Forum Discussion

kmc1's avatar
kmc1
Member
30 days ago

Oncotype testing

Hello everyone, I had a double mastectomy with Sentinel Lymph Node biopsy with expanders on 24th August. ER+ PR+ HER2-. Pathology shows clear margins and cancer not detected in Lymph Nodes.

Left Breast -DCIS of low and intermediate nuclear grade.               

Right Breast - Multiple foci of invasive carcinoma LCIS. Six foci of grade 2 invasive lobular carcinoma and a 5mm focus of grade 1 invasive carcinoma. Extensive classic LCIS.

I mainly have one question, and I am hoping you can all help me. This diagnosis happened so quickly it was like a whirlwind. Between diagnosis and surgery, I was overwhelmed with information and decisions that needed to be made. At that stage I did not even know about Oncotype testing. 

My question is can I still request oncotype testing 3 weeks after my surgery? I feel silly that I did not know about this and therefore request it.

Any advice is greatly appreciated.

genomic testing
mastectomy

2 Replies

  • arpie's avatar
    arpie
    Member
    29 days ago

    We are so Sorry to see you joining our select little group kmc1​ 

    It is Great that you have had your surgery & good pathology results.  I hope you are recovering well. xx

    It is always a whirlwind at the start with heaps of information overload & even confusion ...  if you ever feel stressed - you can always call the Helpline on 1800 500 258 (Mon-Fri, 9-5) for a confidential chat. xx

    Have you been advised whether you need chemo (or not) yet?

    What do you understand is the next phase of your treatment?

    On a personal note, we had oncotype testing for my husband - it cost about $5,000 and takes 3-4 weeks for results.  I don't believe you can claim it on medicare or private insurance.   The samples were sent to the USA but the only recommended treatment solutions for him were only available in the USA & were not approved for treatment in Australia.  :(   So it didn't really help us that much   :(  

    I'd suggest you discuss this with your Medical Oncologist for a clear understanding of how it works & any possible benefits for you. xx.
    If you have a Breast Cancer Nurse, you could ask them about it too xx

    take care & all the best xx

    • Bear1's avatar
      Bear1
      Member
      28 days ago

      I would get in contact with your Oncologist on Monday. The test is only relevant if Chemotherapy is being considered as part of your treatment.