✨ October 19th was Breast Reconstruction Awareness Day ✨
When considering a breast reconstruction, it’s important to know your options beforehand so you can make an informed decision about what works best for you. Here are some tips to consider: - Read our page on breast reconstruction https://www.bcna.org.au/resources/surgery-and-breast-reconstruction/breast-reconstruction/ - Read everything your surgeon gives you. - Ask your surgeon and breast care nurse about anything you do not understand. - Talk to your family and friends. -Find tips and shared experiences in our Online Network from people who have been through surgery https://onlinenetwork.bcna.org.au/closedgroup/choosing-breast-reconstruction -Listen to our podcast about communicating with your health team: https://www.bcna.org.au/resources/podcasts/upfront-about-breast-cancer/upfront-about-breast-cancer/episode-3-communicating-with-your-health-professional/ If you're still considering your options and looking for community support, join our Online Network group: Choosing breast reconstruction For more information and support you can call our Helpline on 1800 500 258 between Monday – Friday 9am-5pm.
Perth Breast Reconstruction Support Group Lunch /Fundraiser for BCCWA
You are welcome to join us on Saturday 25th October from 12:30pm at the Herdsman Lake Tavern in Wembley (private function room) where we chat about everything to do with breast reconstruction. It’s very informal - we buy our own food/drink & ask/answer questions from ladies that have done their reconstruction. This is the place to hear honest answers about recovery & what things you can do beforehand to make it a little easier. Simone Hall the tattoo artist will be there to present about nipple tattooing & you can purchase temporary ones to try at home to see what a huge difference they make to the finished breast mound. I will also be selling some gorgeous cookies to raise money for Breast Cancer Care WA - a fabulous organisation that has supported thousands of ladies & their families so please bring some cash (I can also take extra donations if you would like to add something more to help other ladies on their journey.) You are welcome to bring a female friend for company 😊
Stacked flap reconstruction
Hi everyone, just wondering if anyone had a stacked flap reconstruction (DIEP plus another donor site). Unfortunately not enough tissue for a DIEP so I’m likely to need tissue from both my thighs, so wondering if anyone have gone through surgery that required more donor sites? I feel ok with the idea of a longer recovery, but wondering more about increased risks from a bigger surgery. Thank you :)
Mastectomy /post surgery pillow
Hi all, I have a brand new mastectomy pillow that I found really helpful that is basically as new. I would be really happy to post it to anyone that is about to have surgery at no cost. I just can’t bear to throw it away and would be happy for it to help someone else! Just dm me with your address if you would like it. I’ve attached some photos x
Mastectomy/Diep flap reconstruction - What to prepare for
Hello, I am heading into hospital shortly for a Mastectomy with a DIEP flap reconstruction at same time. I am starting to prepare everything now, ie stocking freezer, ensuring I have everything at home ready and staying to look at what to pack for my stay in hospital (5 days). My Plastic Surgery has asked that I bring in post op bra and if I have spanx or similar bring that in. The bra was no issue I got ones from Kmart and Berlei. In terms of compression pants, I am at a lose. So much on the market, Any recommendations, do I go for underwear type, shorts or just stomach ones. I would be grateful for any tips.
Partial mastectomy & Tdap flap experience
Thought I would share my experience here for future users as I didn't find many examples for partial mastectomy and Tdap (thracodorsal arterial perforator) flap reconstruction. I was diagnosed at 43 with stage 1 idc of 3.5cm in my right breast. It was found in my first ever mammogram which I only had as baseline because I was starting HRT for perimenopause. Thank god it got caught early. My Surgeon was very thorough and ordered CT, bone scan and MRI, which didn't show any spread to lymphs or beyond. The tumour was located at about 10o'clock between the nipple and armpit. Due to its largish size of 3.5cm the Surgeon recommend partial mastectomy but indicated would be able to spare my nipple and key sensation nerves. Understanding the options available to me was really important including the pros and cons of each. In particular I wanted to understand options that would maintain sensation. My breast surgeon put me in touch with the plastic surgeon to talk through options. I strongly recommend you ask for this consult if it isn't offered to you. Given the size and location of my tumour if I had opted for a reconstruction only the breast size would be very small, and then I would have needed to consider reduction of the healthy left breast for symmetry. The Plastic surgeon identified I was a good candidate for a TDAP flap reconstruction as part of a single surgery. While there are some risks a flap might not take, I felt it was the best first choice option for me. And I was positive that if everything went well I would only need one surgery rather than subsequent later reconstruction surgeries. Involving both breast surgeon and plastic surgeon did add a few weeks and a number of appointments to the first month after diagnosis. Luckily for me with my particular diagnosis the surgeon wasn't concerned it would impact on my prognosis. I am very aware how lucky my circumstances have been to allow me these choices. My surgery was about 4 hours I'm told. The breast surgeon removed the tumour, x-rayed to check the margins and then handed over to the plastic surgeon. In the end the flap needed to be taken from between Tdap and ldap area on my back close to my armpit area in order to have suitable arteries for blood connection. 1 lymph node removed. Thankfully when I came out of surgery I didn't have any nausea and ate a meal that evening! I was in hospital for 6 nights afterwards as you have two drains for flap surgery and the plastics team like to Closely monitor the flap and drains. The main discomfort I had for first few days was a sore shoulder because my arm had to be above my head for the four hours surgery. So anti-inflammatory cream was in high use. I was able to walk from day 2 and pretty much just on Panadol for pain. The bruising all over the entire breast was epic so arnica cream was essential. After 6 nights in hospital I was allowed to go home with my drains and have daily nurse visits to check. I also had direct mobile number for my specialist nurse if I had any questions. Being home in a quiet bedroom was a relief after the noisy nights of hospital ward. Currently on day 10 post surgery and still have the two drains, although I think they will be out in next few days. Flap surgery can also mean longer period of recovery before you can drive-up to six weeks. Although that is very individual and I'm hoping I might be able to drive in another week or so. Still early days but thought I would share my experience so far. SPerth Breast Reconstruction Support Group Lunch
Join us on Saturday 28th June 12:30pm Herdsman Lake Tavern Wembley to meet with other ladies who have done reconstruction. Simone Hall the tattooist will be there to answer your questions about 3D nipple tattooing & you can purchase her temporary 3D nipple tattoos to see what a huge difference those circles of colour will make. You may bring a female friend for company - you will find us in the function room. We are a very informal friendly group - so bring your questions along and get realistic answers of what to expect.Going flat after implant rapture
Hi All I had a bilateral mastectomy 8 years ago with expanders and silicone implants (aged 48 at that time). Here I am 8 yrs on and find I have had a implant rapture and now have silicone in my axillary, clavicle and chest lymph nodes. Rapture likely 12 mths ago due to spread of silicone, that is why its called a silent rapture. I had the mastectomy to not live in fear of getting breast cancer (as my mother had it twice) and I had a young son. Here I am now living in fear of what the silicone toll will take. Have received advice and can do reconstruction but would need to use flap under arm area as well as implants as the skin is thin due to expanders from first reconstruction for a swap out or I am thinking go flat. Going flat will prevent the fear of further possibly of another rapture and more silicone in my system. If I had have been told 8 yrs ago I could have the mastectomy to prevent cancer but they cant reconstruct I would have still had the mastectomy so I am coming to terms with the flat chest option. Has anyone on this forum had reconstruction with implants then gone flat later? Any advice, regrets, experience with prostheses double breasts at all?
DCIS - Mastectomy - Recon - clear for two years....now potentially something else
My situation in a brief paragraph: At 50 years of age, I was diagnosed with DCIS in my left breast. I opted for a bilateral mastectomy and recon. Sentinel nodes were clear. No radio or chemo required. That was almost two years ago. Apart from now suffering all the typical effects and symptoms of menopause due to no HRT, I've been blessed with a dream run and fantastic road to full recovery from BC. Completely grateful and thankful for the team and support I've had around me. The latest situation is that I've just been for my second annual post BC ultrasound with a view to reducing visits with my surgeon from three monthly to annually. I was looking forward to kissing cancer goodbye!! However, the sonographer has found an inflamed and vascular looking lymph node in my right armpit (opposite side to original BC diagnosis). It was explained to me that this can be due to a number of reasons: fighting off an infection, breathing in smoke, recent flu vaccinations or, at worst, something more sinister like cancer. My surgeon reviewed this and wants another ultrasound in three months to check on it and if need be, will biopsy then....I have a sick feeling about this. Since I don't feel like I'm fighting an infection, I haven't breathed in smoke lately & my flu vax was done 10 weeks ago in the opposite arm .... I am feeling extremely anxious that cancer has returned and that it's found a spot in my right armpit to grow and spread. A three month wait to see if this is or isn't the case seems like absolute torture and a return to 'the waiting game' that only cancer sufferers know. I'm sure that most of you reading this post can relate to the worry of 'the wait' when you have that initial cancer diagnosis. The awful feeling of being out of control and the unknown picture of what's up ahead. Sleeplessness has returned. Constantly thinking about it has returned. The worry has returned. I have back and neck pain that I'm sure is due to the stress, but am naturally concerned it's cancer returned. Since my mastectomy and recon, I've been able to put all of that aside - until now. Has anyone here experienced a vascular anomaly with their lymph nodes post having BC and recon? If so, what was it attributed to? How was it handled by your team? Should I be asking for a lymph biopsy or intervention earlier than waiting three months or am I worrying unnecessarily? I'd be grateful for any thoughts, honest advice or similar experiences & decisions that anyone can offer.
