D4 post lumpectomy itching
Hi everyone, I was diagnosed with ILC R) breast hormone +ve, HER2-ve at the start of April. I'm D4 post op lumpectomy and sentinel node bx. I have a follow up appointment next Monday. Pain has been manageable, but today I've noticed my breast is so itchy and I had some shooting pain. I can't see a rash but honestly it's hard to tell with the bruising. Did anyone else get this? Did anything help? Im curious if it's the nerves trying to heal. I'll need radiotherapy, so also keen for any tips to prepare for that. Thanks xoxAnother Re-Excision or Mastectomy?
Well, here I go again. I was diagnosed with DCIS in December. It has been a long path, but I eventually had a double lumpectomy on my right breast on 26 March 2026. A week later I was told that although they got clear margins, three of the margins on my largest lesion (4 cm) were less than 1mm. So, I had a re-excision on 15 April to get wider margins. I saw the surgeon this morning, who told me they found more disease and the new margins are still less than 1mm in two places. I have to have more surgery next Wednesday but have to decide (by Friday) whether to have another re-excision (and my breast will be starting to look a bit sad after that) or go straight to a mastectomy. She said it was quite feasible to try a re-excision again, to preserve the breast if I want to, but if they still find disease or don't get good clearances, then I have no choice but to have a mastectomy. If I have the re-excision, I have to have radiation treatment for 3 weeks, 5 days a week afterwards. If I have a mastectomy, then it's all done. No radiation and no lymph node involvement. Does anyone have any advice on what I should do / or want to share your story if you've had a similar experience? I know it's my decision, but your advice is appreciated, thank you.
lumpectomy
Hi all, I'm a 17 year old with a large breast tumour, I've had ultrasounds and a biopsy however they still don't know what exactly it is. I've got my lumpectomy surgery booked in for next week but all this waiting (and while trying to do year 12 and whatnot) has really made my thoughts spiral. All this uncertainty and the big scary surgery info booklet has been quite overwhelming and it feels like such a unique experience and somewhat isolating, especially with my young age. I think I just need some reassurance or similar experiences to keep me going till next week. thank you!!
Can't stop thinking about bad outcomes
Newly diagnosed ++- and scheduled for lumpectomy in 2 weeks followed by radiation if all goes to plan. I'm having intrusive obsessive thoughts about death, particularly dying during the surgery and what my funeral will be like. It's non stop and exhausting and I'm neglecting everything else. I've put together an 'instruction manual' for my husband so he knows how to look after our autistic son properly. Are these thoughts premonitions or just underlying fear? I want it all to stop!
Reluctant about mastectomy
This is awesome that a supportive community like this is available. My mum was recently diagnosed with breast cancer. She has had an initial lumpectomy and now requiring a mastectomy. She's struggling to understand the necessity of undergoing this treatment due to being asymptomatic. I was wondering if any ladies here, particularly Cantonese-speaking were willing to share their experience in undergoing this type of surgery. I know my mum would appreciate talking on the phone to someone, if anyone is happy to share details or exchange emails. Thank you so much for your help in advance 🙏🏻 🙏🏻 🙏🏻 ☺️ Constance
Radiotherapy side effects
Hello I began chemotherapy in April this year for triple negative breast cancer and 2 weeks ago I finished 13 cycles of chemo. I now can have a lumpectomy followed by 3 weeks of radiotherapy. Due to some side effects of radiotherapy, I was looking at my options of removing the whole breast which I then could avoid radiotherapy as both options have the same survival rate. I have had sarcoid of the lungs in past and lot of severe gerd pain which I’m on medication for recently due to chemo. Has anyone got any experience with longterm side effects from radiotherapy they could share? Thank you
Lobular carcinoma in-situ
Today finally found out the I've a lobular carcinoma in-situ in my right breast. I've booked in for surgery on 20th October for right breast - dcis in-situ & right breast lobular carcinoma in-situ. I'll have a wire inserted by biopsy for surgery to mark the areas with magnetic markers. Afterwards 3 weeks radiation & hormone tablets. Im nervous about lobular carcinoma as I've read it can spread quicker then dcis. We're going away 5 weeks then straight into op Im not sure if this result is good or bad with lobular carcinoma or not Love to hear from other persons experiences. Huppy
DCIS lumpectomy yesterday
Hi yall, so glad this service is available. Just had my lumpectomy yesterday and feeling the blues. Biopsy results next week, hoping for the best, expecting anything. It seems that radiotherapy is likely, which I had hoped wouldn't have to happen. It will take over my plans for weeks!!! I am struggling with social isolation following leukemia with immunity issues followed up by a bad dose of covid last year. Was just starting to get it together then this happened!!! Feeling like a lightning rod for cancer atm. So really this is probably small potatoes in the scheme of things, but still not really what I had planned. Appreciate any input.Surgery and tail-end of a cold?
Hi everyone - I had a lumpectomy three weeks ago after a high grade DCIS diagnosis. Was due to go back last week for a re-excision to ensure clear margins but I’d caught a monster cold in the meantime. Surgery is now scheduled for Tuesday- I still have a bit of congestion and a bit of a cough which I think is post-viral. Has anyone been in the same situation? Is it likely to be postponed? On a completely side note, thank you all for being here and sharing advice and stories. It does make me feel less isolated. I’m 65 and my husband has been super-solid but he’s prone to extreme positivism which can be great but sometimes isn’t. We live with my 94 year old mother who quite probably doesn’t remember what’s going on. This would all feel very lonely without this online network.
