Top Content
Category Content
Recent Content
Day 2 Post-Op
I am day 2 post wide local lumpectomy, 2 lesions removed. I can say that I had an overall great experience so I am counting myself very lucky. I thought I would outline my day as it might help others know what might happen. I had to be at the hospital admissions desk for 0630, which wasn't too bad really - at least the rush hour traffic wasn't too bad. 0745 I had hookwires inserted to both lesions, confirmed on mammogram. Thankfully this mammogram was no where near as squishy as the screening mams are. Just before this procedure I scoffed down a muesli bar as a second breakfast, as my fasting time was from 0800. 0915 Then I had the lymph scan done with radioactive dye to determine the location of the sentinel nodes to be removed. This process took a while for the dye to travel from the breast to the lymph node but sure enough it eventually did. This was completed around 1130. This is also when I had to stop drinking water. From there I was escorted up to the day of surgery area, where I waited briefly to be called through for some pre op checks, changed into some gorgeous paper knickers, TED stockings and gown and booties. Thankfully there were also some lovely fluffy robes to complete the look. Once this was all done, my bags were labelled (like checked in luggage) and they were placed in a holding area to accompany me up to my room post op. I was sat in a recliner chair and allowed to have my phone and glasses to entertain myself while waiting. I think I waited here about an hour. Then transferred to a bed, and that is when it all got a bit real, being wheeled down the corridor (the ceiling lights do really look like they do in the TV shows as the patient is being wheeled down a corridor) I was wheeled into the OR and given a lovely paper hat. My surgeon did a final consent check and got me to confirm the procedure I was having and drew on my left shoulder while I was awake. I had so many marks and tapes on my left breast that It really was obvious which side we were tackling. I remember the anaesthetic mask being placed over my nose and mouth and breathing a couple of times and that's it! Next thing I am waking up, feeling a little sleepy. About 2.5 hours had passed. No pain, just a weird relaxed feeling. I had some water and a lemonade icy pole which was just what I needed. After waking up a bit more I was wheeled up to the room. I remember being spaced out with some strong pain meds. I was able to put on the post surgery bra early and that was a good feeling, so much support in that bra. It was a relief to know this part was completed. Thanks to the resources and experiences of others in this network I felt like I was well prepared for hospital. The morning after I saw the breast care physio and the breast care nurse, both whom gave me some great advice and answered my questions about the immediate post op period. Being at home has been good, although hard to settle in to not being busy (I am used to working full time) . The wedge pillow was a must buy. I got mine from Target for $45. As are loose t shirts that fit my surgery arm in and then I can loop easily over my head, or button up shirts. I am also taking regular oral analgesics. If you are reading this and your surgery is approaching, I wish you love and an uneventful recovery. I am very thankful for this network of support xx
Microcalcification biopsy
I was wondering if anyone here has experience with microcalcifications? In particular, whether they've been biopsied and if so, how many times? And have you had an MRI or other imaging to help understand the microcalcifications? I'm curious because I had microcalcifications show up in my other breast from my first mammogram a year ago. Two core biopsies were taken but a clip/marker wasn't inserted. The diagnosis was: benign proliferative changes. I've now had my second mammogram and they want to do another biopsy and insert a clip. They haven't said if anything has actually changed in that part of my breast in the past year. My surgeon is going to ask the imaging place for more information so I understand what's going on. I'm surprised that they want another biopsy so soon and seemingly without any change. I don't know if that's normal and whether that will be the case for the years to come?!Surgery tomorrow - what to expect.
My surgery is scheduled for tomorrow and I don’t know what to expect. I’m a tad neuro-spicy and I get really, really anxious if I don’t know what’s happening. I’m having a lumpectomy and I’d really appreciate it if someone can give me a step by step idea of what to expect.
Double Lumpdectomy or Double Mastectomy????
Hi everyone, First time on here and have been reading such amazing and positive posts. Thank you. I was recently diagnosed with Synchronised Bilateral Early Stage Breast Cancer with Multifocal on the right side. My density is D so it was the MRI that showed the right side, not the mammogram. Both sides hormone receptive invasive carcinoma. Genetic testing done, started hormone therapy so could wait the 5 weeks for results. Should have them in 2 weeks. I would like to know if a double mastectomy wouldn't be such a bad idea regardless of the above results. I am 52, was peri, and am already anxious. From what I have read about the multiple lumpdectomy surgeries and to assure margins, combined with my density I am worried what else they may find. So far lymph nodes clear but not yet formally biopsied. 3 small, under 2cm tumours and lesion in right 1 small 2cm tumour in left. Any advice, or personal experience from a similar situation, would be so helpful. I would like to take in as much knowledge as I can to my next appt with the surgeon so I can make an informed decision. She is gunning for a lumpdectomy if not genetic but then said in the same sentence I may need more than one surgery. Thanks in advance. This is such an overwhelming time. Kind regards Aimee Ps, not quite up with the correct terms so hopefully haven't confused anyone.Taking collagen powder while on Tamoxifen
Wondering if anyone can help point me in the right direction? I am wanting to take a collagen powder supplement while taking Tamoxifen. I asked my oncologist and he suggested I check drug to drug interactions online but I am struggling to get a straight answer. Next time I see the pharmacist I will ask them but wanted to know if anyone has personal experience. Thank you
Zoladex 3 monthly available but not PBS covered for women
I wanted to share something I recently learned as it might help ease the burden of regular monthly injections. I recently learned that the goserelin injections many of us have monthly are actually available in a 3 monthly dose (10.8mg). I was a really hopeful thinking this could significantly reduce the stress, time and cost that comes with needing to have an injection every 4 weeks. However, my Med Onc informed me that in Australia, the PBS doesn't subsidise the 3 monthly dose for women, although it does for men (prostate cancer). The reasoning given that there's `insufficient evidence of reliable suppression of serum oestradiol' in women. What doesn't make sense is that there is evidence suggesting otherwise. Recent research indicates that the 3 monthly dose is non-inferior to the monthly dose for pre-menopausal women with breast cancer in terms of ovarian suppression. For me, the monthly injections come with a real burden: financially - GP visits and medication add up every month time wise - frequent GP appointments and pharmacy trips take time out of the week. physically and emotionally - injection itself is painful, it's a large slow release implant into the abdominal subcutaneous tissue. The main alternative - surgical removal of the ovaries is obviously much more invasive and comes with it's own risks and long term consequences. Given that the 3 monthly option is already in use, clinically tested and could ease the burden for many of us, I would really like to see equal PBS access for women. I'm curious, has anyone else looked into this and how to go about taking action?
Another Re-Excision or Mastectomy?
Well, here I go again. I was diagnosed with DCIS in December. It has been a long path, but I eventually had a double lumpectomy on my right breast on 26 March 2026. A week later I was told that although they got clear margins, three of the margins on my largest lesion (4 cm) were less than 1mm. So, I had a re-excision on 15 April to get wider margins. I saw the surgeon this morning, who told me they found more disease and the new margins are still less than 1mm in two places. I have to have more surgery next Wednesday but have to decide (by Friday) whether to have another re-excision (and my breast will be starting to look a bit sad after that) or go straight to a mastectomy. She said it was quite feasible to try a re-excision again, to preserve the breast if I want to, but if they still find disease or don't get good clearances, then I have no choice but to have a mastectomy. If I have the re-excision, I have to have radiation treatment for 3 weeks, 5 days a week afterwards. If I have a mastectomy, then it's all done. No radiation and no lymph node involvement. Does anyone have any advice on what I should do / or want to share your story if you've had a similar experience? I know it's my decision, but your advice is appreciated, thank you.
Radiation treatment
I’m 4 sessions in of 3 weeks radiation. Had a lumpectomy about 6 weeks ago. I’ve also have fibromyalgia, depression and adhd. I’m suffering badly from imposter syndrome because I know how lucky I am, so don’t come on here often. I’m preparing for the possibility of feeling lethargic due to added fibro. But might be fine. I’m normally obnoxiously positive but the issue at the moment is I’m on and off angry. My mood is terrible. I’m yelling at the dogs and just **bleep**ty in general. Im doing all of this alone which is sort of my choice but theres really no one else. My kids are busy with their own families and friends all have partners. So I’m by myself. But also feel leave me alone I’m lonely. So not much fun to be around anyway. In the last 8 months I’ve had 2 knee replacements (one being stuffed up), putting my mum in a nursing home with dementia and selling her home without her knowledge. Have started a new business and Also broken off an under 12 months relationship with a narcissist. I’m going on 5 year hormone therapy after radiation. I’m concerned about mood and weight gain. Which is so trivial compared to what others are going through. It’s possibly nothing to do with diagnosis but I thought I’d reach out and check to see if anyone experienced the same. Thanks in advance.
