Top Content
Category Content
Recent Content
First surgery coming up
Hi, I have a lumpectomy and removal of lymph nodes coming up. I have been given lots of information about the surgery itself, but they haven’t said anything to me yet about managing afterwards ie what bra to wear (or not), what I will and won’t be able to do etc. Does this get discussed before I leave the hospital? Is there anything I should be doing beforehand to prepare? TIA.
Expander to implant surgery
Hi, I’m looking for feedback on how long everyone had to wait to have their second surgery to replace the tissue expander with an implant. I’m being told that I’m now on a waitlist for ‘elective surgery’ that could take 12 months. Is this normal? I feel like I’m living in limbo and can’t even begin to recover or move forward until the second surgery takes place. I’m in NSW. This is my second breast cancer after my lumpectomy and radiation in 2018. Both times DCIS
Starting chemo this week: Doxorubicin, Cyclophosphamide and Pegfilgrastim then Paclitaxel
Hello everyone, this week I start chemo. As I understand it, 4 cycles of Doxorubicin, Cyclophosphamide and Pegfilgrastim then 12 cycles of Paclitaxel. I am looking for any advice and tips on how to get through it. We all know that experience and side effects are all different and individual but it would help to know how others have coped. I haven't had my introduction session with the oncology nurse yet and the fact sheet is a bit scary. I am in Melbourne and will be treated at St Vincent's private in East Melbourne as that is where my medical oncologist works. For the time being I am remaining a private patient as insurance covers it. I am choosing to try the 'cold cap' to see if it will help with not losing hair but as I have fine hair and already experiencing age related hair loss, it may not work. I know it will add about 2 hours to treatment and am willing to give it a go. My plan is to take audiobooks and colouring books with me to pass the time during treatment. I'm aiming to keep busy but not taxing myself too much. At this stage I do not plan to work on treatment days but do plan to work from home other days. A friend has suggested a probiotic as a precaution as a relation and her mother used one during their chemo and found it helpful. Has anyone else found this? With the second treatment and Paclitaxel I am concerned about the possibility of peripheral neuropathy side effects due to a previous condition. I read in another post that some ladies have tried cold gloves and socks - has that worked? I will have to look into it further but am curious and want to be prepared. Thank you all for reading and any advice and tips :heart:
Letrozole and high cholesterol
I'm struggling to reduce my cholesterol, it's always been a bit high and it's now jumped up to 7, yikes! I'm almost certain this has been caused by the Letrozole as it's a known side effect. I have a pretty healthy diet and pretty much follow the healthy heart diet, and have for years. I spent 6 weeks being even more strict and managed to reduce it by 0.04 😆 I'm giving it another few months, and picking up my extercise, and will then seriously consider taking statins, if I haven't managed to reduce it more. I've lost 10kg since diagnosis 2 years ago. My good collestrol is still pretty good. I think I'm kidding myself that it will get better, my husband eats pretty much the same as me, but with more biscuits, and his is perfect 🙄 Has anyone else had a similar issue?
Letrozole or Tamoxifin?
Hi Fellow Hormone blockers :-) Really need some advise , my situation 60yrs old with thin bones Had 15cms DCIS removed via mastectomy and a 5mm invasive cancer. The oncologist is giving me the choice between the 2 drugs for 5 years. If I was to go on Letrozole it will thin my already thin bones so would need to go on a drip 2 times a year with a bone strengthening drug in it also need permission from the dentist. Tamoxifin apart from the similar side effects it also can cause blood clots and uturus cancer, Im really conflicted. The oncologist is going to mail a lot of material out to me then in a months time we will make a decision. I really wanted to talk to the real people taking these drugs, your experience and if you have been on both your preference? Appreciate your help with this decision :-)Scalp cooling - tips on cap size and forehead pressure?
Hi all, I'm about to start my first of 12 x weekly paclitaxel treatments on Monday (combined with trastuzumab infusions every three weeks). I am keen to try scalp cooling to try to reduce hair loss and had gotten my mind around the cold factor (I think!). However, I had my chemo education session yesterday and got to try on a cap. I discovered that the cap alone for just a few minutes was very uncomfortable/slightly painful on my forehead and am now not sure how I'll go with this for several hours! The nurse did get me to then try the next cap size up, but this didn't seem to be as good a fit and had a gap at the back of my head - hence may not be effective. I also didn't have a headband on when I tried the first cap - so possibly this might also help a little. Just wondering if this tightness/pressure/forehead pain is normal or if anyone else has experience and tips on dealing with this? I noticed from other posts about scalp cooling that these seem to suggest the hardest period is the first 15-20 mins and then your head acclimatises/becomes numb. Just wondering if this also applies to the feeling of tightness of the cap? Or if there are any other tips on reducing pain/pressure on your forehead during the cooling process? I figure I'll give it a go anyway on Monday as I can always stop the scalp cooling if it is too much for me, but any advice would be very welcome!Take 3
Today, I found that my second surgery, a lumpectomy revision had revealed further IDC and multiple DCIS , none of which showed up in scans, or were too small to show. I initially was checked 2 years ago with nipple changes, but mammogram and ultrasound were clear. This time there was a definate lump, but still no clear view on mammogram or ultrasound. Biopsy proved cancer present and my April Fool's Day gift was my diagnosis. I had my first lumpectomy at the end of April and lost my nipple, areola and a kiwi fruit sized bit of me. Pathology showed 7 tumours and a plethora of precancerous DCIS. Revision 4 weeks later has revealed further tumours and DCIS and, since these didn't show up until pathology was reported, I was unaware, until today, that I must again have surgery. I have decided, when weighing options up, that mastectomy will remove any further " lurkers". I am back onto the roller coaster of waiting for admission date and dealing with my head and an impending infection. How will I learn to trust screening in future? I had always been regularly to Breastscreen even after I passed upper age limit. I suppose I might live long enough for newer diagnostics, 80 next year....and now I need my routine colonoscopy due to family bowel cancer. Just a wee bit morbid and muddled.xxcephalexin
hi all, i had a lumpectomy on my right breast about two and a half months ago, i recently got quite bad internal pains and an ultrasound found an infection (retroareolar abscess). i'm half way through my prescribed dose of cephalexin, which has hit me hard, like dizziness, weakness, tiredness, stomach pains, basically every side effect it could have is happening. i'm wondering if anyones had a similar experience with cephalexin and how they managed it? thanks!!Another surgery 😞
Hi all, I’m facing my 3rd surgery in less than 6 months. Margins were out by less than 2mm either side. To say I’m pissed is an understatement! But can’t risk leaving it. I was wondering if anyone has had local anaesthetic and/or sedation instead of general? I don’t recover well from GA. Much love to you all on your journeys x Anna
