Surgeon & Hospital Choices Melbourne
Hi, I am recently diagnosed with DCIS and 75 years old. I live in Melbourne and need to select a Surgeon and Hospital for either a Lumpectomy or mastectomy. Does anyone have experience with Cabrini or Epworth and also with the surgeons Sarah Kemp or Melanie Walker?
Breast look and feel- one real and on implant
Hi all, I’m deciding between a double or single mastectomy. I’m 48 and single and really want to conserve the look and feel of my boobs as much as possible. I was wondering if I got one with implant and left the other natural (the surgeon said he could lift it up a bit to match my implant side)- will they look similar still? And will they feel (to touch) completely different from one another? Thank youLooking for suggestions after double Mastectomy
Hi everyone. How good is this website? I have learnt so much. I have been recently diagnosed with Breast Cancer 😒 and will be having a double mastectomy in the coming weeks. I am looking for suggestions/ideas for post surgery. For example clothes to wear, pillows, chairs, sleeping positions and the like. Looking forward to your ideas. Thank You
Surgery decisions
Hi everyone, So many decisions. I am having ALL the treatment started with 8 weeks of 4 F/N treatment of AC medication. By the end i was cooked. Now at the half way mark of my intended 12 weeks PAC treatment i don't think ill make thr full course as the side effects ramp up. Then Radiotherapy of up to 5 weeks of targeted therapy. They weren't lying when they said prepare for a marathon. I have hormone related lubenal BC to my left ONLY. Based in Melbourne. Post radiotherapy i have to make a decision about surgery. A mastectomy is required as the chest wall has shown intrusion there so I have been advised the surgery will mean they will take half or all the chest wall. And they also want to remove the lymph nodes. The surgeon has shown me pictures and he wasn't lying when he said it can be quite disfiguring. I thought I was certain I wouldn't care about being flat but the disfiguring images have made me reassess. I will not have the opt to do an implants. The choices are as follows. 1.Left removal stay flat or left removal diep recon. Dispose other half of diep flap. 2.Double mastectomy removal remain flat or diep recon using all flap. Im so overwhelmed and worried that if i choose flat especially on left that i might regret not doing recon. Recon and mastectomy and recovery time and double wound sites of areas that didn't need to be cut also flip me each day I think im going this way then I flip and go another way each day is different mostly im unsure whether I should continue cutting into parts of my body that have no issue. What im hoping to gain from the group are lived experiences as to what made you come to the decision you did. Any experience that might have had similar options presented to you. What was recovery like? What did you prepare for post surgery? What tips could you recommend for pre and post surgery rest and care. I fly at least once a month for my work and am told I will need compression stocking on my arms before during and post flights. This BC is like a gift that keeps giving the worse gifts. Then to find out in review that even the Hormone blocking meds come with its own side effects some people reporting its worst than treatment! Anyway sorry for the long post but will welcome anyone's share of experience. Thank you and i wish you courage and bravery if you are straddling this journey too!No tests before surgery
Hello everyone, im having surgery in 15 days. Obviously im getting a bit more anxious. I asked my Dr do i need scans or bloods before my bilateral mastectomy he said no. My sister said that is strange and not right. She made me worry and stress more. I just want to get thru this and hopefully be all clear and not require further treatment. Can I ask what others have had to do prior to surgery..eg bloods and such. Thank u xxx
Newbie…long story
Hi everyone, Newbie here. Never dreamt I would be joining this club, but who does ?! This forum and website have been so helpful to me over the past month. My journey started last June when I decided to speak with my GP about a tender spot right on the inside edge of my left breast. She reassured me that tenderness isn’t typically a symptom of breast cancer, but we would check it out. Got an ultrasound and mammogram. US identified a small mass, mammo some calcifications. Got an us biopsy around October, all clear. Then around Christmas I noticed some brown nipple discharge (took a while to accept it was coming from the nipple, thought I had spilt something…. Every few days in the same spot!!!). Back to the GP, another ultrasound. The report said there was “debris” in the duct, couldn’t exclude papilloma, MRI would confirm, surgical consult recommended. So off for the consult, after which I was told the discharge was due to trauma to the breast from the biopsy (they didn’t send me for the MRI). This was purely based on discussion and very brief examination. In hindsight and knowing what I do now, I would have pushed back and demanded the MRI regardless. Relief! But my GP wasn’t convinced. She sent me for an MRI then a consult with a specialist breast surgeon who, after looking at the MRI, immediately sent me for some MRI and stereotactic biopsies…2 in my left and one in the right. That was a bit of a marathon! I was convinced it was all a waste of time and money! I turned up to the surgeon for results unconcerned…obviously rather naive! “You’ve got a lot going on in your breasts!” were her first words. LCIS and papilloma in my right breast, DCIS and invasive Mucinous carcinoma in my left. I was speechless. Shocked. Bewildered. Confused. We briefly discussed next steps, but I couldn’t get out of there fast enough! I called my husband in tears. We went back together to the surgeon the following Monday, after doing a bit of research, lots of reading, and chatting with a wonderful McGrath Breast Care Nurse. After asking more questions, I decided on a left mastectomy and right lumpectomy. Plus sentinel node biopsy on the left. But I was so angry. How could the first surgeon send me away without really being sure??!! I went through all the feelings, disbelief, anger, sadness, grief, a bit more anger, and finally acceptance (mostly anyway!!). I realise I have to let go of the anger, and am taking it on as a learning - it’s important to advocate for our own health and not accept something too easily if it doesn’t seem right. Hubby and I had a two week holiday booked up north the following week, which the surgeon said was fine, so we booked surgery for August 13, ten days after we would get home. The holiday was great, we hadn’t told anyone at that point (except my mum and work). We were able to not think about it and had some really special time together. It was good to have the space and time to process what was happening. so now I’m one week post surgery, contemplating the future, keen to get back to everything I used to do. I had been training for a half marathon in September, which of course now won’t be happening. We are hiking the Overland Track in February, so that’s what I’m aiming for. I’m so very lucky to have an amazing, competent, supportive partner. He has taken the same time off work as me to support my recovery. He even washed my hair for me yesterday :-) Recovery is going pretty well, although I’m often still uncomfortable in bed. Getting the drain tube out a couple of days ago was wonderful! We go back to the surgeon next week (two weeks after surgery) for dressings etc and results. Fingers and toes are all crossed! Thanks for getting this far, there’s something a little cathartic in writing this down. I’ve really appreciated reading others stories, it helps with knowing we are not alone and the feelings are valid. Thank you :-) Belinda xx
Recommendations-North Brisbane -Public v Private- Surgeons
Hi Everyone, I do hope everyone is travelling as well as they can be. Was hoping to hear of experiences and recommendations about Public v Private -North Brisbane. My GP has advised if I choose to go private then I need to find surgeon and they can send referral. Not sure where to start…have rang some surgeons, am feeling like I am looking for a needle in a haystack. Has anyone had experiences with going private and having significant out of pocket expenses? Or going Public and what wait times/facilities are like, that they are comfortable in sharing. Preliminary advice is that it is likely treatment will be Chemotherapy then surgery, nothing confirmed until appointment with surgeon.
