Radiotherapy after skin-sparing mastectomy & diep-flap-reconstruction?
Has anyone had radiotherapy done after their skin-sparing mastectomy & diep-flap reconstruction? Did it cause any issues with the breast flap? like hardening or shrinking? I had no lymph node involvement and had clear margins. It was decided in a team meeting with radio oncologist for me to have 5 weeks of radiation on the flap, due to younger age, size of lump (ILC-5cm) - although it was 2 bits lumped together into one and grade 2, pathology of the sample found focal-vascular-space-invasion, which hadn't spread anywhere outside the breast, but radio oncologist thought it could spread to lymph nodes in the future. Does this warrant radiation? I am on zoladex and ai. I have an appointment with the surgeon to discuss further but wanted to see if anyone has any suggestions or similar experience?
Private or Public?
Hi everyone, I'm a newly diagnosed in my late 30's. my cancer is invasive grade 1 in one breast. I have private health insurance but the out of pocket costs of the plastic surgeon and aneastetic would be around 14k which is a big figure for me. I'm told if I go private, I can have the surgery as soon as 2 weeks but the puclic system may take upto 6 week. my question is how urgent is the surgery, will a month difference matter? Also I'm choosing to do a double mastectomy to reduce the risk of cancer in my other breast. I'm slim and don't have much fat for reconstruction, implant would be the best solution forward for me. Has people who have gone with implant reconstruction in public system been happy with the result? how does the after treatments look for them? Any public hospital that you recommend in Victoria for the surgery and reconstruction? will the result of the reconstruction be any different if I'm in public vs private? I will be staying upto 3 days in the hospital due to implant reconstruction so really having a shared or private room is not a big factor here. Can anyone who has gone through this privately or publically contact me please?
Insulting and Judgmental Comments
Something I was not prepared for post breast reconstruction, are the judgmental comments the scar on my belly is attracting. I have been undergoing abdominal ultrasounds to try and figure out the problems I am having with my period. The ultrasound people keep referring to the scar on my belly as a "tummy tuck". I've even been asked "why have you had a tummy tuck?" I have a lot of scars on my body. I am proud of every one of them. They are proof of all the crap I have been through with Hodgkin's lymphoma and breast cancer. None of these scars attract the same judgment and comments as the one on my belly. I have not had a tummy tuck! I had a bilateral skin sparing mastectomy and DIEP flap reconstruction! I was in surgery for 9 hours! I was in hospital for 7 days! I was off work for 10 weeks! I chose to undergo this surgery to remove breast cancer and reduce the risk of recurrence and death!!!!!! I was so SCARED going into that surgery!! This was no FUCKING tummy tuck!!!!!!!!!!!!!!!!!!!!!!!
Negative impact of radiation on Flap (autologous) reconstruction??
Hi all, will have mastectomy in a couple of months time, am considering to have an immediate breast reconstruction (IBC) using my own tissues/ flap (autologous). Unfortunately, I will have a series of radiation after the IBC. I am worried the radiotherapy will kill/destroy/ causing complications on the flaps. I did some research at my end. However the comments were conflicting. Therefore would appreciate your advice. Please..no advice is too silly. Thanks heaps!
One is BIGGER than the other!
Hi I had an early diagnosis and lumpectomy, chemo, radiation and follow up treatment of right breast in 2003 (aged 45 years). As I've aged, my treated breast is shrinking and shrinking and shrinking and is now very obviously a different size to my left breast. 1 Has anyone else experience this? 2 Do you think it would be considered 'medically necessary' surgery if I wanted a reconstruction for health fund purposes? Appreciate any feedback - thank you so much.
Mastectomy /post surgery pillow
Hi all, I have a brand new mastectomy pillow that I found really helpful that is basically as new. I would be really happy to post it to anyone that is about to have surgery at no cost. I just canβt bear to throw it away and would be happy for it to help someone else! Just dm me with your address if you would like it. Iβve attached some photos x
Scar Management for anyone finding them taking a long time to heal, red, bumpy, itchy...
Hey All, I just wanted to say in the past I haven't really worried about my scars from surgeries, however since doing my Diep Flap recon in February and subsequent revision surgery in July, I had my abdominal wound reopened. It was red, itchy and bumpy so thought I'd have a consult with people who specialise in scar management. Thanks to my friend @nikkid for the contact, I went today. I know in my post op visits there really wasn't much talk of scar management at all, so thought I'd pop a post for anyone who is finding them annoying red, itchy, bumpy and wanted some help with it. They use silicon dressings that I wear at night only, I then massage over 4-6 weeks in circular motions, (even an electric toothbrush) to break up the scar tissue about 4 times a day. My scars are so annoying and irritating,so that's why I decided to get some extra help. So I have a great recommendation in Melbourne for anyone needing that. Big hugs Melinda xo
