Neuropathy in feet - any advice? TNBC
Hi everyone I've TNBC and am 6 treatments down with the first Carbo/Taxel/immunotherapy regime. For part of my infusions, they put cold gloves on my hands to reduce the risk of neuropathy there, but didn't offer anything for the feet. They suggested I go online and purchase my own cold socks to wear during treatment. Last week my toes started feeling numb and then yesterday my heels started feeling sore when I walked. I walked a bit at the shops this morning and my feet felt odd the whole time. I'm assuming this is all related to neuropathy and I must admit I'm a little freaked out. I've purchased some cold socks now online and will start wearing them during treatment, but I'm worried what damage has been done already. Be interested to hear what experiences others have had with this, what they've done about it and whether it has resolved after treatment finishes. (NB I'm putting this in the general discussion arena as I thought it may not be simply TNBC related?) Kathy
Starting chemo this week: Doxorubicin, Cyclophosphamide and Pegfilgrastim then Paclitaxel
Hello everyone, this week I start chemo. As I understand it, 4 cycles of Doxorubicin, Cyclophosphamide and Pegfilgrastim then 12 cycles of Paclitaxel. I am looking for any advice and tips on how to get through it. We all know that experience and side effects are all different and individual but it would help to know how others have coped. I haven't had my introduction session with the oncology nurse yet and the fact sheet is a bit scary. I am in Melbourne and will be treated at St Vincent's private in East Melbourne as that is where my medical oncologist works. For the time being I am remaining a private patient as insurance covers it. I am choosing to try the 'cold cap' to see if it will help with not losing hair but as I have fine hair and already experiencing age related hair loss, it may not work. I know it will add about 2 hours to treatment and am willing to give it a go. My plan is to take audiobooks and colouring books with me to pass the time during treatment. I'm aiming to keep busy but not taxing myself too much. At this stage I do not plan to work on treatment days but do plan to work from home other days. A friend has suggested a probiotic as a precaution as a relation and her mother used one during their chemo and found it helpful. Has anyone else found this? With the second treatment and Paclitaxel I am concerned about the possibility of peripheral neuropathy side effects due to a previous condition. I read in another post that some ladies have tried cold gloves and socks - has that worked? I will have to look into it further but am curious and want to be prepared. Thank you all for reading and any advice and tips :heart:BYO Cold Cap?
Hi all, I have just found out that my hospital (Monash) doesn’t offer the cold cap for chemo. The breast care nurse I spoke to was very disparaging of them, saying there was no evidence they worked, which surprises me as they seem relatively common in better hospitals. She said the only option was to BYO frozen caps in an esky - has anyone here tried this? Was it successful? How do you keep the caps cold enough?Update: I got heavy period 1 week after 1st Zoladex injection. Any similar experience?
Hello everyone. I wish you have a happy Sunday. I am 33 y.o. and diagnosed with localised advanced HER2-positive breast cancer last month. I got zoladex injection on Thursday (12/9). As expected, I didn't get the period which is normally usually come around last weekends. Got my first chemo on Friday (20/9) [I choose to go with Perjeta/Pertuzumab treatment btw]. Overall so good, only normal sympthoms like sore and dry throat, thrush, very mild tingling sensation. may be because I still consume the dexamethasone as prescribed for Day 2. I took the Ziextenzo (pegfilgrastim) injection around 25 hrs after the chemo as instructed. No alergic reaction. Only mild ache. But, a couple of hours later I felt burning sensation during urination and when I tried to hold my urine, then the urine got redder plus I found blood on my panty. I went to ER. Surprisingly my temp a little bit over 38C (At that time I felt okay, no sweat or chills). Got observed, blood test, urine test, chest xray. Overall nothing concerning except the blood in urine and the discomfort during urination. During the urine MCS I found blood on my pads like during period, but redder (usually I have darker spot). This made me unsure whether the blood came from my urethra or uterus. But because I feel pain during urination + the fever, I discharged with UTI diagnosis. Got antibiotic iv + antibiotic prescription. I got much better after had some sleep at home. It is still a little bit hurt during urination, but much-much better. However, the blood got redder and it become more-more similar to period sympthoms. Like a heavy period will storm in. I plan to observe what will happen today, and will consult my oncologist tomorrow. But, if someone here have experience with period after 1st zoladex injection or similar sympthoms, I will really appreciate your insight (PS: Sorry for the long post and grammar mistake, english is not my 1st language) Thank you :heart:
brain fog post chemo treatment
Hi All Just a question about brain fog and how long people experience this after chemo treatment has stopped. I finished chemo about 5 weeks ago and am in my last week of radiation. I expected to have a clearer mind by now. Just wondering about other people's experience with brain fog post treatment. thxs fiona
Getting prepared for 12 cycles of Taxol
Hi All, Hope everyone is doing great here and managing the side effects well. I completed my 4 cycles of the AC/Dc combo package and will start with the 12 cycles of weekly taxol from mid September. Luckily for me the red devil was not too bad apart from I have lost complete taste Nd my hair is gone . The nausea and minor reflux issues were managed well with medication and fatigue was also ok for me. I was constipated though and needed coloxyl. Can you all share your experiences with taxol. I can make a list of what to expect and atleast be mentally prepared. I am returning to part time work from 1st October and hoping to get some experiences as how work can be managed? The support and stories give a lot of encouragement :) Thanks Priya
Chemo Tablets?
Hi all. I was diagnosed Triple Negative in late Nov 2023. Went straight on to Chemotherapy with lots of negative reactions, including anaphylaxis. Then had Surgery to remove lump and one lymph node which was all clear. Just finished 4 weeks of Radiation. Now my Medical Oncologist wants to put me on Capecitabine tablets for 6 months. I can't seem to get a straight answer as to why I need this as well as everything else. I was just starting to feel a bit more 'normal' and looking forward to life again. Has anyone else used these tablets that can give me an honest opinion. Thank you.
Best skin repair products for chemo and radiotherapy
A friend of mine bought me some Rich Glen Olive balm as part of a lovely Chemo care pack. My hands and nails held up so well during AC does dense and 12 rounds of taxol chemotherapy. I also used this undergoing radiotherapy to both breasts along with Moo Goo Soothing cream and my care team were amazed even with double dose of radio I had no burns no blisters and minimal redness. Links below if you want to add them to your kit... https://moogoo.com.au/collections/moisturise/products/soothing-msm-moisturiser https://richglenoliveoil.com/collections/body/products/rough-hand-balm-100gm
