📣 BreastScreen progress has flatlined. BCNA’s response to AIHW data.
Breast Cancer Network Australia (BCNA) is calling on the Federal Government to immediately action recommended reforms to the national BreastScreen program. The newly released BreastScreen Australia Monitoring Report 2025 reveals a disappointing 2% increase in participation between 2021–22 and 2023–24. “Yes, more women are being screened — but that’s because there are more women, not because the program is performing better.” Says Vicki Durston, BCNA’s Director or Policy, Advocacy and Support Services BCNA is calling for urgent reform: ✅ Risk-based screening ✅ Breast density reporting ✅ AI & innovation investment ✅ National consistency ✅ Equity for Indigenous women BCNA says women and families cannot wait any longer for an effective, modern breast screening program and is calling for urgent action. Read BCNA’s full response at https://www.bcna.org.au/media-releases/breastscreen-progress-has-flatlined-bcna-responds-to-aihw-data/📅 Save the Date - New Global Breast Cancer Care Framework
If you've got an interest into the healthcare system side of the breast cancer experience, you might like to join the VCCC Alliance for an upcoming online event introducing the Breast Cancer Care Quality Index (BCCQI) - a new, globally informed framework designed to help identify gaps in breast cancer care and support action aligned with the WHO Global Breast Cancer Initiative. 🗓 Monday 2 March 2026 🕐 1.00–2.00pm AEDT (Melb/Syd time) 📍 Online Hear from three international leaders involved in the development of this innovative measurement framework, including: Dr Benjamin Anderson (WHO Global Breast Cancer Initiative) Dr Maira Caleffi (Union for International Cancer Control) Dr Ana Rita Gonzalez (Policy Wisdom) This session will explore the global breast cancer cost, the need for consistent care, and how the BCCQI can support countries to translate global targets into meaningful local action within healthcare systems. 🔔 Save the date! 👉 Event information: VCCC Alliance event page📅 Save the Date - New Global Breast Cancer Care Framework
If you've got an interest into the healthcare system side of the breast cancer experience, you might like to join the VCCC Alliance for an upcoming online event introducing the Breast Cancer Care Quality Index (BCCQI) - a new, globally informed framework designed to help identify gaps in breast cancer care and support action aligned with the WHO Global Breast Cancer Initiative. 🗓 Monday 2 March 2026 🕐 1.00–2.00pm AEDT (Melb/Syd time) 📍 Online Hear from three international leaders involved in the development of this innovative measurement framework, including: Dr Benjamin Anderson (WHO Global Breast Cancer Initiative) Dr Maira Caleffi (Union for International Cancer Control) Dr Ana Rita Gonzalez (Policy Wisdom) This session will explore the global breast cancer cost, the need for consistent care, and how the BCCQI can support countries to translate global targets into meaningful local action within healthcare systems. 🔔 Save the date! 👉 Event information: VCCC Alliance event page🌍 Global Advocacy Win: Breast Cancer Named in UN Political Declaration 🎉
We’re excited to share a major milestone in BCNA's advocacy. Last week, the United Nations formally adopted the Political Declaration on Non-Communicable Diseases and Mental Health - and through the advocacy work of BCNA, breast cancer is explicitly named in the final text 🎉 ✨ Why this matters: Although it might seem confusing for BCNA to focus our advocacy efforts overseas as well as in Australia, the UN declaration helps place critical attention on our own government's ongoing priorities for policy and investment issues that impact people affected by breast cancer. It also enshrines international accountability for supporting people living with breast cancer. 💪 How BCNA made this happen: In July, when breast cancer was missing from the draft UN Declaration, BCNA met with the Australian Ambassador to the UN and the Mission team in New York. We did this because something we know, after 27 years of advocating for people affected by breast cancer, is what is named gets attention, and what is not named is often overlooked. Within 24 hours, we partnered with the Institute of Cancer Policy at King’s College London to produce evidence-based recommendations, informed by lived experience and global data. This paper helped shape Australia’s position, verified by Cancer Australia, DFAT, DoHA, and ministerial offices. In the final negotiations, Australia called for breast cancer to be named. No other country did. But once Australia spoke up, others followed. The result: breast cancer is now in the Declaration and people living with breast cancer in Australia are more empowered to keep speaking up and working towards strengthening our healthcare rights. Thank you to all BCNA staff, partners, and the Australian Government for trusting us to lead this work. Your efforts made this global outcome possible. 📄 If you’re interested on what this all means from an impact perspective, you can read more: 👉UN Political Declaration: https://lnkd.in/gm8fV2MY 👉BCNA & Institute of Cancer Policy paper: https://lnkd.in/gQJcTTSf 👉BCNA takes your voice to the UN General Assembly: https://www.bcna.org.au/bcna-takes-your-voice-to-the-un-general-assembly🌍 Global Advocacy Win: Breast Cancer Named in UN Political Declaration 🎉
We’re excited to share a major milestone in BCNA's advocacy. Last week, the United Nations formally adopted the Political Declaration on Non-Communicable Diseases and Mental Health - and through the advocacy work of BCNA, breast cancer is explicitly named in the final text 🎉 ✨ Why this matters: Although it might seem confusing for BCNA to focus our advocacy efforts overseas as well as in Australia, the UN declaration helps place critical attention on our own government's ongoing priorities for policy and investment issues that impact people affected by breast cancer. It also enshrines international accountability for supporting people living with breast cancer. 💪 How BCNA made this happen: In July, when breast cancer was missing from the draft UN Declaration, BCNA met with the Australian Ambassador to the UN and the Mission team in New York. We did this because something we know, after 27 years of advocating for people affected by breast cancer, is what is named gets attention, and what is not named is often overlooked. Within 24 hours, we partnered with the Institute of Cancer Policy at King’s College London to produce evidence-based recommendations, informed by lived experience and global data. This paper helped shape Australia’s position, verified by Cancer Australia, DFAT, DoHA, and ministerial offices. In the final negotiations, Australia called for breast cancer to be named. No other country did. But once Australia spoke up, others followed. The result: breast cancer is now in the Declaration and people living with breast cancer in Australia are more empowered to keep speaking up and working towards strengthening our healthcare rights. Thank you to all BCNA staff, partners, and the Australian Government for trusting us to lead this work. Your efforts made this global outcome possible. 📄 If you’re interested on what this all means from an impact perspective, you can read more: 👉UN Political Declaration: https://lnkd.in/gm8fV2MY 👉BCNA & Institute of Cancer Policy paper: https://lnkd.in/gQJcTTSf 👉BCNA takes your voice to the UN General Assembly: https://www.bcna.org.au/bcna-takes-your-voice-to-the-un-general-assembly
⭐ How Australia Built Its First National MBC Estimate
Last week, I had the honour of announcing the outcome of BCNA's 3-year project, as the technical report underpinning Australia’s first national estimate of metastatic breast cancer was released. This milestone was delivered through a national collaboration between AIHW, Cancer Australia, the Department of Health, the Australian Cancer Data Alliance, state and territory cancer registries, data leaders in NSW, Victoria and Queensland, and BCNA. Using “new innovative methods”, the report found that “approximately 20,800 Australian women and an estimated 150 Australian men were living with metastatic breast cancer in 2024.” This work addresses a long-standing gap, with “Australia’s cancer data system currently fragmented” and most state and territory cancer registries not reporting stage at diagnosis unable to record whether a cancer has relapsed or recurred to metastatic. 🔍 How the estimate was created. The technical report highlights several key developments: “the development at AIHW of the national linked cancer and treatment analysis asset (CaT-Link)” “development of a counting method and estimates for NSW by the CINSW and associated researchers” “estimated MBC prevalence in Queensland and Victoria by CAQ & CCV” “counts for three states… which cover a large proportion of the Australian population” These inputs enabled AIHW “to estimate national prevalence, as well as indicative estimates for each state and territory.” 🔭 What’s next? Phase 2 will “rely on the use of soon to be available linked data” through the National Health Data Hub to produce “more complete and reliable estimates and analyses for specific populations.” This national estimate is the first step in delivering the vision set out in BCNA’s 2023 roadmap delivered to government , Cancer Australia’s Australian Cancer Plan, and the National Cancer Data Framework. The priority now is to call for deepened jurisdictional and state data. We want researchers, industry, governments and policymakers using this evidence immediately to drive planning, investment and reform. 👉 I've attached the two important reports for you below. Give them a read and comment below what stood out the most for you 💬 AIHW report : https://lnkd.in/gKMAnqpY BCNA From Invisibility to Influence: Progress on MBC data reforms in Australia: https://lnkd.in/gngYrngy20,950 pledges for 20,950 Australian living with metastatic breast cancer
For the first time, data shows that 20,950 Australians (20,800 women and 150 men) are living with metastatic breast cancer (MBC). This figure is double previous estimates and exposes the scale of need and urgency for health system reform. ✨ Being counted is fundamental to being cared for ✨ The Hon Mark Butler MP, Minister for Health & Ageing, says the national estimate marks an important milestone in Australia’s cancer data reform and visibility for people living with metastatic breast cancer. Whilst we celebrate this extraordinary national milestone, we will not stop here - our work continues. This first national estimate has given Australia long-overdue clarity, but sustained visibility now depends on every state and territory playing its part. With the recent launch of Cancer Australia’s national data framework, the time is right to strengthen our cancer data systems and ensure they reflect the realities of people living with metastatic disease. 📣 BCNA is calling on all Australians to show their support for people living with metastatic breast cancer by urging state and territory governments to invest in their cancer data registries to ensure this population is counted in our health system. We’re collecting 20,950 pledges for the 20,950 Australians living with metastatic breast cancer. 📝Visit bcna.org.au to show your support and sign the Together We Count pledge today.📣 20,950 Australians.
After 27 years of BCNA advocacy, we've reached a milestone moment: For the first time, Australia has a national figure for people living with metastatic breast cancer (MBC). That number is 20,950 Australians. These are people with unique, long-term needs who, until now, have been invisible in our health data and largely overlooked in health system planning. On 27 November, we officially announced this landmark data alongside our report; 👉 From invisibility to influence: progress on MBC data reforms in Australia. Together, we can ensure this data translates into meaningful change. People with MBC deserve a health system that sees them, plans for them, and supports them to live longer and live well. This data gives us the foundation to make that happen - but only if we maintain the momentum. What can you do? Sign BCNA's pledge calling for investment in ongoing MBC data collection in all states and territories. 👉 Sign the pledge today 📞 For further support or questions about this announcement, call our Helpline on 1800 500 258 Monday-Friday 9am-5pm AEDT‼️Tomorrow is the day.
No one knows how many people are living with metastatic breast cancer, not just in Australia, but around the world - something that BCNA has been advocating to change for over 27 years. Together, we acknowledge the missing link and everyone who has waited to be counted. Tomorrow, we make it count. For too long, a community has been living in the shadows, their experiences missing from our national data. BCNA has been fighting to change that. Change begins tomorrow.‼️Tomorrow is the day.
No one knows how many people are living with metastatic breast cancer, not just in Australia, but around the world - something that BCNA has been advocating to change for over 27 years. Together, we acknowledge the missing link and everyone who has waited to be counted. Tomorrow, we make it count. For too long, a community has been living in the shadows, their experiences missing from our national data. BCNA has been fighting to change that. Change begins tomorrow.
