Belly button after DIEP
Hi Network, I’m 8 weeks post-mastectomy and DIEP reconstruction following a DCIS diagnosis. Overall, recovery is going well—except for my belly button. I developed an infection 10 days post-op, which landed me back in the hospital, and since then, it just hasn’t felt right. It pulls and hurts when I move, especially on one side. I’ve raised my concerns with my surgeon, breast nurse, and physio—they all say it’s normal. But you know that feeling when something just doesn’t seem right? I’m reaching out to see if anyone else has experienced this—does the belly button just take longer to settle during recovery or should I get another opinion? Thanks in advance x
Negative impact of radiation on Flap (autologous) reconstruction??
Hi all, will have mastectomy in a couple of months time, am considering to have an immediate breast reconstruction (IBC) using my own tissues/ flap (autologous). Unfortunately, I will have a series of radiation after the IBC. I am worried the radiotherapy will kill/destroy/ causing complications on the flaps. I did some research at my end. However the comments were conflicting. Therefore would appreciate your advice. Please..no advice is too silly. Thanks heaps!
One is BIGGER than the other!
Hi I had an early diagnosis and lumpectomy, chemo, radiation and follow up treatment of right breast in 2003 (aged 45 years). As I've aged, my treated breast is shrinking and shrinking and shrinking and is now very obviously a different size to my left breast. 1 Has anyone else experience this? 2 Do you think it would be considered 'medically necessary' surgery if I wanted a reconstruction for health fund purposes? Appreciate any feedback - thank you so much.
Mastectomy /post surgery pillow
Hi all, I have a brand new mastectomy pillow that I found really helpful that is basically as new. I would be really happy to post it to anyone that is about to have surgery at no cost. I just can’t bear to throw it away and would be happy for it to help someone else! Just dm me with your address if you would like it. I’ve attached some photos x
Scar Management for anyone finding them taking a long time to heal, red, bumpy, itchy...
Hey All, I just wanted to say in the past I haven't really worried about my scars from surgeries, however since doing my Diep Flap recon in February and subsequent revision surgery in July, I had my abdominal wound reopened. It was red, itchy and bumpy so thought I'd have a consult with people who specialise in scar management. Thanks to my friend @nikkid for the contact, I went today. I know in my post op visits there really wasn't much talk of scar management at all, so thought I'd pop a post for anyone who is finding them annoying red, itchy, bumpy and wanted some help with it. They use silicon dressings that I wear at night only, I then massage over 4-6 weeks in circular motions, (even an electric toothbrush) to break up the scar tissue about 4 times a day. My scars are so annoying and irritating,so that's why I decided to get some extra help. So I have a great recommendation in Melbourne for anyone needing that. Big hugs Melinda xoAll Clear happy and healthy, BUT pre admission tomorrow for Mastectomy/Recon struggling mentally..
To say its been a tough week, has been an understatement even after a recurrence multiple surgeries and treatments over the past 6yrs. As much as I knew it was coming, I wasnt prepared for the call from Hospital for my pre-admission tomorrow. 19 months on from a lumpectomy, 13 months post chemo, happy, healthy reclaiming my life. The mental torture has been relentless this week, knowing I'm WELL but in light of a recurrence don't gamble Melinda, do a Mastectomy/Diep flap reconstruction. Even knowing deep down its the best thing I could do, I still struggle with the loss, the prevention, the surgery. Its always been my struggle getting to this decision now it is here, I don't feel any different, I'm still struggling with it. I can be honest, I'm scared, petrified of the actual surgery, the recovery, the loss, the end result. Struggling with feeling Im damned if I do, damned if I don't. Maybe I'll feel different once it's done? Ive looked at it every which way possible, and its just so mentally challenging when I know Im so well...the tears havent stopped. I will also be mostly alone through recovery as my kids are going to live with their Dad as its easier for them to get to Uni and my baby in VCE. Whilst its the right thing for me to do...am heartbroken to not have them with me loving and supporting me. My Partner lives an hour away, due to work and life will only be able to manage at different times. Another reminder of traveling this road nearly 7yrs without my Mum, lucky to have my Dad who wants to help but is 77. Inspite of all this, knowing how incredibly lucky am I really!!! how dare I be sad, upset, angry, so why do I struggle, don't know how to resolve this for myself?? I've always been proactive, positive and upbeat...hoping its purely the fear thats getting in the way...
Have you replaced implants after radio? What's your experience/issues/advice +capsule (kept /rem'd)?
I'm in discussions with two surgeons (initial and then second opinion) about removing my 10-year-old textured and radiated implants and either going flat or replacing implants. I posed a similar question on the reconstruction group - I'm hoping this main chat has some people who have faced re-reconstruction. I was first diagnosed with BC in 2011 and had a loco-regional recurrence in 2014. I had a mastectomy with immediate reconstruction in 2011 (39 years old), and the other side was prophylactically done a year later. Due to the recurrence, I had radiation to the implant reconstructed site (10 years ago). The implants are the textured variety. The radiated side has some contracture (firm/tight), but specialists have told me it's not too bad (but it feels average to me). I also have a fair amount of tight scar tissue under my arm due to the recurrence and radiation. I'm so confused because two surgeons have advised different processes for removing the current implants. One of the surgeons has suggested that due to the radiated skin and existing scar tissue, I have up to 50% chance of failure of replacing implants, resulting in needing a flap reconstruction or going flat. This has frightened the life out of me because I thought the replacement surgery would be relatively minor (a simple grease and oil change LOL) This surgeon suggests removing as much of the scar tissue capsule around the implant as possible before inserting the new implant (but not because of breast Implant Illness concerns - neither surgeon is on the en bloc/ BII train). Removing the radiated capsule could remove the current hardness and minor deformity. This surgeon also advises I may need up to 3 fat sculpting surgeries to smooth out the breast (thin) skin (but that’s more general anaesthetics and recovery and $s!). The other surgeon suggests leaving the capsule as is and placing the new implant inside the existing capsule. As my skin is very thin from the mastectomy, removing the capsule could hinder healing and create more scar tissue/infection/concaving. The fact that this area is radiated means the newly created scar tissue capsule could be worse than the one removed. I guess this approach means the existing firmness stays – but hopefully, it shouldn’t get worse if it heals without infection (better the devil, you know?). If you replaced your implants after radiation, what has been your experience, scars, issues and advice? Did your surgeon remove or keep your existing capsule?
DMX & Recon
Hello ladies, I'm in dire need of advice from the community regarding dmx and recon. I'm currently on a trial treatment prior to lumpectomy in mid December. I have triple negative and also a BRCA1 carrier. There has been an ongoing conversation with my surgeon and plastic specialist at Peter Mac to my options for mastectomy and reconstruction as well as the option of remaining under observation in case I'll decide to keep my boobs. I find it extremely difficult to make a solid decision and stick to it. I'm concerned about my body image as I'm only 38, haven't had kids and in great form from training in competitive sports for a large portion of my life. Those of you out there who's undergone reconstruction and could share your experience with me and whether you think it's better or worse remaining under observation for the years to follow or pull the trigger and get dmx instead? Nipple sparing surgery or tattoo?Any information would be greatly appreciate it!
Recon with expanders wk 7
Hi warriors just wanted to ask if anyone had pains post 6 wk mark with expanders? I’m at wk 7 now and fully expanded and for the past 4-5 days have been experiencing dull but almost constant pain under my R boob (foob) not sure if I’ve been over doing it with my stretches or lifting heavy stuff and maybe pulled something. It’s in one spot and doesn’t move. No changes in the look of the breast. Having to take Panadol and ibuprofen a couple times each a day. Any ideas or advice welcome. I don’t see my PS for a couple weeks. x
Reconstruction implant only
Hi Everyone, I had a mastectomy and lat flap recon in 2019 and may need another mastectomy on the other breast (awaiting results hoping for the best, planning for the worst to get organised!) I'm wondering if anyone has had an implant only reconstruction and how it has been? I was advised against this last time and told that it would lead to a lot of puckering, and may look and feel unnatural, which I don't really care about. This or a mastectomy with no recon are my only choices at this point as I have had a lot of trouble with my back after the lat flap so couldn't repeat that option Many Thanks
