Would like to chat to others
Hi all I am 6 months post bilateral mastectomies and still having a few issues. Haven’t been to follow up appointments because I am a nurse and hate being in the patient side. Haven’t been to also avoided all counselling as I feel there are women far worse off than me but would be good to chat to women who have been through the same. EmmaWelcome New Members - 9th May 2025
Welcome to members who recently joined our community since the new platform update at the end of March. We hope you are enjoying the conversations! ads000au 543 JMA Cinta8 shipship Travelmac Madfairies inkblot58 BrendaB marglav Positiveus Nala25 TanyaT6 NDS Minka Amber77 Jane1981 Roses AliceM Pompeygirl2022 Danniskye Anna25 Beatrixb Amanda1909 Jaffa Sammy70 BelindaC ccross Allied Dennie Higgsy mel51 Posi Arnie07 TNBCHubby Marion50 suziq123 Lisaj53 Dayle Laura_5 Kym72 Tilbee jw2025 Coll1102 Jithin LaceysMum Bex Hurstmel helent Jaime rlb Bumblebee Nannybelle TC80 sueper70 thelifeofKH Tessa75 Melsie11 C_Honey JudithN LA Jo195 LQ emma85 Shereeh5 glasskat Jillie Lulijus Angela111 tnbc_2025 ABC123 Mazza1949 trinity_sue lollyshopgirl Sharkyswim Loralie1996 Youngad StephBfree Caz_ Fun-1 SJ11 bl glen Annie62 Cazza12 Subie01 shubhangifusam Sensi_713 Shelleigh Milan irob JMM j777 Fulyn Kirt April2025 larazon sfishe10 geeg susieq1969 LauraB27 vixterh Tetel Ando Cath74 EJM Miftymel Oddangie Sue12 Rose1988 nicholsmi Cath_68 Nani Leeo AJay Prim79 Braktas1 NelzD80 SamG latteandleaves Palmy66 Kevinamada LisadoesBC Livinglife111 Thames Jen5 paulina_gtzr kjwhite01 Dollycat1 Scotland123 DL_4481 JessEA scoutblazing A81 Gidget QP Ally327 Suzie54carter ljames Una Jane1970 Lizzie27 Ashkii LULUSMUM Vicki27 Ritam 3749447 TCH mezmf Jo-SA AnnieM42 Jewelzbee Aries01 Lisa76 layna PatW netney ThinLizzy HoneyBee3 Lou25 Neeke45 Wenzaroo11 CKewley jackie-1957 KA Shellby katethompson3 This forum is a supportive space where you can connect with generous members who provide meaningful support to each other. Share as much or as little as you feel comfortable with. Explore our various groups for greater peer-to-peer support. Helpful Links to Get You Started: How to start a discussion About BCNA's Online Network Check out our private groups! BCNA Online Network Groups Community Guidelines New breast cancer diagnosis? Read Living with DCIS, LCIS or early breast cancer Listen to BCNA's podcasts: Upfront About Breast Cancer: Just Diagnosed - What's Next? What You Don't Know Until You Do Metastatic Breast Cancer Diagnosis? Watch Just diagnosed with metastatic breast cancer - what's next? Get the Most Out of Our Community: Our long-time members (and newbies too!) are a wealth of information. Don't hesitate to post your questions. You can also update your profile with details about yourself, such as your breast cancer experience and where you live (e.g., Sydney, Melbourne, Regional Victoria) for more targeted responses. You may like to check some of our more light-hearted discussion threads while you are here: Friday Funnies Wise words Creative Corner! Our Gardens Need Help? Message BCNA_Mod or one of our other moderators: Daina_BCNA Astrida_BCNA Risha_BCNA Denise_BCNA . You can also contact BCNA's Helpline Manager Kate_BCNA Please Note: Please be aware that your posts and comments in the public discussions and public groups can be found and read by anyone, including those who are not members of the network. This means that what you share in a public discussion or public group may be read by a wider audience, please consider this when sharing sensitive or personal details. The Online Network is not moderated by staff/volunteers on weekends. For urgent queries, contact the Helpline Team via email at helpline@bcna.org.au or phone 1800 500 258, Monday to Friday, 9:00am-5:00pm AEST.BCNA Policy Priorities 2025
Every day, 58 Australians are diagnosed with breast cancer. Too many face high financial costs, and ongoing emotional and health challenges. That’s why BCNA is calling on the Government to make treatment more affordable, improve early detection, provide better support, and invest in vital cancer data. 🔗Read our policy priorities via the link BCNA Policy Priorities 2025Pink Bun is back!
Pink Bun is back! From today to 21 May 2025, at Bakers Delight bakeries across the country have turned pink to show their support for Australians affected by breast cancer Pink Bun 2025! Buy a Fun Bun, or even better, a 6 pack! 100% of sales go directly to BCNA and they're available at all Bakers Delight bakeries from 1 to 21 May. 🔗Find out how to get involved and find your nearest bakery via the link Support the Pink Bun Campaign 2025 You can also check out the broadcast on Channel 9's Today show earlier today Today Show Channel 9BCNA's metastatic data map
Check out BCNA's metastatic data map A visual reminder of our goal to achieve stage and recurrence reporting nationwide. Metastatic breast cancer is treatable but incurable. As people live longer with metastatic breast cancer, it’s vital we know how to support them. In a world first, NSW was the first state to report the number of people living with metastatic breast cancer. We’re looking forward to seeing the map fill out to make metastatic breast cancer count across Australia. 🔗Read more about what we’re calling for via the link https://www.bcna.org.au/latest-news/bcna-news/bcna-policy-priorities-2025/Friday Update - 17th April 2025
Hi everyone, We’re back with your latest update from Breast Cancer Network Australia (BCNA)—keeping you across activity happening within the organisation and the broader community. Whether you’re newly diagnosed, navigating treatment, or supporting a loved one, we hope you find the update useful. We cannot believe it is Easter already! Hope you can enjoy the time in a way that feels right for you. You may even like to grab a hot cross bun this Easter at Bakers Delight! Did you know Bakers Delight and BCNA have had a partnership for 25 years? (Read more about this amazing partnership in this update). 📚 Resource of the Month: “My Journey” upgrade If you haven't explore it it yet, BCNA has launched its new My Journey with better information and support for people impacted by breast cancer! You would've noticed that My Journey and Online Network can now be found in one place for a more streamlined user experience across all devices. We collaborated with consumer representatives and healthcare professionals in creating and reviewing our evidence-based content, ensuring the new My Journey features a broad range of the latest and most credible resources for you. Watch the video here of Naveena (BCNA Consumer Representative) talking about how to navigate the platform. If you have any questions, please go to our Frequently asked questions page in the first instance. To ensure we do not miss any of your feedback or technical issues please log these under the Get in Touch form to ensure feedback is collected in the centralised area. A special thank those of you who have supported us with feedback and troubleshooting solutions during the transition to the new platform. 📢BCNA in Action: Policy Priorities 2025 With breast cancer being the most common cancer affecting Australian women, annually it is costing the Australian Government nearly $1.8 billion. As we approach the federal election, BCNA is advocating for systemic change in four key areas: Reducing the financial costs of breast cancer treatment and support – Women with breast cancer experience high out-of-pocket healthcare costs as well as indirect costs such as loss of income, leading to substantial financial burden. Prioritising risk-based stratification for early detection and breast screening programs – Genetic conditions and breast density can significantly increase breast cancer risk. Access to specialist diagnostic and screening tests is limited due to restrictive eligibility criteria, cost, and workforce shortages, particularly in regional areas. Addressing unmet supportive care needs for people impacted by breast cancer – Advances in treatment continue to improve survival rates, but physical and emotional impacts such as chronic pain, fear of recurrence, and lymphoedema remain complex and require greater attention. Investing in a sustainable and comprehensive cancer data ecosystem – The lack of comprehensive cancer data, including metastatic staging and recurrence, limits evidence-based healthcare planning and investment. In addition to these priorities, BCNA continues to work alongside the Australian Access to Breast Reconstruction Collaborative Group (AABRCG) to advocate for those at inherited risk of breast cancer to access surgery as a Category 2 rather than Category 3 - preventing people from being diagnosed with breast cancer while they wait for essential risk reducing surgeries. To read more about this collaboration click here. We are also continuing to drive policy reforms that enhance metastatic breast cancer (MBC) staging and recurrence data reporting. 📢BCNA in Action: National Cancer Survivorship Conference 2025 BCNA recently hosted a pre-conference workshop From Patient to Partner: Unlocking the power of consumer engagement at the 2025 National Cancer Survivorship Conference , aligning with the conference’s goal of building capability and capacity in survivorship care and research. The workshop focused on strengthening research impact through effective consumer-researcher partnerships. The session explored best practices for embedding consumer voices in research to enhance study design, improve relevance, and drive meaningful translation into clinical practice. Led by BCNA, in partnership with COSA, the University of Queensland and Translational Research Institute, the workshop highlighted collaborative approaches to integrating consumers into survivorship research, supporting sector-wide learning and capability building. BCNA funded the attendance of BCNA Consumer Representatives and supported the involvement of other peak cancer NGOs involved in the ACNNP to come together. There was shared interest to prioritise reducing barriers and increasing participation in consumer engagement in research, policy and practice. For those newer to consumer engagement, conversations provided encouragement on how to keep moving forward with curiosity and respect. We look forward to sharing the formal evaluation outcomes with all participants and our network. Hear about the conference highlights 🤝BCNA Celebrating partnerships RED ENERGY For a decade now, Red Energy has turned pink for BCNA. Yesterday BCNA and Red Energy celebrated an incredible 10 years of partnership. Since 2015, Red Energy has supported the 58 Australians diagnosed with breast cancer, including being a Major Partner of Pink Lady Match and Pink Sports Day program, which galvanises communities across Australia. Red Energy’s belief in BCNA’s cause manifested itself in the development of the Red BCNA Saver Plan*, through which Red Energy has contributed over $2.3 million on behalf of its customers. 🔗Read more about the impact of this colourful and thriving partnership via the link Red Energy's 10 years of turning pink for BCNA BAKERS DELIGHT From 1–21 May 2025, Bakers Delight bakeries across the country will turn pink to show their support for Australians affected by breast cancer. This year marks a very special milestone, 25 years of partnership between Bakers Delight and Breast Cancer Network Australia (BCNA). Together, we’ve raised over $27 million to ensure that no one diagnosed with breast cancer is unsupported. 🔗Read more about this incredible partnership via the link Bakers Delight Breast Cancer Campaign Partnership 🎉 Event Spotlight: Carman's Fun Run is coming to Sydney in 2025! Carman's Fun Run SYDNEY 2025! We’re thrilled to share that the wildly popular Melbourne event Carman's Fun Run is coming to Sydney in 2025! Join us on Sunday 21 September as Metcalfe Park, Pyrmont, turns pink as our partners at @carmanskitchen and @solemotive bring this fantastic event to a brand-new city. Whatever your speed, we have an option for you. Choose to join our 5km, 10km or half-marathon run, or gather your friends and family for the 5km Pink Lady Walk. If you register now, you’re taking advantage of the EARLY BIRD RATE! Be quick because this discount stops 29 April 2025. Click on the link to find out how to register Register Here 👂 We Want to Hear From You! What topics do you want to see more of in the community? Share your feedback, questions, or ideas via helpline@bcna.org.au or reply directly to this post. Take care and keep the conversations going! @BCNA_Mod TeamDr Jo Prendergast "Cancer and Cartwheels"
What happens when a comedian’s life gets flipped over by cancer? They find the funny side of course. But can cancer be funny? When psychiatrist Dr Jo Prendergast was diagnosed with breast cancer in May 2021, she asked herself what good she could do with the treatment experience. As someone who cannot be idle - even during chemo - she put together a website on managing chemotherapy side-effects, made a semi-viral TikTok, and wrote her second comedy show. At the four-year anniversary of her diagnosis, Jo is cancer-free and ready to laugh about the tough stuff. She is inviting us to laugh with her. Jo's Cancer and Cartwheels show is touring nationally and supporting Breast Cancer Network Australia (BCNA). Jo has offered BCNA a limited allocation of double passes to each of her comedy festival ‘opening night’ shows in Adelaide, Melbourne, Sydney and Brisbane. If you would like to register to receive a complimentary double pass with a post show meet, greet and photo register here Cancer and Cartwheels - performance schedule and dates (opening night in bold): Adelaide : March 11 - 15, 2025 Melbourne : March 31 - April 6 2025 Sydney : April 26, 2025 Brisbane : May 17 -18 2025 Jo is also aiming to raise $5,000 through her shows to help BCNA continue to provide free support and resources for all Australians affected by breast cancer. This year more than 21,000 Australians will be diagnosed with breast cancer. She is encouraging her show attendees to make a donation and leave a message or dedication on her event fundraising page. Any donation over $2, will be issued with a tax-deductible receipt. If you would like to read more about Jo there are also the following social media handles / links: @cancerandcartheels @drjoprendergastcomedy and https://drjoprendergast.comWelcome New Members - 14th February 2025
Hello and welcome to our newest Online Network members: @LouiseR @jessieG @Priti98 @kerynf @Bindabee1980 @whattodo @kittymc @Roller2025 @Mumslife @3356433 @matchewdon @sambeywick @chanellenumba5 @Linda88 @CathrynH @BeccyBoo @Uselessname @Marjerys @maccas @newmama88 @RietteV @TanLovering @wonkypenny @amburgerwithcheese @Trina1970 @DON23_ @MelissaKDamm @Anna15 @JSpierings @Oma1 @newsusanau @Sulli @Triplebreast240 @Duncan @SJV73 @Crabby1007 @jen64 @JulietB @Germanlass @MizB @SarahWarner @Miami26 @JEB87 @LKM87 @sure @ilanagal @Spark24 @breastDackel @Lollie @Jordmarcnoah3 @maribel @jan09 @Chrisk @ReneaTaylor @KathBewl @Hayleanne @HelenMary @kikki1999 @LissyLouLou @fantasticream @Michelle83 @scrappyruth @MandyJane2025 @laurab @SharonDungey @Katie77 @Forestnfriend @faith888 @Melski @TJW @jeety @Asterix @ay123 @Tam73 @lizzee @BlueSky15 @TNBC_32 @LisaRH @traceyjane @Frillylee @jodeebonnevie @Misobear @robynevans @liz23 @brindaratna @KEB @mystic_marzipan @linda11 @MsAussieBee @jenott @JoJoHanna @Sin You have found your way to Breast Cancer Network Australia's (BCNA's) Online Network. This is a forum where you are not alone and can engage with generous members who provide meaningful support to each other. You can share as much or as little as you feel comfortable with other members. Please explore our various Groups for members who are looking for greater peer-to-peer support. The following links may also be helpful in getting you started: If you would like to introduce yourself please read How do I post a new Discussion? How do I send a private message? Navigating the online community Community Guidelines My Journey Newly diagnosed? Listen to BCNA's Upfront About Breast Cancer Just Diagnosed - What's Next? and What I Wish I Knew podcasts Metastatic breast cancer diagnosis? Webcast: Just diagnosed with metastatic breast cancer, what’s next? When is your birthday? Head to this discussion thread if you would like to share your birthday (no need to include the year unless you want to). We love an online celebration and on the day you will receive a virtual birthday cake that we can all share! Our long-time members (newbies too!) are a wealth of information regarding the useful discussion topics and information available through BCNA's Online Network, therefore please do not hesitate to post your questions. You have the option to add details about yourself to your 'Profile' (Update your profile image by clicking 'Change My Picture') and if you would like more targeted responses, you may like to add where you live (e.g. Sydney; Melbourne; Regional Victoria). If you need help navigating the Online Network please message myself @Mez_BCNA or one of our other moderators: @Denise_BCNA , @Risha_BCNA , @Pat_BCNA, @Kate_BCNA , @Daina_BCNA , @Astrida_BCNA Please note: the Online Network is not moderated by staff/volunteers on the weekends, however if you need something actioned, the quickest way to resolve your query is to contact the Helpline Team via email helpline@bcna.org.au or phone 1800 500 258 Monday to Friday 9:00am-5:00pm AEDT
Share your views: Information and support needs of people following treatment of breast cancer
Hi everyone, Erana from BCNA here! I’d like to invite you to participate in a research study opportunity led by James Cook University. Please see details below. If you can't access the QR code you can also follow this link Qualtrics Survey | Qualtrics Experience Management. If you have any questions or concerns regarding this research, please contact the research lead Tracey Ahern at tracey.ahern@jcu.edu.au This study has been approved by the James Cook University Australia Human Research Ethics Committee (#H9326).Volunteer for Pink Bun campaign
Do you, or someone you know, have time between now and the end of May to support Breast Cancer Network Australia (BCNA)’s biggest fundraiser? We are looking for people to help coordinate Pink Bun Campaign Volunteers with events at Bakers Delight bakeries from May 1st to 21st, 2025. The role involves working with other BCNA volunteers in your community and Bakers Delight bakeries, with support from BCNA staff. People who enjoy talking to others and are comfortable with basic computer skills can apply here to register their interest. Please forward this link onto anyone you know who might be able to help. We are especially looking for support in NSW, the ACT QLD, and WA. Funds raised though the Pink Bun Campaign are vital to BCNA’s ability to support Australians affected by breast cancer. If you don’t have the availability to support BCNA in this role, please keep an eye out for details on how you can support the campaign with a spare hour or two. Check out the behind the scene video from last year's campaign https://www.facebook.com/bakersdelight/videos/bcna-pink-buns-are-back/754110623542494/
