 39 The Breast Decision 🎉 Event Spotlight: REMINDER Carman's Fun Run is coming to Sydney in 2025! Carman's Fun Run SYDNEY 2025! REMINDER Carman's Fun Run is coming to Sydney in 2025! Join us on Sunday 21 September as Metcalfe Park, Pyrmont, turns pink as our partners at @carmanskitchen and @solemotive bring this fantastic event to a brand-new city. Whatever your speed, we have an option for you. Choose to join our 5km, 10km or half-marathon run, or gather your friends and family for the 5km Pink Lady Walk. If you register now, you’re taking advantage of the EARLY BIRD RATE! Be quick because this discount stops 29 April 2025. Click on the link to find out how to register Register Here 👉 Let us know what you liked, what you'd love to see more of, or just say hello! Take care and keep the conversations going! @BCNA_Mod TeamPink Bun is back!
Pink Bun is back! From today to 21 May 2025, at Bakers Delight bakeries across the country have turned pink to show their support for Australians affected by breast cancer Pink Bun 2025! Buy a Fun Bun, or even better, a 6 pack! 100% of sales go directly to BCNA and they're available at all Bakers Delight bakeries from 1 to 21 May. 🔗Find out how to get involved and find your nearest bakery via the link Support the Pink Bun Campaign 2025 You can also check out the broadcast on Channel 9's Today show earlier today Today Show Channel 9Australian women denied knowledge of their increased breast cancer risk
Approximately 10% of women have high breast density. At this point in time, thousands of Australian women are being denied important information about their breast health which could empower them to better understand and manage their risk of breast cancer. BCNA’s Director of Policy, Advocacy and Support Services, Vicki Durston, says Australia’s approach to population-based screening is not keeping pace with growing evidence that supports routine reporting of breast density. This due to the absence of national reporting standards and a lack of software in publicly funded screening services that can effectively measure breast density. “Every woman has the right to know and understand her breast cancer risk through standardised breast density reporting,” she says. “For those identified as high-risk or with high breast density, it is essential that clear options and pathways are available to support early detection and proactive risk management.” Breast Cancer Network Australia (BCNA) is currently advocating for a unified national approach to reporting breast density through Australia's national population-based breast screening program – BreastScreen. Mammography images showing the difference between spotting cancer in a fatty breast (top) vs dense breast (bottom). It's like "spotting a snowman in a snow storm". You can read BCNA's media release via the link Australian women denied knowledge of their increased breast cancer risk Read ABC's feature piece on our advocacy efforts: Mandatory breast density reportingHappy Volunteer Week!
Happy National Volunteer Week to everyone who dedicates their time to support people affected by breast cancer. You make BCNA’s impact so much bigger. There are so many to thank. From our office volunteers, Consumer Representatives, event volunteers, interns, specialist project volunteers and those who pack My Care Kits every day, to our Ambassadors, Health Professionals and the BCNA staff who volunteer outside of their paid work: thank you for your tireless work behind the scenes. We simply wouldn't be able to do what we do without the unwavering support, commitment, and passion of every single person who helps us in a voluntary capacity.Stop telling women they are too young to have breast cancer
Early-onset breast cancer now accounts for over one-fifth of all breast cancer cases in Victoria, with 1,067 diagnoses out of 5,197 breast cancer cases. The increase is indicative of a national trend. Breast Cancer Network Australia (BCNA) is calling for greater awareness, more research, and tailored prevention efforts to address the steady increase in breast cancer diagnoses among women aged 25 to 49, as highlighted in Cancer Council Victoria’s Cancer in Victoria 2023 report. For more information, read BCNA's Stop telling women they are too young to have breast cancer media release.Together for breast cancer - BCNA
With October being breast cancer awareness month, we wanted to share updates with you throughout! So simply scroll down this post to see updates within the comments! Breast Cancer Awareness Month starts today, and it’s the perfect time to get together with your community to support Australians affected by breast cancer. We love to see the Pink Sports Day clubs kicking off the month the right way with their #PLAY4BCNA activities. Here are a few fantastic photos from our Pink Sports Day hosts so far this year! Host your own Pink Sports Day with your club or school team this month by registering here https://www.bcna.org.au/host-a-fundraising-event/ Together we're helping all Australians affected by breast cancer.NAIDOC week
This NAIDOC week, we celebrate the power of storytelling in bringing about change. This is something we have learnt from the rich tapestry of our First Peoples’ traditions. At our annual consumer Think Tank event this year, proud Narungga man Colin Darcy from Cancer Council Victoria, spoke about the importance of *allyship and working together to improve health outcomes for First Peoples diagnosed with cancer. ‘Ongoing inclusion is the key to keep relationships going,’ says Colin. This week’s theme - Keep the Fire Burning! Blak, Loud & Proud - honours the enduring strength of First Peoples. It also serves to remind us that we cannot close the gap alone – we must be led by our First People, with both the community and the cancer sector standing behind it. Read more about Information for First Peoples via the BCNA website. * 'allyship' - actions, behaviours, and practices that leaders take to support, amplify, and advocate with others, especially with individuals who don't belong to the same social identity groups as themselvesFriday Update 12th October 2023
Greetings everyone, Welcome to the Thursday 'Friday Update'. We are into the swing of Breast Cancer Awareness Month here at Breast Cancer Network Australia (BCNA) and I will share several of the highlights we mention throughout the month of October. This month can bring different thoughts, feelings and reflections for many of you; please connect with the people in your life who support you (including the Online Network community). You can always reach out to the BCNA Helpline 1800 500 258. Check out our CEO Kirsten Pilatti's message about the significance of Breast Cancer Awareness Month https://youtube.com/shorts/TSg4si9iw-M?si=ARZqofcW2SFRXhKn Community Highlights September 2023 Activity During the month of September the Online Network had 68 new discussions; 430 comments and 17,832 visits to the community. Popular Forum Discussions If you have missed some of the most active discussions in September, you can check them out via the links below: IMPORTANT: BCNA's Online Network is getting a security upgrade 13th September 2023 Extensive DCIS Ice gloves - ideas needed please Treatment for post chemo soft nails Xeloda Posts by 'Category Name' September 2023 Featured Private Group 'Autism Spectrum Disorder (ASD) and Breast Cancer' Autism Spectrum Disorder (ASD) and Breast Cancer This private group was set up to connect people with Autism and a diagnosis of breast cancer. Feedback from members, is that often the additional challenges faced by someone with ASD while navigating a breast cancer diagnosis, are not always understood by all. This space will hopefully allow you to connect, support and share your experiences with others going through a similar journey. Community News Breast Cancer Awareness Month Breast Cancer Awareness Month provides the opportunity for us to draw attention to the ongoing impact of breast cancer on those diagnosed and their supporters. In our 25th year, BCNA continues to connect you with the information, resources, and support you need whether you are someone diagnosed, a family member, support person, or a health professional providing care. 'Living well, your way' A diagnosis of breast cancer looks different for everyone, and there is no one way to ‘live well’ during or following a diagnosis of breast cancer. Breast cancer affects people long after active treatment has finished. For some people, including those living with metastatic breast cancer, treatment never finishes. There are often long-term impacts of a breast cancer diagnosis. These impacts could be physical, psychosocial, or financial. It is likely that you will require different types of support at different times after your initial diagnosis of breast cancer. Living well, your way aligns to the third year of BCNA’s Policy and Advocacy Strategy, you can read more about how we use this strategy to advocate on behalf of our network here. Throughout Breast Cancer Awareness Month, keep an eye on our website or social media as we share resources and stories that can support you or someone you care for to live well. SWIISH WALK4BCNA - This Weekend! We invite you to this inaugural event proudly supporting Breast Cancer Network Australia (BCNA). The SWIISH WALK4BCNA will see registrants participate in a 4km or 8km walk around Metcalfe Park, Sydney followed by a family friendly festival. The festival will include food vendors, health and fitness retailers, SWIISH and BCNA merchandise, children’s activities, yoga, massage and other wellness activations including a chill out zone. BCNA’s signature Mini-Field of Women area will be a space where participants can pay tribute to those affected by breast cancer. We are excited to partner with SWIISH to bring you this fantastic event! Register now (Virtual walk option available) International Flat Closure Day - 7th October 2023 Staying flat and feeling stronger for it On Flat Closure Awareness Day read Grace’s story about her decision to not have a breast reconstruction after a mastectomy. Going flat is also called aesthetic flat closure (AFC). It involves chest wall reconstruction to create a smooth appearance with no extra skin left behind following a mastectomy for breast cancer. Aesthetic flat closure is an important option that should be discussed ahead of a mastectomy. It is important to have all the information you need to make an informed decision. “This decision needs to be about you – not anyone else. Remaining flat has had a positive effect on my mental health. I feel so much stronger, confident, and courageous”, says Grace. Read more of Grace’s story in the October edition of The Beacon: https://www.bcna.org.au/the-beacon/ Metastatic Breast Cancer Awareness Day- 13th October 2023 In the lead up to Metastatic Breast Cancer Awareness Day on 13 October, we recognise the work of Dr Sophie Lewis and her colleagues. Published in the journal Sociology of Health & Illness, Dr Lewis’ recent article explores some of the challenges those living with metastatic breast cancer may experience regarding social isolation. The article, which draws on interviews with 38 Australian women, highlights the importance of focusing policy and research attention on identifying new ways of supporting women with metastatic breast cancer, and those around them, to negotiate flexible social bonds, ensuring women feel secure and connected. Read the article, which supports our theme for Breast Cancer Awareness Month - Living Well, Your Way - here: https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704 Breast Cancer Trials Online Q&A: Triple Negative Breast Cancer - 24th October 2023 Breast Cancer Trials will be holding an online Q&A where you will hear from women with a history of triple negative breast cancer and from world-leading researchers on the latest in research and clinical trials to improve treatments and patient outcomes. Read more via the link Click here to visit the event website BCNA Forums/Webcasts Mission Beach Forum We are holding an Information Forum in Mission Beach on Tuesday 24 October, 9.00am - 3.00pm. This will be our last in-person Information Forum for 2023. During the event, you will hear from - Those with a lived experience of breast cancer Medical Oncologist, Dr Michelle White Clinical Psychologist, Chloe Oliver Sexual Health Physician, Dr Tonia Mezzini Exercise Physiologist, Jody Spicer Physiotherapist, Maebh Coleman Deirdre Maunsell, Breast Care Nurse We will cover current and emerging treatments, sexual health, strategies to enhance physical and emotional wellbeing and share local services and support with more speakers and topics to be announced shortly. You will have the opportunity to ask questions and meet others in your local community. You can register to attend in person or online. To register please click here. Books/Movies/TV Series/Documentaries Have you checked out our new website recently? https://www.bcna.org.au/ We would encourage you to check it out! Our new Information & Resources Hub allows you to easily search and filter the new website for the content you need. Hope you enjoyed the update. Please take care and if you have any questions or feedback please messaged of our Online Network moderators below: @Pat_BCNA @Mez_BCNA , @Risha_BCNA, @Denise_BCNA, @Daina-BCNA , @Georgie_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEST), alternatively you can email helpline@bcna.org.au The mod team - Mez, Daina, Pat, Denise and Risha "Alone, we can do so little; together, we can do so much" - Helen Keller
