Mental health and new diagnosis.
Hi all, been struggling really bad finding out i have cancer in my right breast early diagnosis. I dont know what sort as i cant cope with the details of it all. I have seen the doctors and waiting MRI appointment and surgery date. I am really struggling with the anxiety and the moving forward bit. I suffer with anxiety and depression quite badly. I was given the option of just having the two lumps removed or the whole breast. I cant decide which option will help me move forward better. So firstly is there any mental health accept to this organisation? I only have my hubby to rely on who is also classed as my career. I am unsure which option to go with as my mental health plays a big part in my descion. I need to make a descion that i can be happy with and wont make my anxiety worse. Unsure of who to talk to or where to go for help.Anyone moved breast care teams?
I'm currently being treated at a public hospital in Melbourne and will receive my lumpectomy results tomorrow. If the margins are clear, I plan to request a DCISionRT test, as I'm hoping to avoid radiation therapy. For anyone who has transitioned from the public system to private care, did you have any difficulty obtaining your histopathology results and scans? My hospital has been very clear that they won't release any results before tomorrow's appointment, despite having an online portal. I'd like to have copies of all my scans and reports ready after the appointment so I can potentially arrange a consultation with a private breast care team.
Lipofilling - tips for preparation and recovery please.
Hi everyone. Back in 2024, I was diagnosed with DCIS and subsequently had a lumpectomy and radiotherapy. I'm now booked for my first round of lipofilling/fat-grafting at the end of July. The thighs are most likely going to be the donor site. I would like to hear from anyone who has experienced this type of surgery and what helped them to recover comfortably. Any tips on what to have in place for recovery? Are there similarities in the recovery process for this, as they are for a lumpectomy? I bruise really easily and dramatically, so it should be interesting to see how my thighs react. I'm also still experiencing daily pain from the lumpectomy and radiation (although I'm under the care of a Pain Clinic). Thank you. Cozycat.š£Have you experienced differences in surgical quotes? Weād love to hear from you.
Weāre looking to connect with our members living in Victoria who have received one quoted fee for surgery, and then either secured or discovered a lower cost elsewhere. Your experience can help highlight why greater transparency in healthcare costs is so important. šæ These insights will support advocacy efforts around the need for a transparent costs register, a topic very important to us here at BCNA that we will be working towards later this year. If this sounds like you, or someone you know, please comment below "learn more" to share your experience. Every story makes a difference in creating a fairer, more informed system for all. āØ
Write off 6 to 12 months?
I was given a diagnosis today of small tumor, early invasive breast cancer, double hormone positive and I have an appointment with surgeon in 1 week. At just-turned-60, the next 9 months were supposed to include 2 sons' graduations, 1 son's wedding (a family first), our 25th wedding celebration, a road trip to find-purchase-or-build a new home in a tree-change location in another state, and downsizing-packing-relocating. Surgeon and nurse at breast clinic today seemed to think "we can work around things" ...is that realistic? What is the most valuable question to ask the surgeon, next week, re time frames and realistic expectations? Thanks.
My reconstruction turned into 4 surgeries, 9 transfusions & a cardiac arrestā¦ I need advice
Hi everyone, Iāve been going back and forth about posting this, but Iām really hoping to connect with anyone who may have experienced something similar or can point me in the right direction. I was diagnosed with breast cancer in 2022 and went through the full treatment journey. In September 2025, I underwent reconstruction surgery. What followed was not what I expected at all. I ended up having four surgeries, required nine blood transfusions, and ultimately had the new breast removed. To make things even more traumatic, I went into cardiac arrest when they were trying to wake me up from surgery. I was told it was due to the anaesthetic drug-but I had previously had that same drug without any complications. I canāt shake the feeling that something wasnāt right. Iāve since questioned whether my body was already too weak, whether the amount of blood loss and transfusions played a role, or whether something was missed or mismanaged. This whole experience has had a huge impact on me physically and emotionally, and Iām now starting to consider whether I should be looking into this further from a medical and possibly legal perspective. I would really appreciate hearing from anyone who: Has had severe complications after reconstruction or surgery Has experienced cardiac issues related to surgery or anaesthetic Has sought second opinions or independent reviews Has gone down the path of a medical negligence claim Can recommend good lawyers or specialists (especially in Victoria) Iām not looking to place blame unfairly. I just want to understand what happened and whether I should be advocating more strongly for myself. Thank you so much for taking the time to read this š
Radiation Therapy
It's all been very quick diagnosed with stage 1, grade 1 invasive breast cancer, ER+ then appointment with surgeon 2 days later, lumpectomy and removal of two lymph nodes 4 days after seeing surgeon. Currently day 3 after surgery, home recovering. Get results on lymph nodes and margins next week. I'm trying not to think too far ahead, but ... I worry about radiation (been told 5 days a week for 4 weeks) and how it will affect me as I work full-time. Any advise on what I can do to make the next stage of treatment easier and what to expect āŗļø
Unilateral mastectomy with delayed reconstruction
Hi everyone, Iām currently in treatment for TNBC and starting to plan my surgery and reconstruction, and Iām really hoping to connect with others who have had a similar pathway. Others who chose unilateral mastectomy with expander/implant reconstruction Iām 41 and currently undergoing chemotherapy (AC followed by weekly Paclitaxel). Surgery is planned after chemo finishes very soon. My current plan, pending final discussions with my surgeon and a plastic surgeon, is: Unilateral mastectomy (left side) Nipple removal (due to previous lumpectomies and blood supply concerns) TExpander placed at the time of mastectomy Later exchange to a permanent implant (skin is tight and I'm too small for immediate reconstruction/DIEP) Possible fat grafting and/or minor adjustment to the natural breast for symmetry Genetic testing was negative, so my surgeon feels comfortable with a single-sided mastectomy rather than bilateral. One of my biggest challenges right now is that most of the stories and photos I find online seem to be double mastectomies and DIEP, and Iām finding it hard to visualise what unilateral reconstruction looks like long-term. Some things Iām especially curious about: How close did the reconstruction get to your natural breast over time? Did you end up having adjustments to the other breast? What did the expander stage look like under clothes? Were you happy choosing unilateral rather than bilateral? Anyone who slightly increased their size with implant? Did anyone here go on to have fat grafting to improve symmetry? Iām quite small-framed and originally around a B/C cup (medically-induced menopause and weight loss have decreased this somewhat), and ideally would love to maintain a similar size and shape if possible. Iām also trying to understand what the timeline looked like for others, particularly between mastectomy, expansions, and implant exchange. I would really appreciate hearing from anyone who has taken this path, especially if you: had unilateral reconstruction had expanders then implants were younger (30sā40s) when treated Even just hearing your experience would help me feel a little less like Iām navigating this blindly. Iām finding the lack of similar stories and images a bit overwhelming, so Iād really value hearing from anyone whoās been through something like this. Also, anything to potentially be aware of for out-of-pocket expenses. Thank you so much in advance.Just need to talk to someone
Iām 59yo and newly diagnosed with breast cancer. Iām really not sure I get what is going on either because Iām just slow or itās just not all clear yet so I feel confused, in total panic and that Iām drowning and there is nobody to save me š¢ I am waiting for an mri this Thursday. I have a 10cm Not Special Type Grade 1 something positive to do with hormones and her2 1+. The surgeon says mastectomy is the only choice because of the size. There isnāt anything clear about what happens after thatā¦ is that how itās meant to be? I just feel very lost appreciate any words of wisdom for these circumstances? susanWorking while waiting for surgery
Hi all, was diagnosed 3 weeks ago today with early stage and was told Iād be having surgery pretty quickly. Ended up having to have more tests to eliminate issues in the other side and thankfully that all seems to be clear. But that has meant I still donāt have a date for surgery (I should find out tomorrow hopefully). My question is about how youāve all kept sane during this ālimboā period. My emotions and anxiety are all over the place, I canāt really focus or concentrate so Iāve taken a fair few days off work. Iām lucky enough that I can work from home (when Iām up to it) and my boss is awesome but I weirdly feel guilty about taking time off as though I should be managing this better. Iām conscious my surgery might not be for another few weeks so feel I need to work out better ways to handle this. Any inputs welcome! Thanks.
