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đ¨ď¸How to start a discussion
Weâve recently updated our system, so the way you start a new discussion has changed slightly. We know that any change can be a little confusing at first, but weâre here to help make it as easy as possible. If youâd like to share a question, experience, or start a conversation, just follow the steps below. And remember, if you get stuck or have any questions, our Helpline is always here to support you. To start a discussion, select a category from the Online Network homepage under Categories. In your category, select from the Forums in this Category list. Early breast cancer, if your discussion is related to early breast cancer DCIS, if your discussion is related to DCIS Metastatic breast cancer, if your discussion is related to Metastatic breast cancer General, if your discussion is related to something else. On the right hand side of the banner, underneath the Search bar, you will see the button Start a Discussion. Click on this button to create your post.đBreast cancer support services near you
Access to breast cancer screening and support varies across Australia, and understanding whatâs available in your area can make a real difference. Hereâs a simple breakdown of the services delivered across the different regions - we hope this list can help lighten the load for you and reduce some of the extra noise around accessing breast cancer support services. There are countless cancer support services out there. If you've had a great experience with one, or have a suggestion to add to this list, please comment below - we'd love to keep this list growing! đ¸AUSTRALIA - ALL STATES BCNA - Service Finder BCNA - Find a surgeon for breast reconstruction McGrath Cancer Care Nurses - Find a nurse near you Breast SurgANZ service finder - Find A Surgeon Cancer Council - Access cancer support online or call 13 11 20 Look Good Feel Better - In-person and online support workshops for people with cancer Counterpart -Online workshops for women with cancer Confidence Kits - Look Good, Feel Better's FREE self-confidence kit. My Care Kits - BCNA's FREE post-surgery support kit. Mummy's Wish - Support for mothers with cancer with young children. Otis Foundation- Retreats for people with breast cancer (family friendly). The Pink Sisters - Online support group for women under 50 with metastatic breast cancer Second Hope - Online support group for women over 50 with metastatic breast cancer Fabulous Over 50s- Online support group for women over 50 with any stage of breast cancer Canteen - Support for young people affected by cancer (either personally or supporting a family member) Supporting Blokes - a supportive online group for men whose partners have been diagnosed with breast cancer. Rural transportation support - National Rural Health Alliance Cancer Support Angels - Pantry care packs, housing and financial assistance Gather My Crew is transforming how Australia helps and cares â by giving everyday people the tools and confidence to offer real, coordinated support when it matters most. Dragons Abreast - Dragon boating activities connecting people with breast cancer Low Impact Pilates - Online Classes Yoga - Online Classes Meditation - Online Classes Reflexology - Online Classes The Wig Emporium - shipping across Australia and New Zealand. Pink Scissor program - complimentary haircuts before and after chemotherapy to support related hair loss (Locations Aus-wide) Bravery Co - Fun head scarf designs made by 3x cancer survivor đ¸VICTORIA BreastScreen VIC - Find A Screening Location Cancer Council VIC - Support services Counterpart - In-person support workshops for women with cancer Counterpart - Peer support for metastatic cancer The Menopause Warrior - Workshops supporting medication-induced menopause The Multipurpose Taxi Program - 50% off taxi fares offered by Cancer Council Patient assisted travel scheme VIC - Long distance medical travel help Travellers Aid - Travel Companions, Mobility Equipment Hire, Crisis Travel Support Wig Fittings - The Living Centre Melbourne Wigs for chemotherapy - $300 grant Hair loss support - chemotherapy & alopecia friendly Sparkle Therapy Foundation - gifts, outings and experiences for people with cancer. Specialty fittings - bra fittings and swimwear after mastectomy Geelong - Peer support hub Counterpart Gippsland breast cancer support - fuel, grocery, meal vouchers & wigs for locals Mildura - Sunraysia cancer resources đ¸NEW SOUTH WALES BreastScreen NSW - Find A Screening Location Cancer Council NSW - Support services Patient assisted travel scheme NSW - Long distance medical travel help ACTIVATE Cancer Care Program - Wollongong Private Hospital Sutherland Shire Breast Cancer Support Group | BCNA Online Network Illawarra Cancer Social Group - Access via their Facebook Group Pyrmont - 3D Areola/Nipple tattoos and scar camouflage Maitland - Bra & breast form fitting Windsor - Wig services Campelltown/Macarthur - The Pink Pride breast cancer support group Petersham - specialised breast cancer physiotherapy CanRevive - Cancer support workshops for mandarin & cantonese speakers. Pink Sari - Cancer support workshops for Indian and Sri Lankin communties. đ¸QUEENSLAND BreastScreen QLD - Find A Screening Location Cancer Council QLD - Support services Patient assisted travel scheme QLD - Long distance medical travel help Mater Cancer Survivorship Service - free consultation to receive a personalised care plan. Greater Brisbane - Exercise Physiology for Cancer patients Manoora - specialised oncology physiotherapy & massage Tewantin (Noosa) Monthly Cancer Support Group đ¸SOUTH AUSTRALIA BreastScreen SA - Find A Screening Location Cancer Council SA - Support services Patient assisted travel scheme SA - Long distance medical travel help Brassiere private fittings - Post Surgical & Lymphoedema friendly bras and swimwear đ¸AUSTRALIAN CAPITAL TERRITORY BreastScreen ACT - Find A Screening Location Cancer Council ACT - Support services Patient assisted travel scheme ACT - Long distance medical travel help đ¸WESTERN AUSTRALIA BreastScreen WA - Find A Screening Location Cancer Council WA - Support services Patient assisted travel scheme WA - Long distance medical travel help Perth Surgeons - Breast Surgery đ¸TASMANIA BreastScreen TAS - Find A Screening Location Cancer Council TAS - Support groups Patient assisted travel scheme TAS - Long distance medical travel help đ¸NORTHERN TERRITORY BreastScreen NT - Find A Screening Location Cancer Council NT - Support groups Patient assisted travel scheme NT - Long distance medical travel helpđAbout BCNA's Online Network đSTART HERE!
Welcome to BCNAâs Online Network. The same network you know and love, but now even better and with a single login for our digital tools. Online Network has been designed around your needs, based upon your feedback. The platform enhances your user experience, security and accessibility, while connecting you with other people affected by breast cancer. Most of your data, settings, and preferences will remain as you set them on the previous version. If you have any questions, please go to our Frequently asked questions page in the first instance. To ensure we do not miss any of your feedback or technical issues please log these under the Get in Touch form to ensure feedback is collected in the centralised area. How to sign up and login If youâre feeling a bit lost after reading our Frequently asked questions page, please call us on 1800 500 258 and we will be able to help. Visibility of public posts and comments Please be aware that your posts and comments in the public discussions and public groups can be found and read by anyone, including those who are not members of the network. This means that what you share in a public discussion or public group may be read by a wider audience, please consider this when sharing sensitive or personal details. Community Guidelines We have updated our Community Guidelines. Please read through the guidelines before starting on the Online Network to ensure that you understand how we can support you and your obligations as a member of the community. The guidelines include information about community safety, privacy, prohibited content, feedback process and the consequences of breaking these guidelines. If you have suggestions or questions about the community guidelines or any aspect of moderation, please call us on 1800 500 258. Legacy Process Our updated Legacy Process explains how members of the Online Network can record their wishes for what happens to their account after death - either to have it memorialised or deleted. It outlines the steps for submitting written consent via email and explains the important role of a family member or legal representative in confirming the death and enabling those wishes to be carried out. For any questions, members or family can call us on 1800 500 258.đNotification of activity
Do you want to be notified when there is activity in the Online Network? You will automatically get a notification when someone comments on one of your discussions or a discussion you have participated on, but if you want to be notified when there is new activity within a group, follow these steps: Where you see the bell and a + symbol, you can follow the group or discussion Simply select the bell and it will update from a + symbol to a tick, this means you will be notified when there is activity.đˇď¸How to 'Tag' other members on BCNAâs Online Network
One great way to engage with others is by tagging them in your posts or comments. Tagging helps notify someone that youâre talking to them or mentioning them in a conversation. What does âTaggingâ mean? Tagging is when you mention another member by name in a post or comment using the @ symbol. It creates a clickable link to their profile and sends them a notification so they can see your message. How to tag someone Just follow these steps: Type the @ symbol in your post or comment. Start typing the personâs username (e.g. @JaneSmith). A list of matching names will appear - click the correct one. The name will turn into a link once posted. Example: Tips for Tagging You can tag more than one person in a post. Make sure you spell the username correctly. We hope the above instruction is helpful in making your conversations more personalised. If you need further support or guidance navigating the Online Network, please contact our Helpline 1800 500 258.đťOnline Network Account Data & Request Consent
BCNA requires consent to make changes to your account via email, and depending on your change preferences, should include the following: đ Change your account details - email or username If you would like your Online Network account personal details to be changed, please include that as an instruction in your email. đDelete your account or remove certain content If you would like any of your Online Network content or information to be deleted, please include that as an instruction in your email. đConsent for your family to act on your behalf in memoriam. It is crucial to note that BCNA cannot act upon any of these requests unless we directly receive consent from you. In the event that someone makes a data-sensitive request to BCNA on your behalf, we ask that you email helpline@bcna.org.au or call 1800 500 258 giving consent to that family member or legal representative to request Online Network account changes. If we receive notification of your death from your delegated representative BCNA will update your Online Network profile to reflect âin- memoriam'. Read more about the Legacy Process here. đ If you have questions relating to this process, please email helpline@bcna.org.au or call 1800 500 258.đŞBe your best advocate with your treating team
We've compiled the following lists of questions to help support you in preparing for those appointments where you might feel a little confused or overwhelmed. These questions are designed to help you on the path to having your voice heard during appointments with your treating team as you navigate a breast cancer diagnosis. If there are additional questions not there that you feel helped you, please comment it below so we can continue to grow our impact in empowering patient conversations â¤ď¸ Communication Support Communication with your treating team: đ Questions to Ask: DCIS Newly diagnosed (DCIS) Early Breast Cancer Newly diagnosed (early breast cancer) Treatment (early breast cancer) Finishing active treatment (early breast cancer) Breast Reconstruction Breast reconstruction â questions to ask a surgeon Metastatic Breast Cancer Metastatic breast cancer diagnosis Metastatic treatment and care team Stopping metastatic breast cancer treatment Community Support Young women diagnosed with breast cancer Men diagnosed with breast cancer Questions to get support for First Peoples Questions to get support in remote and rural areas
