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Radiation tips?
Hi, I have no idea how to negotiate this platform so forgive me if this turns up in the wrong place… I’ve lobular invasive -had lumpectomy & 10 lymph nodes removed. Hellish pain with seromas after the latest op.. anyways .. radiotherapy starting next week for 3 weeks.. any tips, things to be aware of?? It’s been such a rollercoaster I think I’m still processing ..
Sad and lonely
Hi everyone. I’m new here, recently diagnosed with high grade DCIS. I had a wide excision to remove the DCIS and margins. Results showed small amounts of invasive cancer in the margins, so a week ago I had another surgery to remove that invasive tissue and a few lymph nodes. I’ve been coping with everything pretty well and have a loving supportive family. I also have a huge network of friends. However, today, I’m sad. Like tears won’t stop. I haven’t had anyone visit me this week - I get it, people have lives and are busy, but I feel forgotten and as if people think it’s all over now… I don’t get results from second surgery until 2 June so the waiting is torture. I don’t understand why I am being so unreasonable about the lack of visitors!! Does anyone else feel this way? I also have a colleague going through BC treatment. She had a double mastectomy and is amazing- turns up to work straight after her surgery and seems to be coping so well. I feel like I can’t be honest about my feelings at work as my diagnosis is not that bad. Again, this makes me feel so selfish!Suggestions/Experience
Hi everyone, I’m looking for some advice or experiences from others who might have faced a similar situation. I was recently diagnosed with invasive carcinoma grade 1 and have undergone a lumpectomy with sentinel node biopsy. The surgery also removed areas of DCIS, and thankfully, the pathology report shows that all margins are clear. However, the report also found extensive LCIS (lobular carcinoma in situ), and now my doctor has presented me with two options moving forward: Undergo a double mastectomy to reduce future risk Or opt for regular screenings every 6 months for the rest of my life (mammograms, MRIs, etc.) I need to make this decision before starting radiation, and I’m feeling really torn. A mastectomy is obviously a big step, but ongoing screenings come with their own stress and uncertainty too. If anyone has had to choose between these options, or has any advice, experiences, or perspectives to share, I’d be really grateful to hear from you. Thank you
Letrozole - aches and pains continue
Last year I was switched from Tamoxifen to Letrozole. At first I was feeling okay on the Letrozole but then I had a post menopausal heavy bleed (thats a whole other story), so had a medication holiday. When I resumed the Letrozole I started to ache and have body pains constantly, usually at night which resulted in ongoing fatigue. I saw my doctor who advised to stop taking the Letrozole - I was 4 years post breast cancer at this stage, so it was felt, as my initial prognosis was good, this would be okay. My issue is now, 6 weeks after ceasing the Letrozole, I still get the body aches and pains. It seems to be getting slightly worse. Does anyone have any experience of ceasing the meds and how long does it take to start feeling pain free?
Perth Breast Reconstruction Support Group Lunch
Join us on Saturday 28th June 12:30pm Herdsman Lake Tavern Wembley to meet with other ladies who have done reconstruction. Simone Hall the tattooist will be there to answer your questions about 3D nipple tattooing & you can purchase her temporary 3D nipple tattoos to see what a huge difference those circles of colour will make. You may bring a female friend for company - you will find us in the function room. We are a very informal friendly group - so bring your questions along and get realistic answers of what to expect.
Hormone inhibitor treatment decisions
Sorry this is a long post. 70 year old, between August 2024 to April 2025 diagnosed DCI, PR+, ER+, HR -, R partial mastectomy and reconstruction, radiation, Anastrazole(such awful, awful side effects ) 4 months then Exemestane 2 months. Completely crashed from side effects of Aromatase Inhibitors, had to stop multiple antidepressants in preparation for Tamoxifen, so crashed even further, quality of life so low only my family kept me here. Stopped Exemestane end of March couldn’t keep going. All this on top of Fibromyalgia, chronic pain, major long standing treatment resistant depression. Have been having positive ketamine pain management treatment and psychological support from onco-psychologist and with concerned calls from onco-endocrinologist and clearer mind realise have realised that i need to review my treatment decisions. I am still scared of restarting Exemestane but more afraid of Tamoxifen side effects. I’m due to see endocrinologist in 2 weeks to discuss what to do next but am appealing to you all to suggest some options or feedback so I go with as much information as possible.
Cost of breast reconstruction
Hi, I had a mastectomy 2 years ago and am looking at reconstruction, my breast specialist referred me to a plastic surgeon. His quote has come in where I will be $16000 out of pocket after medicare and private health rebate. I think this is really quite costly. Should I go back to my specialist and ask for a referral to another plastic surgeon or is this the going rate?Going flat after implant rapture
Hi All I had a bilateral mastectomy 8 years ago with expanders and silicone implants (aged 48 at that time). Here I am 8 yrs on and find I have had a implant rapture and now have silicone in my axillary, clavicle and chest lymph nodes. Rapture likely 12 mths ago due to spread of silicone, that is why its called a silent rapture. I had the mastectomy to not live in fear of getting breast cancer (as my mother had it twice) and I had a young son. Here I am now living in fear of what the silicone toll will take. Have received advice and can do reconstruction but would need to use flap under arm area as well as implants as the skin is thin due to expanders from first reconstruction for a swap out or I am thinking go flat. Going flat will prevent the fear of further possibly of another rapture and more silicone in my system. If I had have been told 8 yrs ago I could have the mastectomy to prevent cancer but they cant reconstruct I would have still had the mastectomy so I am coming to terms with the flat chest option. Has anyone on this forum had reconstruction with implants then gone flat later? Any advice, regrets, experience with prostheses double breasts at all?Genomic Testing experiences
Hi all, I’m a 46 year old mother of two older teenage boys and was diagnosed with breast cancer in April 2025. I have since had a lumpectomy and sentinel node clearance and been advised I had Stage 1 Grade 2 invasive ductal carcinoma with lobular features with clear margins and no node involvement. My tumour was 16mm and is ER/PR positive and HER2 negative. I saw my medical oncologist on Friday and we discussed will be radiation and hormone therapy with Tamoxifen for up to 10 years if I tolerate it. My online prediction is that chemo will be of no benefit to me but my oncologist did discuss the genomic testing and that it was my decision as to whether I have it or not but if I did want to go ahead I would need to make a decision quickly as I am already nearly 3 weeks post op. I am looking for advice or peoples experiences as to if they were offered the test and what they did. I know everyone is different and that the cost would be prohibitive for a lot of people. We can afford to do it but I’m unsure as to if it is a good idea or not. thank you in advance for any advice or experience you’d like to share and good luck with all your journeys x
