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Bron77's avatar
Bron77
Member
3 months ago

Radiation tips?

Hi, I have no idea how to negotiate this platform so forgive me if this turns up in the wrong place… I’ve lobular invasive -had lumpectomy & 10 lymph nodes removed. Hellish pain with seromas after the latest op.. anyways .. radiotherapy starting next week for 3 weeks.. any tips, things to be aware of?? It’s been such a rollercoaster I think I’m still processing .. 

coping
emotions
post surgery

3 Replies

  • Minka's avatar
    Minka
    Member
    3 months ago

    Hi Bron

    Sorry you've had to join this awful club.

    I also had ILC - 2 lumpectomies and node removal.

    For me radiation was the thing I was most scared of that turned out to be the easiest. I did 15 sessions over 3 weeks and had no skin breakdown and although my skin went a bit pink (and still is a bit pink 9 months later) I had no pain at all.

    The only major impacts for me was fatigue which lasted for about 3 months. If you have the option not to work I'd definitely take the time off. Aside from that just make sure you drink lots of water to help keep your skin hydrated and keep up the moisture - whatever cream you decide to use.

    I've found the after effects of the radiation months later harder than the actual treatment (pain, hardness, changed skin sensitivity) but that differs for everyone.

    Good luck to you. I hope you find it easy too. xo

  • Mez_BCNA's avatar
    Mez_BCNA
    Community Manager
    3 months ago

    Hi Bron77​

    You can watch our webcast  The role of radiotherapy in the treatment of DCIS and early breast cancer which explores the use for radiotherapy including the benefits for the treatment of DCIS and early breast cancer, current and emerging techniques of radiotherapy delivery, the planning process and the factors that influence delivery, side effects and ways to manage them, follow up care and the costs associated with treatment.

    Please feel free to contact BCNA's Helpline 1800 500 258 if we can assist further.

  • Tri's avatar
    Tri
    Member
    3 months ago

    HiBron77​

    Welcome and I’m sorry you’ve had such a roller coaster of a time with your treatments and surgery so far.

    There’s been quite an informative thread on the platform a couple of months ago that might help 

    Radiation - Is Moo Goo enough? | BCNA Online Network

    You can try searching “radiation therapy” for other threads.

    I had 15 cycles of radiation therapy and it was very straightforward once the measurements and dates were booked in. 
    Sending you positive vibes and all the bestBron77​