Reluctant about mastectomy
This is awesome that a supportive community like this is available. My mum was recently diagnosed with breast cancer. She has had an initial lumpectomy and now requiring a mastectomy. She's struggling to understand the necessity of undergoing this treatment due to being asymptomatic. I was wondering if any ladies here, particularly Cantonese-speaking were willing to share their experience in undergoing this type of surgery. I know my mum would appreciate talking on the phone to someone, if anyone is happy to share details or exchange emails. Thank you so much for your help in advance 🙏🏻 🙏🏻 🙏🏻 ☺️ Constance
Radiotherapy side effects
Hello I began chemotherapy in April this year for triple negative breast cancer and 2 weeks ago I finished 13 cycles of chemo. I now can have a lumpectomy followed by 3 weeks of radiotherapy. Due to some side effects of radiotherapy, I was looking at my options of removing the whole breast which I then could avoid radiotherapy as both options have the same survival rate. I have had sarcoid of the lungs in past and lot of severe gerd pain which I’m on medication for recently due to chemo. Has anyone got any experience with longterm side effects from radiotherapy they could share? Thank you
Lobular carcinoma in-situ
Today finally found out the I've a lobular carcinoma in-situ in my right breast. I've booked in for surgery on 20th October for right breast - dcis in-situ & right breast lobular carcinoma in-situ. I'll have a wire inserted by biopsy for surgery to mark the areas with magnetic markers. Afterwards 3 weeks radiation & hormone tablets. Im nervous about lobular carcinoma as I've read it can spread quicker then dcis. We're going away 5 weeks then straight into op Im not sure if this result is good or bad with lobular carcinoma or not Love to hear from other persons experiences. Huppy
DCIS lumpectomy yesterday
Hi yall, so glad this service is available. Just had my lumpectomy yesterday and feeling the blues. Biopsy results next week, hoping for the best, expecting anything. It seems that radiotherapy is likely, which I had hoped wouldn't have to happen. It will take over my plans for weeks!!! I am struggling with social isolation following leukemia with immunity issues followed up by a bad dose of covid last year. Was just starting to get it together then this happened!!! Feeling like a lightning rod for cancer atm. So really this is probably small potatoes in the scheme of things, but still not really what I had planned. Appreciate any input.Surgery and tail-end of a cold?
Hi everyone - I had a lumpectomy three weeks ago after a high grade DCIS diagnosis. Was due to go back last week for a re-excision to ensure clear margins but I’d caught a monster cold in the meantime. Surgery is now scheduled for Tuesday- I still have a bit of congestion and a bit of a cough which I think is post-viral. Has anyone been in the same situation? Is it likely to be postponed? On a completely side note, thank you all for being here and sharing advice and stories. It does make me feel less isolated. I’m 65 and my husband has been super-solid but he’s prone to extreme positivism which can be great but sometimes isn’t. We live with my 94 year old mother who quite probably doesn’t remember what’s going on. This would all feel very lonely without this online network.
Can't stop thinking about bad outcomes
Newly diagnosed ++- and scheduled for lumpectomy in 2 weeks followed by radiation if all goes to plan. I'm having intrusive obsessive thoughts about death, particularly dying during the surgery and what my funeral will be like. It's non stop and exhausting and I'm neglecting everything else. I've put together an 'instruction manual' for my husband so he knows how to look after our autistic son properly. Are these thoughts premonitions or just underlying fear? I want it all to stop!Suggestions/Experience
Hi everyone, I’m looking for some advice or experiences from others who might have faced a similar situation. I was recently diagnosed with invasive carcinoma grade 1 and have undergone a lumpectomy with sentinel node biopsy. The surgery also removed areas of DCIS, and thankfully, the pathology report shows that all margins are clear. However, the report also found extensive LCIS (lobular carcinoma in situ), and now my doctor has presented me with two options moving forward: Undergo a double mastectomy to reduce future risk Or opt for regular screenings every 6 months for the rest of my life (mammograms, MRIs, etc.) I need to make this decision before starting radiation, and I’m feeling really torn. A mastectomy is obviously a big step, but ongoing screenings come with their own stress and uncertainty too. If anyone has had to choose between these options, or has any advice, experiences, or perspectives to share, I’d be really grateful to hear from you. Thank you
Decision
I have been diagnosed a second time the first was DCIS 3.5yrs ago, had a lumpectomy without radiation or chemo. Cancer has now returned in the milk duct 2mm. I am having surgery soon was given choice of total mastectomy or total nipple and aerola removal. His recommendation was mastectomy, I have chosen the later. Now wondering if I was offered radiation after the first surgery would I be in this situation now. Also not recommended for radiation after this current one. Not sure if I have made the right decision.Indecisive
I am new to this group and beginning my journey. It is very reassuring to feel I can learn from other members experiences. Knowing that everyone’s situation is different and I am beginning to appreciate that there are a number of decisions ahead of me regarding treatment options. i was recently diagnosed with mass-forming, high-grade DCIS of the left breast. The mammogram detected a single 14mm lesion and an ultrasound detected a corresponding mass. So I understand that this is considered small in size. No hormone marker testing was performed on the biopsied tissue. I have been scheduled for a wide excision next week and my surgeon has given me two options: either have a sentinel lymph node biopsy at the time of the surgery, or wait until the histopathology report is back (after surgery) and then later do the sentinel lymph node biopsy if any invasive cancer is detected. I am having difficulty making a decision. I appreciate that if the biopsy is performed next week (whilst the excision is performed), I only then have one anaesthetic but if I choose the second option, I may avoid unnecessary loss of lymph nodes. Wondering if any other members diagnosed with a small high-grade DCIS have been given this choice and if so, what did you decide?
Post surgery changes
Good morning, I have a quick question to any women who have had lumpectomy/s and where the surgeon removed fat from under the underarm area right side only for me (side boob) to refill breast/s. I had lumpectomy's on both breasts at the same time, early cancers, both hormone positive ILC & IDC over a year ago now. My question is if they have been left with what looks like a small 3rd boob to me under their armpit that protrudes out. I cant understand how an area that has fat removed from it ends up bigger than before. It is uncomfortable, causes rubbing/friction that I did not have to contend with before and finding a bra that covers the area so the excess bulk doesn't get squeezed out from and overhangs from the bra line is frustrating. I only have B-Cup breasts and never had to wear heavy duty thick/wide band bras before because I wasn't big or had a lot of fat in the side boob area. Since surgery & having the fat apparently removed to fill the area my small tumours were removed from, I am now left with a bulge that is very noticeable from both the front & back. I dont wear singlet tops any more because the bulge is too noticeable. Very disappointing because I was not told about this outcome, only that there will be scar/s, which I have & don't concern me at all. Having a bulge/mass sticking out from the side of your breast seems more notable to mention than whatever scars might be left behind. Had I known I would not have had my breasts "refilled" from the small tumours removed. Any lop-sidedness or unevenness if any would have been fixed with a bit of padding, which most bras come with these days. I feel I have acquired a 3rd boob that is very noticeable whether I am clothed or not. Has this been any one else's experience?
