Just venting
I wasn’t sure where to post this. And there are a few things to say. Has anyone had the experience of people giving advice as to what to do with treatment etc? I’ve had people tell me to seek other treatments. Yesterday someone who I vaguely know sent me links to iodine to cure breast cancer. And said that he hopes I don’t do surgery or radiation. That surgery spreads the cells. 🥺 of course this had rattled me & I’m in a triggered state. I’ve deleted the message & blocked the number also, I’m so emotional, scared, sad, not sleeping well. I’m going to try to call the help line today & seek a counsellor. I have a counsellor for trauma CPTSD but I can’t afford her now and she’s not registered to get subsidised sessions Another piece of advice from another person was to try to stay out of fear as it lowers vibration. I totally understand vibrational energy but how on earth do I stay out of fear 100% of the time i am scared. I am afraid of what is to come. I find it difficult to still myself, to meditate or pray. i also know that this will pass but right now, I feel vulnerable & alone (even though I have a supportive husband) I find it difficult to reach out too. Hope this is the right place to post here🌏Translating and Interpreting Service (TIS National)
Navigating a breast cancer diagnosis can be overwhelming, especially when English isn't your first language. TIS National is a government-funded interpreting service that helps people who are not confident speaking English communicate with healthcare providers, government services, and other organisations. Interpreters are available in hundreds of languages, helping people access information and services more confidently and independently. When attending medical appointments, understanding treatment options and asking questions is incredibly important. If language is a barrier, you have the right to ask whether an interpreter can be arranged. Professional interpreters can help ensure you receive clear and accurate information about your care. 📞 TIS National: 13 14 50 🔗 Learn more: https://www.tisnational.gov.au/ 💬 We'd love to hear from you: Have you used an interpreter during your cancer experience? What helped you feel more informed, supported, and confident when communicating with your healthcare team? As always, please only share what you're comfortable sharing, Together, we are stronger. 💗🌏 Resource Spotlight: Chinese Cancer and Chronic Illness Society of Victoria (CCCIS)
We'd like to share a resource that may be helpful for Chinese members of our CALD community. The Chinese Cancer and Chronic Illness Society of Victoria (CCCIS) provides culturally and linguistically appropriate support for Chinese Australians affected by cancer and other chronic illnesses, along with their families and carers. Services include support groups, family support, community education, wellbeing activities, and practical assistance. For many people, being able to access support in their preferred language and connect with others who understand their cultural background can make a significant difference during a cancer journey. 🔗 Learn more: https://cccis.org.au/ 💬 We'd love to hear from you: Have you found a culturally specific service, support group, or resource that helped you during your breast cancer experience? As always, please only share what you're comfortable sharing. 💕🌏 Together, we are stronger. 💗🤝 Counterpart Strengthens Peer Support Program in VIC
Peer support continues to play a vital role in helping people affected by cancer feel informed, connected and supported throughout their experience. Last month, Counterpart welcomed 15 new trainee Peer Support Volunteers who will soon join their experienced volunteer team supporting women living with cancer across Victoria. Once training is complete, these volunteers will help expand Counterpart's peer support network, providing more opportunities for women to connect with someone who understands the challenges of a cancer diagnosis and treatment. 💗 Counterpart's Peer Support Volunteers provide a listening ear, help people access trusted information, and connect them with practical, medical and support services. Support is available by phone, at selected Melbourne hospitals, through Peer Support Hubs in Melbourne and Geelong, and at a range of workshops, events and wellbeing activities. 🧘♀️Counterpart continues to offer a variety of free programs and events, including online Yoga4Cancer sessions, educational webinars, Peer Support Hub gatherings and regional wellbeing days, helping people affected by cancer connect with others and access supportive resources in their local communities. 👉Find out more about Counterpart's Peer Support Program Here
Radiation cost
Hi everyone, I'm trying to get an idea of the cost of radiation therapy in Australia for those who do not have access to Medicare. I was diagnosed last Feb 2026, ER/PR+, Her2-, BRCA2+, 2 positive LN, and am currently undergoing chemotherapy. I'll be having a bilateral mastectomy in July, followed by radiation therapy. I'm on a temporary work visa in Australia, so I don't have access to Medicare. Unfortunately, my OVHC insurance won't cover radiation treatment because it is considered outpatient care. I’m really feeling really anxious about the potential costs, and to be honest, the financial burden has made me wonder whether I can even afford to go ahead with radiation. I would really appreciate hearing from anyone who has gone through radiation without Medicare coverage. How much did it cost, and were there any financial assistance programs, charities, or other support options available to help? Thank you so much for any advice or experiences you're willing to share.🌱Wednesday Wellness - 03Jun26 - The Impact of Community Strength 💪
One of the most powerful things about being part of our wonderful BCNA community, is that no one has to face breast cancer alone. Whether you’re newly diagnosed, in the middle of treatment, navigating life after treatment, or supporting a loved one, this space reminds us that shared experiences can bring comfort, understanding, and genuine connection 💞 Community isn’t just about being in the same space, it’s about being seen, heard, and supported. It’s the quiet reassurance of someone saying “me too,” the kindness of practical advice from those who’ve been there, and the encouragement that helps carry you through tough days As many of you know well, even small interactions can make a big difference to someone who needs some extra love today 🌟 🏐 A beautiful example of this was last weeks community engagement activity at the State Netball Centre. BCNA staff connected with some of our amazing netball club and association PLAY4BCNA hosts, along with members with lived experience. It was such a warm, uplifting gathering filled with smiles, shared stories, and genuine connection 💞 💖 Moments like this truly highlight the strength and spirit of our community. If you’re looking to connect with others with lived experience in person, don’t forget about the Counterpart Cancer Meet-up Hubs. These gatherings are a great opportunity to meet others who understand, share stories, and feel supported in a safe and welcoming space. You can check online here for upcoming sessions and find one near you 📍 Here in our Online Network, everyone’s story matters 🌟 There is strength in vulnerability and courage in reaching out, whether you’re asking a question, sharing an update, or simply reading along and finding reassurance in others’ words. Let’s continue to; 💕Lift each other up 💕 Celebrate the wins big and small 💕Hold space for the hard moments too You never know how much your words might mean to someone else. If you feel comfortable, share what community means to you or a moment when support made a difference in your journey. We’re stronger together 💪National Reconciliation Week 2026 (27 May – 3 June)
This week, we recognise National Reconciliation Week and reflect on this year’s theme: “All In” - a powerful call for all Australians to commit wholeheartedly to reconciliation every single day. Reconciliation is a shared responsibility that asks each of us as individuals, organisations, and communities - to step away from the sidelines and take meaningful action. It’s about listening, learning, and actively advancing the rights of Aboriginal and Torres Strait Islander peoples. This week is an opportunity to pause and reflect: How can we contribute to a more just and respectful society? What actions can we take, big or small, to support reconciliation in our daily lives? BCNA’s First Nations resource is an excellent opportunity to gain valuable insights, deepen understanding, and support culturally safe breast cancer care. Let’s all go “All In” not just this week, but every day and play our part in building a more inclusive and reconciled Australia.🌱Wednesday Wellness - it’s OK to Ask: Breast Cancer and Breaking Taboos - 21May26🌱
Asking questions about breast cancer can be harder than it sounds. Even when something is worrying you, it’s common to hold back or try to downplay how you are feeling. You might not want to seem difficult, feel embarrassed, worry about taking up time, or simply not know how to put what you’re feeling into words. It's a story we hear far too often. Breastcancer.org recently released a video called: It’s OK to Ask: Breast Cancer and Breaking Taboos, which aims to gently reinforce a simple but powerful message: your questions matter, and it’s okay to ask. We recommend watching this video for anyone who has left an appointment thinking that you wished you had asked more about: 💗 Sexual health and intimacy 💗 Body image and confidence 💗 Mental health and emotional wellbeing 💗 Long-term and ongoing side effects 💗 Fear of recurrence and survivorship 💗 Financial stress and practical concerns These are real issues that affect daily life long after treatment begins, and sometimes long after it ends. Yet they are often the things people hesitate to raise with their care team. If you’re looking for reassurance, validation, or encouragement to speak up, It’s OK to Ask is well worth watching. You deserve to be heard, supported, and fully cared for, in every sense of the word. 🎥 Click here to watch the video, or click here to check out a helpful list of questions we have compiled to help you have those conversations with your treating team. Please reach out to us on the Helpline if you need any extra support with preparing your questions for your healthcare appointments on 1800 500 258 - we are here to help you ❤️Ways your GP can help you 🩺 a key partner in breast cancer support
When navigating a breast cancer diagnosis, or even the uncertainty that comes with symptoms or screening, your GP can be one of the most important people in your support network. Often the first point of contact in the healthcare system, GPs play a vital, ongoing role that extends far beyond referrals. 🌿 More Than a Starting Point Many people think of their GP as simply the first step in getting specialist care. While that is true, it is only part of the picture. GPs remain a consistent, trusted presence throughout every stage, before diagnosis, during treatment, and well into recovery or long-term care. This continuity matters. Unlike specialists you may see occasionally, your GP often understands your broader health history, personal circumstances, and even emotional needs. 🩺 How Your GP Can Support You 1. Early Detection and Referrals Your GP plays a critical role in recognising symptoms, ordering tests, and referring you quickly to the right specialists. Acting early can make a real difference, both medically and emotionally. 2. Translating Medical Information Breast cancer care can feel overwhelming, with complex terminology and fast-moving decisions. GPs can help break down information into something more understandable, helping you feel informed and confident. 3. Emotional Wellbeing Support The emotional impact of breast cancer is significant. GPs are well placed to check in, provide mental health support, and connect you with counselling or support services when needed. 4. Managing Side Effects and Ongoing Care From treatment side effects to general health concerns, your GP can help manage day-to-day wellbeing and ensure nothing gets overlooked. 5. Coordinating Your Care With multiple specialists involved, your GP can act as a central point, keeping everything connected and advocating for your needs across the healthcare system. 🤝 Building a Strong GP Relationship Within our online community, we often talk about the importance of self-advocacy, and your relationship with your GP is a big part of that. Here are a few gentle reminders: Don’t hesitate to ask questions. No concern is too small. Be open about your physical and emotional experiences. Keep your GP updated on changes or treatment plans. Bring a support person if you feel overwhelmed. A good GP relationship is a partnership, one that supports you as a whole person, not just a diagnosis. Learn more about the best ways to work with your GP to get the most support during your experience with breast cancer. Read more here.🌎Breast cancer support services near you
Access to breast cancer screening and support varies across Australia, and understanding what’s available in your area can make a real difference. Here’s a simple breakdown of the services delivered across the different regions - we hope this list can help lighten the load for you and reduce some of the extra noise around accessing breast cancer support services. There are countless cancer support services out there. If you've had a great experience with one, or have a suggestion to add to this list, please comment below - we'd love to keep this list growing! 🌸AUSTRALIA - ALL STATES BCNA - Service Finder BCNA - Find a surgeon for breast reconstruction McGrath Cancer Care Nurses - Find a nurse near you Breast SurgANZ service finder - Find A Surgeon Cancer Council - Access cancer support online or call 13 11 20 Look Good Feel Better - In-person and online support workshops for people with cancer Counterpart -Online workshops for women with cancer Confidence Kits - Look Good, Feel Better's FREE self-confidence kit. My Care Kits - BCNA's FREE post-surgery support kit. Mummy's Wish - Support for mothers with cancer with young children. Otis Foundation- Retreats for people with breast cancer (family friendly). The Pink Sisters - Online support group for women under 50 with metastatic breast cancer Second Hope - Online support group for women over 50 with metastatic breast cancer Fabulous Over 50s- Online support group for women over 50 with any stage of breast cancer Canteen - Support for young people affected by cancer (either personally or supporting a family member) Supporting Blokes - a supportive online group for men whose partners have been diagnosed with breast cancer. Rural transportation support - National Rural Health Alliance Cancer Support Angels - Pantry care packs, housing and financial assistance Gather My Crew is transforming how Australia helps and cares – by giving everyday people the tools and confidence to offer real, coordinated support when it matters most. Dragons Abreast - Dragon boating activities connecting people with breast cancer Low Impact Pilates - Online Classes Yoga - Online Classes Meditation - Online Classes Reflexology - Online Classes The Wig Emporium - shipping across Australia and New Zealand. Pink Scissor program - complimentary haircuts before and after chemotherapy to support related hair loss (Locations Aus-wide) Bravery Co - Fun head scarf designs made by 3x cancer survivor 🌸VICTORIA BreastScreen VIC - Find A Screening Location Cancer Council VIC - Support services Counterpart - In-person support workshops for women with cancer Counterpart - Peer support for metastatic cancer The Menopause Warrior - Workshops supporting medication-induced menopause The Multipurpose Taxi Program - 50% off taxi fares offered by Cancer Council Patient assisted travel scheme VIC - Long distance medical travel help Travellers Aid - Travel Companions, Mobility Equipment Hire, Crisis Travel Support Wig Fittings - The Living Centre Melbourne Wigs for chemotherapy - $300 grant Hair loss support - chemotherapy & alopecia friendly Sparkle Therapy Foundation - gifts, outings and experiences for people with cancer. Specialty fittings - bra fittings and swimwear after mastectomy Geelong - Peer support hub Counterpart Gippsland breast cancer support - fuel, grocery, meal vouchers & wigs for locals Mildura - Sunraysia cancer resources Mornington Peninsula - Breast Intentions Support Group First Wednesday each month, 7pm to 9pm - supporting younger women and working women. For more information contact 0429 929 071 or email [email protected] Mornington Peninsula - Women's Cancer Support Group First Wednesday each month, 12.30pm to 2pm. The Mornington coffee meeting for women with cancer meets at The Bays Hospital, Vale Street Mornington. Third Tuesday each month, 10.30am to 11.30pm. The Hastings coffee morning for women with cancer meets at The Bays Consulting Rooms, Victoria Street Hastings. 🌸NEW SOUTH WALES BreastScreen NSW - Find A Screening Location Cancer Council NSW - Support services Patient assisted travel scheme NSW - Long distance medical travel help ACTIVATE Cancer Care Program - Wollongong Private Hospital Sutherland Shire Breast Cancer Support Group | BCNA Online Network Illawarra Cancer Social Group - Access via their Facebook Group Pyrmont - 3D Areola/Nipple tattoos and scar camouflage Maitland - Bra & breast form fitting Windsor - Wig services Campelltown/Macarthur - The Pink Pride breast cancer support group Petersham - specialised breast cancer physiotherapy CanRevive - Cancer support workshops for mandarin & cantonese speakers. Pink Sari - Cancer support workshops for Indian and Sri Lankin communties. 🌸QUEENSLAND BreastScreen QLD - Find A Screening Location Cancer Council QLD - Support services Patient assisted travel scheme QLD - Long distance medical travel help Mater Cancer Survivorship Service - free consultation to receive a personalised care plan. Greater Brisbane - Exercise Physiology for Cancer patients Manoora - specialised oncology physiotherapy & massage Tewantin (Noosa) Monthly Cancer Support Group 🌸SOUTH AUSTRALIA BreastScreen SA - Find A Screening Location Cancer Council SA - Support services Patient assisted travel scheme SA - Long distance medical travel help Brassiere private fittings - Post Surgical & Lymphoedema friendly bras and swimwear 🌸AUSTRALIAN CAPITAL TERRITORY BreastScreen ACT - Find A Screening Location Cancer Council ACT - Support services Patient assisted travel scheme ACT - Long distance medical travel help 🌸WESTERN AUSTRALIA BreastScreen WA - Find A Screening Location Cancer Council WA - Support services Patient assisted travel scheme WA - Long distance medical travel help Perth Surgeons - Breast Surgery 🌸TASMANIA BreastScreen TAS - Find A Screening Location Cancer Council TAS - Support groups Patient assisted travel scheme TAS - Long distance medical travel help Mr Walker's Wiggery - Wig fittings and support 🌸NORTHERN TERRITORY BreastScreen NT - Find A Screening Location Cancer Council NT - Support groups Patient assisted travel scheme NT - Long distance medical travel help
