Total left mastectomy vs expander/implant?
Hi everyone - I’m newly diagnosed and have found BCN hugely helpful and reassuring. I have bilateral early cancers - invasive ductal (left side) and invasive lobular (right side). ER + PR + HER2 -.I believe ‘low grade, slow growing’. My treatment recommendation is: left side mastectomy, nipple/skin sparing with expander then later implant and right side lumpectomy. Followed by radiation and letrozole. Surgery scheduled for 22/11 at Chris O’Brien Lifehouse. The choice I have is left side total mastectomy or the reconstruction? For context, I’m middle aged, slim/small breasted and physically very active. Apart from the obvious surgery and post operative worries, my other concern is around the possibility of spending many months with ongoing breast related issues. Wondering if any of you have had a similar experience….and any thoughts/advice you might have? Thank you 🎀
Constipation
most of the threads I can find about constipation are quite old so thought I would start a new one . Having just spent a very uncomfortable Friday / night at home, followed by fun Saturday in emergency, and a Saturday night in the short stay unit with the worst constipation ever am looking for some tips advice on how others have managed this going forward Generally I am a good popper , once a day (give or take) and have a faulty good diet. But this round of chemo that went in Monday had upset my whole system So love to hear how others have coped what food to eat / not to eat , drink , drugs etc
Lung nodules
Morning ladies, It has been ages since I have put a post up but I regularly check in to make sure all my pink sisters are doing ok! I am now living in country Victoria after my husband told me the marrage was over (app he found my cancer journey all too confronting!) I had to go to hospital on Monday as I was feeling faint, breathless and my heart was racing. 3 days in High Dependancy and now on a beta blocker to slow my heart rate. On my discharge summary it says they found multiple nodule in both lungs! freaking out !!!! No one said anything to me whilst I was in hospital, I am seeing my onc on Mon. Has anyone else had lung nodules? Will try to keep calm untill I get to see oncologist but am feeling quiet alone at the moment. xHormone therapy struggling in 4th year
Ive been taking Aromasin for just over 4 years along with medication to help me sleep and for depression and magnified anxiety. I have back ache, stiff joints, hot flushes and struggle to think straight and get my words out. I'm not sure what feeling normal is like anymore, is this the medication or how I am now? I am 64 years old this year, I exercise, maybe Im just old now. I haven't had online discussion before when I went through surgery, chemo or radiation, although I did look at discussions and that helped. Im finding now that Im needing to know how others have managed through the long years of hormone therapy. I have had breaks of one month every so often but I find its harder getting back on the Aromasin after a break as I don't get much relief. My oncologist has said as long as I do 9 months in a 12 month period that's okay but it gets harder to go back on it. I would like to know how others have managed to finish 5 years of hormone therapy or 10 years (amazing women, my hat goes off to you all) Sometimes it feels like I'm the only one doing this, I know I'm not. Also how does your body and emotions feel after finishing hormone treatment, like how different do you feel? How long did it take to realise you were better or doesn't that happen? Is there much or any difference? I guess I'm living in hope that I'll finish and not need other medications when I finish hormone therapy and that my body and emotions will feel better. Thanks for your input. X
TERRIFIED of Treatment
I’m not sure I can convey in writing how terrified I am I’m not sure there is a word to describe it the worry I feel is debilitating, I already suffer from anxiety and this is just exasperating it, i was diagnosed about a month ago and have had a Lumpectomy with good results margins were clear and lymph nodes were clear, my cancer is triple negative and they are still wanting me to have chemo and radiation. The plan is 12 weekly doses of chemo then about 15-20 treatments of radiation along with Herceptin every 3 weeks for a year. I am supposed to go to Hospital on Tuesday for Echocardiogram, Port Insertion and my first chemo. Everday for the last two weeks I have woken up at 6am in what I think is a panic attack I have tingles all over my body and shaking and I don’t want to get out of bed I’m at a point where I don’t think I’m going to be able to get myself to the hospital on Tuesday, and on top of all this I live in Melbourne so we have COVID to deal with which means no one can come to hospital with me I have to do this alone. I am terrified of having the port put in and the thought of it being in my body for so long is terrifying to me I am also completely terrified of the chemo and all the worry it will cause me between treatments having to monitor temperature etc etc will be so stressful for me. I have tried conveying this to various people (Doctors, Family, Psycologist) and all they say is you have to do this and take one step at a time, I feel like no one is really grasping how terrified I am and no one is helping me with the mental side of this, am I the only one that feels this way please HELP me as I don’t think I can mentally survive this and am seriously considering not going on Tuesday.
Anxiety, hot flushes and gebapentin- help
So I thought chemo was hard.... tamoxifen is kicking my arse!! Went to the menopause after cancer clinic today and they were lovely. She has put me on Gebapentin for the hot flushes, just wonder how others use of this has worked for them? Has it also been successful with anxiety and moods? I am really struggling with feeling anxious all of the time! I don’t know if it’s the post cancer struggles, tamoxifen, menopause, the pressure of a new job or all of them!! I’ve never really had a problem with anxiety before but I can stop feeling sick, crying and just generally feeling rubbish!!! Any tips appreciated
Hot flashes and itchy skin!
Hello everyone, I finished my AC a few weeks ago, and will start Taxol this week for 12 weeks. The AC has plunged me into menopause (I was nearly there already). I just cannot regulate my body temperature - I am mostly hot all the time, but sometimes fluctuate between roasting and freezing, and my skin and eyebrows (the only hair I have left) are super itchy! I suspect this is all hormone related. This has been going for weeks. Has anyone else experienced the same, and does it start to settle after awhile? Any helpful tips? :smile:
Light at the end of the tunnel
Hi all, Well it has been many many months since I have posted/updated on the site. July was my last post. On July 28th I had my bilateral breast reduction. (I went from a DD to a B cup) but the Ca. is gone (fingers crossed). On the day of my operation the surgeon [doctor's name removed by moderator] found out that I had Sentinal Node involvement.. it turned out to be 44% KI 67. So that meant I was going to have to have chemo... it turns out the Ca. I have/had was aggressive after all... Grade 2 42mm but first diagnosed at 33mm. I only had 1 node involved.. Surgery done under the public system and could not complain at all about the treatment. Still getting used to the B cup tho tho, she even saved my nipples which im happy about. 2 weeks after surgery I was back at work... and the only other break has been over Christmas for 3 weeks while i had radiotherapy which i got pneumonia during it and was not well... but got through it. I had 2 doses of FEC and lost all my hair. that was devastating and I hated it.. and then the Oncologist put me on Pacletaxal and I chose to do only 3 doses. (I dont think i need to justify my decision, so i wont). I had 16 days of Radiotherapy = 160 doses.. and finished that 3 weeks ago tomorrow (Monday). My hair started growing but around late Nov and I now have enough to not worry about scarves and hats...but I still hate having short short hair. So,I was suppose to have started Tamoxifen but I have decided to wait for a few months and see what my body does first. I know it will suppress the Cancer if there is anything there... but again my choice. Apparently I am post menopausal which i had no idea I was ... thinking i was peri so this has been a good thing ... Well here I am Feb 5th and started this journey on June 6th,,, tomorrow will be 8 months and it has been a journey I wish on no one but it seems it just keeps happening... I have learnt so much about Cancer and treatments and emotions and everything else to go with it.. i can tell you all about side effects and feelings and it is something as a nurse I would hope I never had to do but it is real and it happened to me to give me this insight into all of this.. who knows what my future holds now but Ill get on with living and working and riding my bike and just talking about it to anyone who wants to hear so they are aware they are not alone and they can get through it being what ever choice they make. oh and the one biggest thing that has been awesome out of all of this is my friendship with Cath whom I met on this site in July 16 and recommended Dr Saliba to me... she is one of my dearest and awesomeness friends and I love her to bits.
Drs have conflicting views..
Hi all, really appreciate any advice on this one, have no idea which way to go. Had hormone receptive tumour, small 1.1cm, did surgery, radiation... then medical oncologist said need no more treatment..this is contrary to surgeon, gp and radiation oncologist who all think hormone therapy (Tamoxifen) is necessary.. but won't stand those opinions up to medical oncologist. Went back to med onc, asked to go on hormone therapy, I want to do everything I can to prevent bc coming back. He said side effects can be brutal, only improves chances by 1%, not worth it, if it comes back deal with it then... was horrid in his words, acted like bc was a nothing. He was a complete pratt. Anyways I got script, Tamoxifen, doing pretty good, only side effect really is dizziness...so am blessed compared to most... however dizziness quite bad, had 3 falls now, in last fall fractured cheek bone and multiple cuts and grazes. Went back and asked for some medication for dizziness side effect. Got told... Tamoxifen not worth it, just stop taking it... like wtf... I wasn't complaining, I want to do everything I can to stop this dreaded disease recurring, just needed a hand with the side effects. I'm scared to not take Tamoxifen, feel like I wouldn't be helping myself.. I know its not a guarantee but surely buying yourself a bit more of a chance is better than doing nothing.... drs have got me really confused and acting like I'm bringing side effects on myself. Is anyone else with hormone receptor tumour doing hormone therapy... or have you also been told side effects outweigh doing it. I had thought HT was pretty standard. Can I also throw into the mix I've had 2 melanomas as well as multiple squamous cell carcinoma skin cancers, so clearly cancer cells are quite prevalent in my body in different forms... hence whilst trying to help myself with this bc. Would so appreciate hearing anyone else's story on what their oncologist has got them doing... Many thanks for taking the time to read this... 😊
